International Long Covid Awareness

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#CureLongCovidNow #LongCovidMakesUsOne

[International Long Covid Awareness @LCawarenessInt]

How many more lives will it take before healthcare systems & governments act?

Every day without prevention, treatment, care, & #LongCovid education costs people their health, livelihoods, and futures.
Silence is not a strategy.
Inaction is costing lives globally.
#LongCovidKills

[Association Winslow Santé Publique @winslow_la]

🖤🐘 Another life lost to Long Covid and medical negligence.
Rest in peace, Paola.
Long Covid death shall not be silent.
#LongCovidKills

=> The fight continues. There is so much to do, the COVID crisis is just beginning. But don't lose hope. And don’t lose your anger either.

[Harry Spoelstra @HarrySpoelstra]

Ignorant scientists just dropped a 'post-pandemic diabetes' paper that pretends COVID-19 vanished in 2023.

Title screams “COVID-19’s Lasting Impact” yet the entire analysis dodges the elephant:
→ SARS-CoV-2 is causing new-onset diabetes in millions,
→ Science papers: 1.37% incidence in infected patients, 40%+ higher risk persisting 3–12 months, beta-cell destruction, chronic inflammation,

Global Burden of Disease (GBD) numbers didn’t magically accelerate, because of the “pandemic,”

SarsCoV2 is still driving them,

Calling it “post-pandemic era” while ignoring the active viral trigger isn’t science, this is wilful blindness,

This is how you gaslight a global metabolic catastrophe!😡

Wake up!!
#COVIDDiabetes #ScienceFail
https://t.co/R5gkb8OZf4

[Dr Elisa Perego @elisaperego78]

The concept of Long Covid covers a broad range of biological abnormalities not because it's "vague", as some erroneously claim. It does so because SARS-CoV-2 infection can affect the whole body from "head to toe". Multi-system pathology is an hallmark of the disease

[Taylor Lorenz @TaylorLorenz]

@WIRED This is an absolutely garbage article attempting to relaunder a bunch of pseudoscience. The fact that WIRED would publish something as ignorant as this is really disturbing.

[Salvatore Mattera @SalvMattera]

Know anyone who participated in this trial?

[Cat (CovidSolidarity) @CovidSolidarit1]

There are MILLIONS of people who could be saying and doing constructive things about the Covid pandemic, to reduce harms, but it's all left to a bunch of mostly disabled people on Twitter.

There are days where that imbalance really pisses me off.

[Dr Elisa Perego @elisaperego78]

Long Covid is not "baffling" at all. There are thousands of publications which show multi-system pathology across all body systems, including extensive evidence of organ damage. The scientific and clinical evidence is undeniable and should be reported about accurately

[Supporting Healthcare Heroes UK @SupportingHH_UK]

💙 Healthcare worker with #LongCovid and working (or planning a return to work)?

Join our evening peer support group on Thurs 4 June, 7pm.

This month: sharing experiences of reasonable adjustments at work.

🔗 Join here:
https://t.co/bdhnDsYUtR

[Dr Elisa Perego @elisaperego78]

"Many patients with long COVID are already receiving care but are not being recognized as having the condition. These patients are not absent from clinical care; they are absent from the diagnostic code that would identify them as long COVID patients"
https://t.co/aLJCOPlQt1

[Cheryl Josie @cheryl_josie]

@TogetherWeMask @quarecuttie @Bduff9 @MsJulieSLam @PosDevNYC @pubhealthaction @longcovidaragon @LCawarenessInt @CleanAirIE @COVID_Advocacy @COVIDAdvocacyNY @michael_hoerger @DrJudyStone I had cardiopulmonary collapse from acute asymptomatic in spring of 2020.

2022 I was just starting to feel okay and acute asymptomatic/collapse happened again.

2024 only partially recovered when acute symptomatic tested positive and gave me diabetes & hypertension.

Cumulative.

[MaskTogetherAmerica @TogetherWeMask]

“After a truly “mild” COVID infection in 2022, we had cardio-pulmonary symptoms persist for 6+ months…” Brian and Britt @bduff9 #MaskUp especially at the “Big 3”. They were interviewed by @MsJulieSLam at a @PosDevNYC event.
https://t.co/Dg4aYOLrt1
https://t.co/7CgEmE4uiQ
💗😷

[Harry Spoelstra @HarrySpoelstra]

Unraveling the cardiovascular burden of long COVID: symptom profiles, underlying mechanisms, and clinical management insights

🚨A peer-reviewed cardiac bombshell just AGAIN exposed the brutal reality of Long COVID HEART DAMAGE!

➡️This Chinees review synthesizes current evidence on the symptom profiles, underlying mechanisms, and clinical management of Long COVID-related cardiovascular complications.

➡️Symptom profile:
- Long COVID cardiovascular sequelae affect 10–20% of survivors, with persistent symptoms (≥2 months post-3-month mark) including palpitations (68%), chest pain (53%), fatigue (63%), and dyspnoea,
- POTS occurs in ~31% of cases,
- Functional deficits persist up to at least 12 months: 20% drop in 6-minute walk test distance, reduced cardiac index, stroke volume, and ejection fraction (18–29%).

➡️Structural findings:
- Cardiac MRI shows involvement in 78% and myocardial inflammation in 60%,
- Autopsies reveal myocarditis (14%) and macrophage infiltration (86%).

➡️Mechanisms:
→Multifactorial and overlapping:
- Viral persistence (spike protein detectable in 60% at 12 months),
- Chronic immune dysregulation (elevated IL-1/IL-6/IFN-γ/TNF-α),
- Endothelial dysfunction,
- Microvascular injury with microthrombi (80% in some autopsies),
- Hypercoagulability, and
- Autonomic dysregulation.

➡️Blood markers / biomarkers:
- Persistent spike protein is detectable in blood plasma (and tissues) in ~60% of Long COVID patients at 12 months, but absent in recovered controls. This further dismantles any vaccine-causation narrative,
- Inflammatory cytokines are elevated (IL-1, IL-16, IL-17, IL-22, IFN-γ, TNF-α), linked to endothelial dysfunction, platelet activation, hypercoagulability, and myocardial injury,
- Cardiac troponin is often elevated as a marker of ongoing ischemia/injury.

➡️Risk modifiers:
- Severe acute infection drives more structural damage,
- mild cases more autonomic/functional,
- Vaccination may cut risk: 30–50%,
- Delta-era cases worse than Omicron.

➡️Management:
→Currently symptom-driven:
- Graded rehabilitation,
- Lifestyle measures,
- Beta-blockers,
- Targeted anticoagulation,
→Multidisciplinary phenotyping recommended,
→No approved mechanism-specific therapies exist.

➡️Conclusions:
“Based on these findings, the following clinical recommendations are proposed:
(1) cardiovascular evaluation should be considered in patients with persistent post-COVID-19 symptoms, including autonomic function testing and imaging where indicated,
(2) management should be phenotype-driven and multidisciplinary, incorporating tailored exercise rehabilitation, pharmacological control of heart rate and symptoms, and anticoagulation only when thromboembolic disease is confirmed,
(3) vaccination should be encouraged as a preventive measure to reduce Long COVID risk; and
(4) future research should prioritize mechanism-based subtyping and randomized trials of targeted interventions.”

‼️So, AGAIN, Cardiovascular Long COVID is a real, heterogeneous, and enduring burden fuelled by unresolved viral–immune–vascular damage that current symptomatic care cannot fix. Without urgent, mechanism/phenotype-targeted treatments, millions will face chronic heart impairment for years to come!
PREVENTION NEEDS PRIORITY !
#AvoidSars2 #AvoidReinfections #CleanAir
https://t.co/OisgNHrgtR

[Long COVID Foundation @LongCFoundation]

It is about time:

SARS-CoV-2 3CL Protease Inhibitor Ensitrelvir approved in the United States! 💊

It’s nice to see this happening after we pushed the govt for some time to approve this drug.

More antivirals needed still. 🦠

#COVID #LongCOVID #pwLC #GiveUsMoreAntivirals

[Mike Hoerger, PhD MSCR MBA @michael_hoerger]

Happy #WorldMaskWeek! 💪😷

[Long COVID Foundation @LongCFoundation]

Boston Globe: 1 in 6 Americans who had COVID developed Long COVID

“… roughly 54 million Americans developed #LongCOVID.”

The research team was a little conservative in its calculations.

#pwLC #AntiviralsNow

[Bean & Sprout's Mom @beansprouts_mom]

Paper: Post-COVID-19 Onset of Allergic Conditions in a Propensity-Matched Cohort of Children and Adults

https://t.co/uVYzwVBKeb

[Bean & Sprout's Mom @beansprouts_mom]

COVID-19 ➡️ "...significantly increased hazard ratios for all six allergic conditions...asthma and rhinoconjunctivitis were significantly associated with infection. In children, all conditions except food allergies were significantly associated with infection."

[Association Action Covid Long @ActionCovidLong]

🌍😷WORLD MASK WEEK

Chaque masque raconte une histoire.

Pour certains, le Covid est un souvenir.

Pour d'autres, il a marqué le début du Covid long.

Derrière chaque masque, il y a une histoire que l'on ne voit pas toujours.

#ActionCovidLong
#WorldMaskWeek #CovidLong

[mark warling @markwarling3]

Long COVID Far More Common Than Records Show, and It's Getting Worse https://t.co/UlnFiW6xsK

[L., MA @leslieleeiii]

Please start taking COVID seriously before more people have to suffer and die.

[Barry Hunt @BarryHunt008]

I did the math

30% to 40% of REPORTED COVID cases in 🇨🇦 hospitals are HOSPITAL ACQUIRED

ACTUAL COVID cases are ~ 60% to 80% hospital acquired

5% to 10% of hospital acquired COVID patients DIE

So, in hospitals we need universal:

1. TESTS

2. N95s

3. UPPER AIR UV / FARUV