Juliana Winik

[Juliana Winik @JulianaWinik]

@adhdjesse Stuck being stuck is my general state of being these days 🫠

[Juliana Winik @JulianaWinik]

@HopeVirgo @wesstreeting As someone who has also been in and out of the system for over a decade just reading this makes me feel sick. This is how we are “treated.” I don’t know anyone who would feel safe enough to do so with such threatening “treatment” plans. It’s just awful.

[Juliana Winik @JulianaWinik]

@Autistic_Lauren To name just a couple: riding my scooter in a big circle for HOURS, swinging on my swing in my own little imaginary world for HOURS, big meltdowns (esp at home), having ONE outgoing best friend, lots of sensory issues from clothes to environmental things

[Juliana Winik @JulianaWinik]

@sensorystories_ The nuance my brain meanders through on a daily basis is exhausting!! Yet, I have been called a black and white thinker many times. It confuses me tbh. Like EVERYONE I can be b&w at times but it’s frustrating that people don’t see the nuance I hold MOST times, on DAILY basis 😔

[Juliana Winik @JulianaWinik]

@jamesldowns They didn’t know that it didn’t occur to me to do anything other than what the doctors told me to do until THEY TOLD me that’s who I was- a manipulator. If only they took a moment to talk to me/my parents bc their view of me caused so much hurt and harm.

[Juliana Winik @JulianaWinik]

@jamesldowns THIS! 13 yr old had NO clue what the stigmas and stereotypes were attached to a AN dx. The day I walked through those hospital doors I was seen as manipulative, deceptive, rebellious and they treated me as such. But they didn’t know me.

[Juliana Winik @JulianaWinik]

@PEACE_Pathway Is there a link available for this article? :)

[Juliana Winik @JulianaWinik]

@ChelseaRoff First, who says? Second, short term nutrition can/does change what is possible in the long term! I don’t see/feel the humanity, dignity, or respect any human being regardless of diagnosis deserves. It’s tragic.

[Juliana Winik @JulianaWinik]

@ChelseaRoff The narrative that “it is not a long term solution,” is infuriating! Yet again, what I hear is that someone is not worth saving in the short term bc it’s not “realistic long term.”

[Adam Gabsi ♿️ @AdamGabsiLDN]

As a Disabled person, I don’t need an assisted dying bill - I need better adult social care, access to GP appointments, quality healthcare, and accessible housing to live comfortably and independently. #AssistUsToLive #NoToAssistedDying @InclusionLondon

[Juliana Winik @JulianaWinik]

@AnorexiaMyths Even more interesting to me is that I saw I similar phenomenon but in reverse when my Dad died. The “light” flew out of his eyes like it was sucked away. It was undeniable. I wish I knew exactly what I was witnessing in myself/co-patients and my dad.

[Juliana Winik @JulianaWinik]

@AnorexiaMyths I have pictures where you can see what I am trying to describe quite clearly (imo) but obviously can’t really share those! Although I wish I could purely for research purposes!!

[Juliana Winik @JulianaWinik]

@AnorexiaMyths I see it in others too, the eyes are so telling to me when people are unwell. And in tx you see a sudden light come back into your co-patients eyes when they have been re-nourished for a certain period of time. It’s a fascinating phenomenon.

[Juliana Winik @JulianaWinik]

@jamesldowns @ucl @Aryan_AroraA @beatED @sensinglorna @DashaNicholls @DrAdrianJames @DrLadeSmith I find it difficult to know how to make my voice matter when I don’t have the letters behind my name :(

[Juliana Winik @JulianaWinik]

@suchnerve I go through phases with the misunderstood animals I feel connected to, lately it has been squirrels

[Scizon the Fenfen @ScizonValeforn]

@jamesldowns Sometimes, we also know that clinical support is inferior to human connection. We need and deserve empathy and understanding. Not to be told to hide ourselves and that our very thoughts themselves are wrong.

Sometimes we've seen the system fail so badly we have to change it