Jud Kimmel

Neuroendocrine cancer patient / advocate. Founder of Men with NEN and Neuroendocrine Cancer Event Hub groups on FB. See also

[Jud Kimmel @JudKimmel]

@AmanChauhanMD Congratulations on your "final destination" of UCSF, Dr. Chauhan! If a patient decides that, you best listen... 😂

[Jud Kimmel @JudKimmel]

@PheoPara @UGrewalMD I'm not a doctor but I play one on TV... 😎

[Jud Kimmel @JudKimmel]

@sonbol_bassam @OncoThor @MayoCancerCare Any oncology lecture that includes David Byrne has got to be good. Important: @OncoThor is also excellent at explaining his thinking about "doing nothing", and when/how we'll revisit. That is key to patient confidence.

[Jud Kimmel @JudKimmel]

@UGrewalMD @EmoryMedicine More important is that you are educating other providers and generating interest in this specialty - thank you!

[Jud Kimmel @JudKimmel]

@doclauravater Moral judgment = bad. Scientific judgment = good. When a cancer patient want to ingest high doses of animal dewormers because Mel Gibson told a story to Joe Rogan, you still need to say "I understand why you want to try this but I have serious concerns..."

[Jud Kimmel @JudKimmel]

@SprakerMDPhD I'll be forever grateful to the community oncologist who diagnosed my Stage IV, Grade 3 NET. He was caring, gave me accurate info to start my journey, and referred me immediately to the specialist my case required. And I still count him as a key member of my larger care team.

[Jud Kimmel @JudKimmel]

@MedwatchKate @scserendipity1 @DrChoueiri @weoncologists @VincentRK @sanamloghavi @Rfonsi1 I appreciate the idea and motivation behind it but effective cancer care requires more communication and knowledge among all stakeholders - including patient / advocates like me. We need to keep finding ways to break down silos, not build new ones. 🦓

[Jud Kimmel @JudKimmel]

@OncoThor This is interesting from the pt perspective. We often grasp for any "certainty" we can find in cancerland, and therefore many believe that Dota PET is the way to know "for sure" whether new NETs are emerging. Even though it's just one imaging mode with its own pros and cons.

[Jud Kimmel @JudKimmel]

@NiuSanford I haven't heard of this backlash but it's easy to understand - buildings are tangible and easy to see. Whereas how do you assign BLAME when insurers, pharma, and health systems are all booking big profits (net revenues for the "nonprofits")?

[Jud Kimmel @JudKimmel]

@SprakerMDPhD @ACRORadOnc @ASCO THANK YOU for including patients (like myself) as eligible applicants! This means so much, as many patients don't have access to other conference travel funding options - and in addition to the whole financial toxicity of cancer itself.

[Jud Kimmel @JudKimmel]

@MayoClinic Always test for possible carcinoid syndrome and neuroendocrine cancer. Hot flashes, rapid heartbeat, and GI problems don't always mean menopause.

[Jud Kimmel @JudKimmel]

Happy Neuroendocrine Cancer Awareness Day to all who celebrate! NET, NEC, Pheo, Para, MTC, Merkel Cell, and many other NEN types and associated disorders.

[Jud Kimmel @JudKimmel]

@OncoThor @SNM_MI 2/2: My bottom line was that increasing pt confidence in RPT starts with understanding our thoughts and feelings, and this comes through authentic, attuned communication. Pts and HCPs suffer from cognitive miserliness already, it's worrisome to think that AI will make it worse.

[Jud Kimmel @JudKimmel]

@OncoThor 1/2: This is a BIG deal. I recently thought critically about pt challenges in considering and receiving RLT, as influenced by several psychosocial issues for cancer pts more generally. All of which I presented this past Friday at the @SNM_MI Theranostics Conf.

[Jud Kimmel @JudKimmel]

@SNM_MI Thank you to @SNM_MI for inviting and truly welcoming my patient perspective on RLT!

[SNMMI @SNM_MI]

Panel on clinical theranostics

[Jud Kimmel @JudKimmel]

@marklewismd Lovely - your daughter is a talented artist! And I'd note that neuroendocrine cancer (including you and me) has the zebra swallowtail... 😎

[SNMMI @SNM_MI]

Exciting things will be happening at the Theranostics Conference this week! More details from Jud below 👇

[Jud Kimmel @JudKimmel]

@SNM_MI Thank you, @SNM_MI! I'll share specific patient dynamics and real-life examples that I know will be of interest to the audience. I myself am a RLT success story. But we need to recognize that many others struggle in considering and receiving RLT, and understand why that is.