Jaye Wood

Classically trained pianist and soprano, crocheter, jewellery designer and zentangler.

[Jaye Wood @Kitschcreations]

@NjRamsay @jonstoneneuro I have myopic esotropia which causes binocular double vision when trying to focus on different objects.
I think at times I have an overlying functional convergence spasm which cata on top of the existing weakness. I also have pppd which is a chronic functional vestibular disodr

[Stephanie-Roxanne Blanco @S_R_Blanco]

16 years ago I was bedbound, paralysed & couldn't speak. Today I'm annouhcing that I'll be walking on that stage and speaking on that big red dot 🔴
My goals: highlight #FND to a global auidence & share lessons gained in 9 yrs of working with patients & my research & PhD.

[Jaye Wood @Kitschcreations]

@TomPlender I guess I mean "traditionally organic aetiology". I think research will reveal a more organic cause or perhaps an organic susceptibility

[Richard Cooke @RichardKGCooke]

Quite shocking and saddening. Your whole family is outstanding and inspirational and all thinking people can see that. We loved having Isata and Sheku in Canterbury last year and Isata’s prom was superb. You have a lot of love @royalchoral @CanterburyChora @UoEChoir

[Jaye Wood @Kitschcreations]

@KH118118 @jenbrea 🙄

[Tom Plender @TomPlender]

1/A common problem with understanding the aetiology of #FND is the question of ‘illness beliefs’ . Many critics argue that researchers in the field have simply replaced the idea of ‘Freudian psychological trauma’ as the main driver of FND, with irrational illness beliefs instead

[Jaye Wood @Kitschcreations]

@jonstoneneuro @FNDSociety As an FND sufferer with a degree in English Literature this post made me smile so much! Smiling is so medicinal 😊

[Jaye Wood @Kitschcreations]

@ZacharyGrinDPT @FNDAction @ThinkingMindPod Tbh I actually found her advocating for better FND services quite warming - it's the assumption of purely psychosomatic basis which I object to. Also, its mainly dealing with NEAD FND symptoms since epilepsy is her specialism so misses out lots of other FND manifestations.

[FND Action @FNDAction]

We were approached by @ThinkingMindPod to comment on this interview with @Suz_OSullivan. We appreciate Dr O'Sullivan's calls for compassion for #FND patients, but have major criticisms of her work. This is a link to our open statement
https://t.co/Uo1wDWeAhc

[Jaye Wood @Kitschcreations]

@KH118118 Honestly I spent months wasting recovery time calling this an "emperor's new clothes" diagnosis and endlessly researching differential diagnoses. Every new condition I heard of I immediately researched symptoms in case i had it. Huge health anxiety now I look back.

[Jaye Wood @Kitschcreations]

@KH118118 They are literally hampering any chances of recovery for people with FND especially when so many of us have the type of personalities which question everything anyway. It's taken me 5 years to realise FND and PPPD are right - 5 years lost partly through this cynicism

[Jaye Wood @Kitschcreations]

@KH118118 Exactly. Why buy a toaster when you can still insist on sitting by the campfire heating bread? Things move on understanding develops but still some are stuck in the dark ages

[Jaye Wood @Kitschcreations]

@CllrJulieS Wish you well. Been struggling for definitive diagnosis now since 2018.

[Jaye Wood @Kitschcreations]

@KirstieMAllsopp It's simply the "we won't get caught" mentality - like people who drink and drive regardless of the huge dangers they know they pose to themselves and others.

[Tom Plender @TomPlender]

#FND #neuroscience #neuro #Neurology

[KimH @KH118118]

‘Functional Neurological Disorder is one of the most stigmatised conditions in medicine’. Many still refer to outdated literature, or make meaningless harmful assumptions. The #Voices4FND say #timeforchange. #FND #FNDTwitter #InformTheDoctor

[Pianist magazine @pianistmagazine]

On this day in 1941, the incomparable Martha Argerich was born! Happy 82nd birthday, Martha.❤ Leave your birthday wishes for the Argentinian in the comments below 👇🏽
Photo credit: Susesch Bayat/DG