Margaret O'Hara

Trustee of @HGSupportUK and @long_covid, HG survivor, Patient Involvement in Research, Hyperemesis, pregnancy, research, advocacy for #LongCovid

[Margaret O'Hara @Know_HG]

I asked pwLC in the Fb group run by @long_covid to describe #LongCovid in single words
There was an outpouring of the most heartbreaking cries of pain and distress.
If you're minimising Long Covid, this is what you're trying to ignore, life-changing, scary, exhausting suffering

[Long Covid Support @long_covid]

@JoPlattLeigh (Labour MP and Chair of the ME and Long Covid APPGs) spoke to @BigIssue about living with Long Covid and the urgent need for a fairer benefits system.
Read more here:
https://t.co/75fapjJfdd

[Long Covid Support @long_covid]

1/3 ❌PIP cuts will be devastating for people with #LongCovid and #ME

Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health.

We’re calling on MPs to oppose the cuts-help us flood their inboxes.

Link to briefing & how to act⬇️

[Margaret O'Hara @Know_HG]

At last, the @rcgp is doing some education about Hyperemesis Gravidarum. I look forward to never again hearing about a woman forced to end her wanted pregnancy because her GP refuses to prescribe antiemetics due to misguided fears and ignorance of the risks of untreated HG

[Pregnancy Sickness Support @HGSupportUK]

🚨 Launching today!
The @RCGP has released its first-ever screencast on Hyperemesis Gravidarum – giving GPs essential guidance on diagnosis, treatment, PUQE scoring & antiemetic safety. https://t.co/0MryGnOFae
This is real #HGProgress
#HyperemesisGravidarum #GPEducation

[Margaret O'Hara @Know_HG]

@NJLR @long_covid We're so glad to have you on board Nigel. I'm looking forward to working with you.

[Margaret O'Hara @Know_HG]

@Michaeltikus @elle_carnitine That's quite a stretch. It's far more likely that, as most virologists and infectious disease doctors are screaming from the rafters, one antiviral isn't enough and it needs a much longer course.

[Long Covid Support @long_covid]

We are pleased to announce appointment of Nigel Rothband as Chair of Trustees of Long Covid Support.

Nigel brings with him a wealth of expertise along with personal experience of the devastating impact of #LongCovid.

Welcome Nigel!

Read more on our website - link below⬇️

[Nicholas Fabiano, MD @NTFabiano]

This is the first map of human brain mitochondria.

🧵1/11

[Margaret O'Hara @Know_HG]

@scott_scientist @Housoup ME/CFS isn't even one disease, it's an umbrella term for lots of different pathogen-induced conditions. Long Covid is another type of IACCI and it makes zero sense not to try and understand where it's the same and where it differs from previous ones.

[Long Covid Support @long_covid]

📣 1/2. Clinic Watch UK!!
Are you UK based & have you recently been notified of changes to your local #LongCovid Clinic?

If so, we want to hear about it!

🧑‍💻 Head to our clinics webpage & complete a simple survey - link below ⬇️

#LongCovidClinics

[Long Covid Support @long_covid]

Huge thanks to our Founding Trustee @Know_HG for presenting at the @Clinicalpcs conference on our #LongCovid clinics report produced with @LongCovidKids. Vital to ensure the many who need effective Long Covid services are heard!!

Link to our report below⬇️

#ClosingClinics

[Margaret O'Hara @Know_HG]

@ErinAPN1 @LongCovidKids @Clinicalpcs @SammieFMc @long_covid @LongCovidSOS @LongCOVIDPhysio @MichaelRosenYes @SGriffin_Lab @BinitaKane @DrMark_Faghy Not that I saw. I don't think it's a big enough conference to attract participants from such a distance, it's only one day.

[Margaret O'Hara @Know_HG]

@LongCovidAdvoc FWIW I'm not sure those people really have much influence in CPCS. Emma Wall's research overview focussed on mechanistic studies & Rob Wust was the main guest speaker. Here CPCS leads are interviewed, message is clear it's a biological condition https://t.co/6F7r2JjpNI

[Long Covid Support @long_covid]

📺 1/2 Thanks to @DrDavidGK & BBC Midlands Today for covering our #LongCovid clinics report (written with @LongCovidKids) & our Trustee @Know_HG for speaking:

“These people could work - but they need medical help, they don’t need a life coach”

Report link ⬇️

#ClosingClinics

[Jon Douglas @atranscendedman]

French researchers analyzed blood samples from 100 Long COVID patients, 60 recovered COVID cases, and 60 uninfected controls.

They identified immune and metabolic biomarkers that diagnosed Long COVID with 99% accuracy.

https://t.co/vrVBGqGHUH

[Michael Alexander @Michaeltikus]

What's that, Mr Great tit? #LongCovid affects more than 400 million people worldwide? Why aren't more people tweeting about it?

(We might see quite a lot of Mr Great Tit today, they're a bit of a regular).

#LongCovidAwarenessDay2025
#HorinzontalSpoonbill
H/t @pheob289

[Welshpool 🏴󠁧󠁢󠁷󠁬󠁳󠁿 ICD-11 (RA02) @YantoVLongCovid]

@long_covid @AshleyDalton_MP @JoPlattLeigh @Know_HG @SarahWestonRD CHESHIRE & MERSEYSIDE

If you live in this area and have #LongCovid, there is a questionnaire on their website regarding services. Please complete if you can. Deadline is Sunday 16th.

https://t.co/Q7qdmw2oQd

[Long Covid Support @long_covid]

🚨.@AshleyDalton_MP tells @JoPlattLeigh that their stocktake of NHS #LongCovid services is complete but...

“THERE ARE NO PLANS TO PUBLISH FINDINGS”!!!

Perhaps Ashley would like to look at our own stocktake - Link below⬇️

⭐️And our full #LongCovidClinics report is out soon!⭐️

[Margaret O'Hara @Know_HG]

This is what I’ll be doing this weekend.

#LongCovidAwarenessDay

[Long Covid Support @long_covid]

📣 1/3. Final reminder!!
Join us for the Long Covid Support Community Strategy Launch!

🗓️ Saturday 15th March 2025, 2-4pm GMT
📍 Lyric Theatre, Hammersmith AND 💻 Online

Further details and link below to register ⬇️

#LongCovid
#LongCovidAwarenessDay

[Margaret O'Hara @Know_HG]

@cv_cev I don’t know why people are so upset about this. They’re returning direct accountability to ministers, I don’t think it’s a bad move.

[Margaret O'Hara @Know_HG]

@wfpevents I've been in the Teams waiting room for your meeting for 20 minutes. Called the helpline, no response. starts in one minute. Any advice?