With #RareDiseaseDay coming up, we're sharing Morgan's story to help raise funding and support for BPAN research.
Learn more & donate: https://t.co/UtTy6oekNu
With #RareDiseaseDay coming up, we're sharing Morgan's story to help raise funding and support for BPAN research.
Learn more & donate: https://t.co/W67789I5pI
Our family has more hope than ever about finding a cure for BPAN. In our new study, we have shown that AAV-mediated WDR45 gene supplementation is efficacious in improving neurologic function in the mouse model of BPAN! preprint is now available online: https://t.co/uQlYrx1xS1
The #Detroit skyline is illuminated in Honolulu blue this weekend in support of the @Lions as they tackle the @RamsNFL in their first home playoff game in 30 years! Let’s go #Lions! 🦁💙
#OnePride#DetroitLions
Today is rare disease day. I’ve written about a few of them in my past. This, from 18 months ago, is about a horrifying disease called BPAN and the Lions executive trying to save her daughter and other kids afflicted. https://t.co/4LWgi9z0Mp
Help save Morgan’s life.
In honor of #RareDiseaseDay, visit https://t.co/HznQb6oQ0I to donate and help us fund research to cure BPAN: https://t.co/2pDyO9kHZN
#FootballisFamily | @DontForgetMorgan
Football is family 💙
Help fund research that could save a child’s life, like #Lions SVP, Kelly Kozole’s daughter Morgan. Visit https://t.co/HznQb6oQ0I to donate.
@Dont4getMorgan | #RareDiseaseDay
With #RareDiseaseDay coming up Feb. 28, please consider supporting @Dont4getMorgan❗️
Bid now on autographed memorabilia from @BarrySanders and other @NFL legends ➡️ https://t.co/OKL1yHxjpe
NEW RESEARCH ANNOUNCEMENT⬇️
Don’t Forget Morgan and Harper’s Hope have partnered to fund a four year research grant with Harvard Medical School/Mass General Hospital to research potential Gene Therapy Treatments for BPAN!!!
The future is looking bright….☀️
🥰Love the BPAN kiddos
And also on #RareDiseaseDay a story from last year: ‘This is why I'm here': A Detroit Lions VP tries to save her daughter @Dont4getMorgan from rare disease https://t.co/kKwX88evsQ
Help fund research that could save a child’s life, like #Lions SVP, Kelly Kozole’s daughter Morgan.
In honor of #RareDiseaseDay, visit https://t.co/PczdL5fwb3 and bid to win an autographed @BarrySanders jersey. Proceeds benefit @Dont4getMorgan.