The families of 10 children, all with severe epilepsy, took their fight to be prescribed medicinal cannabis oil to the Department of Health today. @AntoineSpeaker reports.
Raising conflicts of interest DOES NOT make you a conspiracy theorist.
Querying safety & efficacy DOES NOT make you antivaxx.
Calling a deadly overreaction DOES NOT make you a Covid denier.
Demonstrating lockdown inefficacy DOES NOT make you a granny-killer.
1/2
Been registered at this clinic for nearly a year. Was suffering 200 seizures a day. My auntie either has to pay £3,800 a month for my prescription or let me suffer. Never offered any compassionate funding. My auntie continues trying to fundraise to keep me well. #endourpain
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I voted against the Government's proposals tonight.
I don't believe the measures are what is needed to drive down the levels of the virus.
The financial support packages being offered are inadequate, inconsistent and unfair to many areas.
What about pressing the government for my prescription on the #nhs that I’ve been cruelly denied leaving me paying £3,800 a month or suffering 200 seizures a day? #endourpain
Please see below for a response from Lord Greenhalgh I have received today. I will keep pressing the Government for a resolution to this. @EOCS_Official
1/2: “The parents have been moved to write to the Prime Minister following news that he wrote a congratulatory letter to Charlotte Caldwell, whose teenage son Billy is one of the few people to receive an NHS prescription for medicinal cannabis after a two-year fight.
We lost 5-3 against Penwortham Town today. It was a good game and both teams were a decent match for each other. We raised £200 for @Kayleighsbattle too. The Knackers was established to give to charity and we’ve done that again today. Well done boys.
Why is it good enough for three other children? But not good enough for me. Is 200 seizures a day not enough to suffer? But yet they’ve left me suffering for two years unnecessarily along with all the other families in #Endourpain
Medicinal #cannabis: families of 25 children with severe #epilepsy write to Boris Johnson over NHS access. Families are still having to pay for private prescriptions at up to £2,500 a month — despite the law change two years ago. #EndOurPain https://t.co/lsh4OHhsZ8
A #Preston mum’s warning epileptic children who rely on medicinal cannabis could be forced to go without it because of #Coronavirus.
The drug costs hundreds and parents are struggling to raise funds for it.
@JoanneGriffith5 says her son had over 300 seizures a day without it…
“My plea is that they will read this, and that the (Scottish) Cabinet Secretary for Health will act” @cajardineMP@JeaneF1MSP 🙏🏻
https://t.co/ITxAtUf9nA