@faeriebites66 My friend recently with tonsillitis,yeah cos that's the same as fibro, vestibular migraine, pots, oa, heds, hip dysplasia, fibroids...π
@DrScomaME_CFS I get the poisoned feeling, it's horrific, sounds dramatc but I honestly feel like I'm dying sometimes! I've not got lc or m.e, but had fibro, vestibular migraine, pots, oa & hsd for 13 years π«
@adamfare1996 I was getting one of my many only every 2 weeks up untill very recently, so annoying, now its 4 weekly which is better but there always some sort of mistake, something missing etc! It's never straight forward!
@fairyonlyangel Came here to see if this was a tweet straight after hearing her say that & it's literally the first one ππ€£ I've been back n forth with my feelings on her but that pick me comment has done it! Yuk! π€£
@stirgussa Not quite the same but I was attacked by my ex while staying in family homes, at events, even my granny's funeral, but would go out the room & act completely normal as if I hadn't just been fighting for my life!
@JoannaNoBanana I forgot fibroids & suspect endo as I've had chocolate cysts & have symptoms for years but they won't do a lap, they just try to get me to get a marina coil but I refuse!
@sunsweptforest Yeah nsaids are a no for me as I get gastritis now from them π€’ I've got some physio exercises, it's just finding the bloody energy & I'm obviously in a lot of other pain all over from fibro & yeah it's a tricky one π€£ Thank you for using your limited energy to reply to me β€οΈ
@sunsweptforest Exercise defo doesn't help me, I've tried building up walking or a peddle bike so many times & I end up worse! I've got other illnesses too & osteoarthritis all over the place, my hip is really bad & hip displaysia, they say exercise helps, keep active..erm I can't mate! π€·ββοΈπ€£
@sunsweptforest Thank you so much β€οΈ Yes I do practice pacing most of the time although sometimes I think I'm better than I am & do too much! It's only recently I've realised the flu type symptoms (that never are an actual cold or flu) mean I'm about to flare up/crash!