Kristen

Woman of Mystery/SarcoidosisWarrior/#hydrow obsessed

[Kristen @Kristen_Vargs]

@HunterBiden @chucktodd “I will choose to remember the time before Trump. Because I believe in an America after Trump.” Words to stay in the forefront of our minds today. I hope you are right.

[Kristen @Kristen_Vargs]

@AdamKinzinger Ya think? Say it isn’t so. 🙄

[Matthew McConaughey @McConaughey]

Japan: “We try to beat the opponent in the game then clean up the pitch after, win or lose.”… now that’d be a good epidemic.

[Kristen @Kristen_Vargs]

@donnyosmond I worked next to the Osmond Bros theatre in Branson Mo for a few years and your brothers would come into the store frequently to shop.

I adored each of them. They were kind, down to earth and the customers we loved to see walk in the door.

[Kristen @Kristen_Vargs]

@RepJoshG is the real deal. As a person living with sarcoidosis, I am thankful for all of his work for sarcoidosis and health care for the underserved.

[Rep Josh Gottheimer @RepJoshG]

My mom fought Sarcoidosis every day with strength and resilience, but like so many patients, she didn’t have the options we’re fighting to create today.

Thank you to the doctors, researchers, advocates, patients, and families who joined me today during Sarcoidosis Awareness Month to help shape better policy and ultimately save lives.

[Kristen @Kristen_Vargs]

@CityofRogersAR I found myself at the farmers market this morning in a relatively new mixed-use neighborhood and was dismayed by the lack of accessibility in the neighborhood. The sidewalks are not built for access at all! Shame on you!

[FSR @StopSarcoidosis]

The FSR shirts have re-launched but the fundraiser closes for good on 12/20.
If you missed them the first time… now’s your chance.
👉 Get yours before they’re gone: https://t.co/eCwIebIurX

[Kristen @Kristen_Vargs]

@DecodingFoxNews They treat her terribly.

[Kristen @Kristen_Vargs]

Thank you for your leadership on this @RepJoshG. This is important for so many patients living with rare disease.

[Rep Josh Gottheimer @RepJoshG]

On @SquawkCNBC, I recommitted — in memory of my mom — to ensuring no family feels alone in the fight against rare disease.

More than 90% of people with rare diseases lack a treatment or cure. 

Patients cannot wait. We have to cut through red tape, invest in research, and find real solutions. 

This is about giving families real hope.

[Kristen @Kristen_Vargs]

@mcuban Currently fighting this craziness now. Insurance changed because of a new job. Expensive treatment not an FDA approved treatment for my rare disease. New insurance says it’s not medically necessary even though it’s been keeping me on my feet (literally for the last 4 years.)

[Kristen @Kristen_Vargs]

Exciting news! Thank you @RepJoshG ! This is important work and is long overdue!

[Rep Josh Gottheimer @RepJoshG]

In honor of Rare Disease Week, I’ll be introducing a bipartisan package of legislation to help find cures.

I’ll be joined at the State of the Union address by my sister Emily, as we honor our mother, who passed from Sarcoidosis, a rare lung disease.

Today, we are both fighting to boost funding for research, treatments, and cures, and to support families battling rare diseases.

[Kristen @Kristen_Vargs]

Excellent news for the sarcoidosis community. @JaredEMoskowitz, it would be amazing to see you as part of this effort.

[FSR @StopSarcoidosis]

We’re proud to be a part of the new bipartisan Congressional Sarcoidosis Caucus. This effort will work with the FDA to modernize outdated systems and push for increased federal resources for #sarcoidosis research and care. Read more: https://t.co/qqZfOOs62h

[Kristen @Kristen_Vargs]

@BarackObama @TeamUSA I can’t say I always or even often agreed with your politics but thank you and your bride for being a voice of leadership and unity during this tumoultous time.

[Kristen @Kristen_Vargs]

@GaryPendergraft @BrockP65 Congratulations! Awesome news.

[Kristen @Kristen_Vargs]

@JaredEMoskowitz @JavManjarres This is a perfect reply. Proud that you are my congressman!

[Kristen @Kristen_Vargs]

@iamrodneysmith I love what you do! It’s great for kids, great for the community and great for humanity!

[Kristen @Kristen_Vargs]

@BulwarkOnline @BillKristol I think one of the things about Mark Cuban is he is one of the few voices that seem to be in this to fix the broken system not play politics (which I think is why he is all over the board).

[Kristen @Kristen_Vargs]

@GaryPendergraft @BrockP65 @SchoolsSeneca @SenecaAthletic1 @scoreboardguy Congratulations! Go Big Red! Tradition, Pride, Class!

[Kristen @Kristen_Vargs]

@GaryPendergraft @BrockP65 TPC! Congratulations Coach!

[Kristen @Kristen_Vargs]

@GaryPendergraft @BrockP65 Go Big Red!