NEW: ASH RC released the Living with Sickle Cell Disease (SCD) Data Hub Report, reflecting the experience of13,000+ individuals living with SCD
Read the report: https://t.co/PtETb5t6Ev
#SickleCell#ConquerSCD#SickleCellAwarenessMonth
Honored to work with SCD experts to build a program answering long-standing questions in SCD. After a career in registries, this is one of the most meaningful milestones yet. This report proves we’re on our way to real change for people living with SCD!
#SCD#ASHRC#RWD#RWE
Now available: the 2025 Sickle Cell Disease Data Hub Report — the first report from the ASH RC’s SCD Data Hub Program. These data, based on real world data, lay the foundation for future research, policy, and improved care for the SCD community.
🔗 https://t.co/XZT4zLmMXi
ASH is committing more than $12 million to address research funding challenges and support the next generation of hematologists.
Learn more: https://t.co/e60Qf5B5hU
#Fight4Hematology
Not only is today Juneteenth, it is also World Sickle Cell Awareness Day.
HHS is proud to work alongside federal partners & agencies as well as partners & leaders outside of government to improve data quality and collaboration so that we can better tackle this complex disease.
@ELINTNews You’ve been a mainstay for me. Thank you for spending time to connect with credible sources. You are my primary source for the Ukraine situation.
We, along with @ASHCollab, are excited to get to work with the #SCD community. Similar platforms have improved health care for other diseases & we are optimistic for this model in improving the lives of people living w/#sicklecell disease.