Pediatric oncologist interested in leukemia/lymphoma, palliative and supportive care. Patient-reported outcome research. Opinions are my own not medical advice.
@acweyand@DGlaucomflecken@LGlaucomflecken I laughed so hard at the med student in Peds heme onc video especially since I recently took that walk to the PICU for a “new” goals of care talk!
@marklewismd For me it’s the heme pathologist call when not expected. If they call about something else they have to start with something like “everything is fine but…” just like the call from a child’s daycare or school
Critical shortages of drugs like methotrexate threatens our ability to adequately treat patients. These generic drugs aren’t profitable hence the problem via @NYTimes https://t.co/O24VXlVAKh
“Kids with cancer don’t have lobbyists on Capitol Hill, they just have families with personal stories.” Pediatric and AYA patients deserve so much more. Keep up your amazing work @KFILE. What a well deserved award!
What a tremendous honor it was to receive a Lazarex Cancer Foundation Disruptor award for my work fundraising for the Infant Brain Tumor Program. I apologize for the ugly crying!
“In the years since her death, we’ve raised more than $3 million for infant brain tumor research, but the truth is it will never be enough because Francesca didn’t get to live the life she should have and the progress towards cures has been far too slow for our kids.
If there’s something I’d like all the policy and private stakeholders here to take note of, it’s how much more you all could do - if we just put our best foot forward for kids.
Kids with cancer don’t have lobbyists on Capitol Hill, they just have families with personal stories.”
@marklewismd I actually did see a couple discussing a tarp with some point on it on a wall in an art museum. Turns out it really was just a tarp over an area being prepared for the next exhibit. The security guard was having a good laugh at their struggle for understanding!!
@GiUknit @INLGiveAF @TheReelRandom This is beyond difficult. I felt like I was in a vice between work, my children and an aging mother with dementia. Whatever I was doing I felt I was shortchanging someone and that was with my mother in assisted living.