Mackenzie Abramson, MPH

🦓 #RareDisease #Patient & #Advocate
🧬 #ehlersdanlossyndrome
❤️ #potssyndrome
🧠 #myalgicencephalomyelitis
🌏 #adventurer
🐶🐶🐱 #furbaby #mama

[Mackenzie Abramson, MPH @Kenz_Chronicles]

@AnthemBCBS And how should I reference your offer to help? I have worked with triple agents at Anthem since the February 14th of 2024 and we are still back and forth with a huge lack of communication.

[Mackenzie Abramson, MPH @Kenz_Chronicles]

@AnthemBCBS do better!!!!

[Mackenzie Abramson, MPH @Kenz_Chronicles]

Take care of patients!

[Mackenzie Abramson, MPH @Kenz_Chronicles]

Check me out talking to Senator Chris Van Hollen!

#RareDC2024 #RareDisease #CareAboutRare #CapitolHill #Maryland #Advocacy

[Global Genes @GlobalGenes]

A recap of Mackenzie at the US Capitol iN D.C. for #RareDiseaseWeek. She was able to not only tell her story with other Maryland constituents, but also speak directly with Sen. Van Hollen about legislative asks to drive change in the rare disease community! #CareAboutRare

[Mackenzie Abramson, MPH @Kenz_Chronicles]

#RareDC2024 #RareDisease #CareAboutRare #CapitolHill #Maryland #Advocacy

[Global Genes @GlobalGenes]

“We should focus just as much on rare diseases [as we do common diseases], because the impact on any particular family is just as meaningful, and we need to make sure we don’t overlook them” -Senator Chris Van Hollen at US Capitol Hill during #RareDiseaseWeek. #CareAboutRare

[Mackenzie Abramson, MPH @Kenz_Chronicles]

#RareDC2024 #RareDisease #CareAboutRare #CapitolHill #Maryland #Advocacy

[Global Genes @GlobalGenes]

Mackenzie is at the US Capitol building with her group of Maryland constituents and getting the opportunity to advocate & tell her story. Stay tuned for her take on meeting with Senator Chris Van Hollen to discuss legislative asks for the rare disease community! #RareDiseaseWeek

[Mackenzie Abramson, MPH @Kenz_Chronicles]

#resilience in the rare community is wonderful, but listen below to hear my love hate relationship with being #resilient in #RareDisease 🦓

#RareDiseaseDay #RareDC2024 #CareAboutRare #Advocacy #Advocate

[Mackenzie Abramson, MPH @Kenz_Chronicles]

Catch me on the Hill today 💚🦓

#CareAboutRare #RareDisease #RareDiseaseDay #ChronicIllness #Advocacy #Advocate

[Global Genes @GlobalGenes]

It is Day 3 of #RareDiseaseWeek and Capitol Hill day! Here is a rundown of what Mackenzie will be up to today, including talking to senators and representatives about the 5 legislative asks for the rare disease community!
#RareDC2024 #RareDiseaseDay #CareAboutRare #CapitolHill

[Mackenzie Abramson, MPH @Kenz_Chronicles]

End of Day 2 at #RareDC2024 🦓 So, ready to get on the Hill and get stuff done!

#CareAboutRare #RareDisease #RareDiseaseDay #ChronicIllness #Advocacy #Advocate

[Global Genes @GlobalGenes]

Here is a wrap-up of Legislative Conference Day in Washington D.C. for #RareDiseaseWeek with Mackenzie! Tomorrow, she, along with others will be talking to senators and representatives to get things done for the rare disease community, so stay tuned! #RareDC2024 #RareDiseaseWeek

[Global Genes @GlobalGenes]

Maryland leader Stephanie Riordan from @EveryLifeOrg for Rare Diseases prepping Mackenzie and others for tomorrow’s meetings with Senators Cardin and Hoyer! #RareDiseaseWeek #RareDiseaseDay #CareAboutRare

[Global Genes @GlobalGenes]

Here is the breakfast reception going on before the start of the Legislative Conference! We are set up in the Atrium, so if you’re in person, make sure to stop by and say hello 👋 #RareDiseaseWeek #RareDiseaseDay #CapitolHill #WashingtonDC #CareAboutRare

[Mackenzie Abramson, MPH @Kenz_Chronicles]

Legislative Conference Day in Washington D.C. getting us ready for Hill Day Meetings 🦓

#RareDC2024 #CareAboutRare #RareDisease #RareDiseaseDay #ChronicIllness #Advocacy #Advocate

[Global Genes @GlobalGenes]

It is day ✌️of #RareDiseaseWeek and Legislative conference day! Mackenzie outlines the 5 legislative asks that they will be focusing on today at the Ronald Reagan building! #RareDiseaseDay #LegislativeAsks #CareAboutRare

[Mackenzie Abramson, MPH @Kenz_Chronicles]

"Lived experience experts are the only ones who know what it is all about" - Patrick James Lynch, filmmaker "Bombardier Blood"

#RareDC2024 #CareAboutRare #RareDisease #RareDiseaseDay #ChronicIllness #Advocacy #Advocate

[Global Genes @GlobalGenes]

Mackenzie tuned into the first event, a screening of “Bombardier Blood,” a documentary based on the life of Chris Bombardier, and his conquest of being the first person with Hemophilia to climb the 7 summits, including Mt. Everest! #RareDiseaseDay #Hemophilia #CareAboutRare

[Mackenzie Abramson, MPH @Kenz_Chronicles]

Follow along my journey in my new role with @GlobalGenes this week at Rare Disease Week on Capitol Hill 🦓

#RareDC2024 #CareAboutRare #RareDisease #RareDiseaseDay #ChronicIllness #Advocacy #Advocate

[Global Genes @GlobalGenes]

Our new Sr. Manager of Research Program Communications, Mackenzie Abramson, MPH is taking part in Rare Disease week in Washington,DC. Stay tuned to see how you can advocate to your legislators, and all of the behind the screen footage 🎥 starting tonight!
@everylifeorg

[Mackenzie Abramson, MPH @Kenz_Chronicles]

I entered this #sweepstakes on #tunespeak. Follow the link below to enter & help me win. https://t.co/l6OOMY6MvM

[Mackenzie Abramson, MPH @Kenz_Chronicles]

Thank you so much! Hope you enjoyed the talk 🦓

[Fibro_Ireland @Fibro_Ireland]

@Kenz_Chronicles talks us through
navigating relationships and maintaining them when living with a chronic pain condition. Nurturing your relationships and harnessing support can enhance your well-being. There’s more than 1 way of being intimate so get creative! #GLC2023 #eds

[Mackenzie Abramson, MPH @Kenz_Chronicles]

@RepDeSaulnier @SenAlexPadilla @SenFeinstein I'm worth more than 33¢. Please support $50M in NIH #POTS research in FY2024. 6M+ Americans suffer from this devastating illness w/ no FDA approved treatments. Learn more https://t.co/EW7cqcIywr & connect to @dysautonomia for details.

[Mackenzie Abramson, MPH @Kenz_Chronicles]

@urdisabilitygal @GlobalGenes Thank you so much 💚

[Mackenzie Abramson, MPH @Kenz_Chronicles]

My reminder as I prep myself to speak at @GlobalGenes 💙💚

#GGSummit22 #GGSummit #RareDisease #CareAboutRare #GlobalGenes

[AllStripes @_allstripes]

AllStripes team members @JustErinToday, @Kenz_Chronicles and @rarelikeher at the @GlobalGenes RARE Patient Advocacy Summit in San Diego! #GGSummit #GGSummit22

[Mackenzie Abramson, MPH @Kenz_Chronicles]

@addiengeorge @GlobalGenes Thank you 💙💚