Katie Edick

wife, mother, pediatric occupational therapist, patient advocate, broadway musical enthusiast. Living with metastatic breast cancer for 4 years

[Katie Edick @KatieEdick]

@LesleyKailani

[Katie Edick @KatieEdick]

As a patient living with metastatic breast cancer for 7 years it is imperative that the patient perspective is a part of ALL areas of breast cancer from research to treatment. Thank you Lesley Glenn for representing the #MBC community. #SABCS2023 #bcsm #Shareddescionmaking

[Katie Edick @KatieEdick]

Wahoo our blog is out!!! https://t.co/uiadVItaw1

[theresa's research @MetastaticOdds]

Today’s MARP pair spotlight is researcher Hannah Carter from @TAMUGENE and advocate Katie Edick @KatieEdick. #BCAM

Read their blog post here! https://t.co/3CxxQr8pJr

[MBC Alliance @mbcalliance]

“I'm alive today because patients in the 90s participated in #clinicaltrials for Herceptin.” MBCA patient advocate member Christine Hodgdon reimagines clinical trials: decentralization, fewer exclusions and broader participation.

https://t.co/62BdH7QNiK
#bcam

[MBC Alliance @mbcalliance]

“The voices of people living with this disease should be at the table.” Kelly Shanahan, MBCA patient advocate member, encourages #clinicaltrials participation from patients and more inclusivity from the medical industry.

https://t.co/ngaR2iHHfJ
#bcam

[MBC Alliance @mbcalliance]

"There were no options to treat my type of #breastcancer because of lack of equity in #clinicaltrials." Maimah Karmo, advocate and CEO of @tigerlilycares, explains how equity in access to clinical trials can save lives.

https://t.co/rsiZtvJpBm
#bcam

[MBC Alliance @mbcalliance]

Let's reimagine clinical trials to drive more progress on #metastaticbreastcancer. Let’s broaden eligibility and increase diversity. Let's learn more and do more. #BreastCancerAwarenessMonth.
Learn more at
https://t.co/wI2udoXj7y
#bcam2023 #clinicaltrials

[Katie Edick @KatieEdick]

Trail blazing! Asked my onc about #phesgo from @genentech. 5 min injection vs. the 1.5+ hours in an infusion chair. Never given @SparrowHealth, next pharmacy board. Will it be approved? This is why I went to #SABCS2022. Learning cutting edge research, new drugs and technology.

[Katie Edick @KatieEdick]

Sometimes life is serendipitous. At the airport, I was fortunate to sit next to @doctor_nova, an amazing oncologist, studying HER2+ BC (I'm triple posistive). So much hope for those of us living with MBC. Thank you for answering my questions! #SABCS22 #MBC #researchnotribbons

[Dr. Kelly Shanahan @stage4kelly]

This is what those of us living with MBC want too - live longer AND live better. It should never be a choice between the two. We and the people who love us deserve both. #SABCS22 #bcsm

[Katie Edick @KatieEdick]

Osborne Symposium highlights growing understanding of HER2, ER crosstalk https://t.co/JHHcgSWKEU

[Dr. Kelly Shanahan @stage4kelly]

And why should we care? Because a ton of people who are classified as HER2- have 1+ or 2+ expression and could benefit from TDxD and maybe other HER2 targeted therapies. #HER2low #SABCS22 #bcsm

[Julia Maués @itsnot_pink]

#SABCS22 PSA: Don’t miss the “Living with Metastatic Breast Cancer” session at 10am CT in Stars at Night 3/4!

@christeeny513 & @faceofstage4 will provide the patient perspective, and will be joined by @fumikochino, @AbbeyKaler, @BlaesAnneMD, @Tara_KaufmannMD.

[Katie Edick @KatieEdick]

World Breast Cancer Research Day! https://t.co/YtyB5Iql3v

[Marie Ennis-O'Connor @JBBC]

The weekly blog round-up featuring @ourmbclife @ngr_een @dammadbrstcancr @ngr_een @DrSharonBober @6state @gogsgagnon @malefitness @NancysPoint @MaureenKenny1 @crosserriddle @letlifehappen @KatieEdick @METUPUKorg @abcdiagnosis @AMJohnston1315

https://t.co/IpwPIcdhBc

[Aydah AlAwadhi, MD 🇦🇪 @Aydah_AlAwadhi]

Can we cure De novo HER2+ MBC? Yes @DrEricWiner

but the questions are:
1- which subset of pts?
2- what is the optimal tx?
3- any imaging or biomarkers to guide therapy discontinuation?
4- Role of local Tx to mets site?

#ESMOBreast21 @OncoAlert #bcsm

[Katie Edick @KatieEdick]

@JBBC @feistybluegecko @crosserriddle @mmejendouglas @after20yrs @Martha__Carlson @womenofteal @AMJohnston1315 @welliesnseaweed @letlifehappen @6state @yvonnewatterson @annmarieg4 @rjhogue Thank you for sharing my blog.

[Marie Ennis-O'Connor @JBBC]

Weekly Round-Up: The New Year's Edition https://t.co/DBQ2etZzYi featuring @feistybluegecko @crosserriddle @mmejendouglas @after20yrs @Martha__Carlson @womenofteal @AMJohnston1315 @welliesnseaweed @letlifehappen @6state @yvonnewatterson @KatieEdick @annmarieg4 @rjhogue

[Tori Geib @ChefGeib]

So - now that everyone spent 31 days becoming “aware” of #breastcancer, can we agree the orientation period is over?

Breast Cancer doesnt magically disappear November 1st. We STILL NEED ACTION! Research & Policy changes have to continue the other 334 days of the year.
#mbc #bcsm