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In this video, Maria had just woken up.
What you see here — these small startles— are epileptic myoclonias.
They are sudden, involuntary muscle jerks caused by abnormal electrical activity in the brain.
🧠 Maria has already been diagnosed via EEG with Lennox-Gastaut Syndrome.
These episodes usually happen during sleep–wake transitions or when she is very tired. 😴
It’s hard to watch… but it keeps us going:
🩷 to seek better treatment
💚 to get the right support
🩵 and to give Maria a calmer, better life
Lennox-Gastaut is complex… but our love is stronger ❤️