Lewis Brien

Head of Healthcare & Life Sciences, North America, Dept. for Business & Trade 🇬🇧🇺🇸 | Rare Disease Dad | Innovation & Discovery. Views my own. #GRIN2B 🦓

[Lewis Brien @LJBrien10]

RARE Is Not Rare.

People living with a #raredisease:
3.5 m in 🇬🇧
30 m in 🇺🇸
300 m+ 🌎

30% of children affected will not see their 5th birthday. There are over 10,000 rare diseases & many families are left without answers or treatment.

[National Organization for Rare Disorders (NORD) @RareDiseases]

The rarest day of the year is finally here: it's #RareDiseaseDay! 🦓

Tag us in your posts today as you #ShowYourStripes and check out our website to add to our "Faces of Rare" dedication wall, download social media graphics, and more: https://t.co/YDwja7Arjg🦓

[Effie Parks @OnceUponAGene]

Parents, if your child is showing signs of global developmental delay, seizures, hypotonia, spasticity, feeding difficulties, missed milestones, or microcephaly, don’t let the system waste your time.

Doctors often want to start with an MRI and delay genetic testing - but that approach can cost you valuable time, better treatment options and community.

Advocate for a Whole Exome Sequencing test first. Request the WES immediately, and while you’re waiting for the results, go ahead and schedule the MRI. The MRI is important, but it won’t give you the genetic answers you need to guide your child’s care and future treatments.

Request a WES - Nothing Less

[Lewis Brien @LJBrien10]

@OnceUponAGene O wow! What progress. Way to go Ford! HNY Effie

[UK Consulate Boston @UKinBoston]

Back by popular demand: Boston Biotech Brits Curry Night! Last night we were joined by Mayor of Liverpool Steve Rotheram @LCRMayor as we gathered at @LabCentral to promote UK-US innovation and collaboration in life sciences 🇬🇧🇺🇸 @LpoolCityRegion @biztradegovukNA

[Lewis Brien @LJBrien10]

@Jack_O_Meara Did you take the job?

[Lewis Brien @LJBrien10]

@FCDOPeterAbbott Congratulations Peter!

[Claudia Williams @claudiawilliams]

DC twitter - anyone got a great neurosurgeon to recommend? A dear friend’s niece needs one…

[Lewis Brien @LJBrien10]

@bradloncar One heck of a line up you have

[Peter Abbott OBE @FCDOPeterAbbott]

Great to meet a super delegation of UK #biotech and #lifesciences companies in #Boston this morning, visiting one of the world’s preeminent innovation ecosystems. Thank you @OneNucleus for hosting! 🇬🇧🇺🇸🧬

[Kirsten Chambers-Taylor @KirstenChambers]

Fantastic to welcome the first of 62 UK companies our team will help introduce to New England in Q2! @OneNucleus inaugural Boston Bootcamp delegation is here this week with CEO Tony Jones and Alicia Gailliez and will be at the @MassBio conference on Thursday! #lifesciences

[Lewis Brien @LJBrien10]

@daphnezohar @PeterKolchinsky Thanks for posting. I haven’t read an article that got me thinking so much in a long time. That is a very nice piece of work by @PeterKolchinsky

[Lewis Brien @LJBrien10]

@Unique_charity @cureSYNGAP1

[Lewis Brien @LJBrien10]

@Unique_charity @keithmcarthur @CureGrin @GRIN2Bsyndrome

[Lewis Brien @LJBrien10]

@Unique_charity @OnceUponAGene

[Lewis Brien @LJBrien10]

@Jack_O_Meara @BoehringerIN @jackcastle Wow, way to go @OchreBio . Congrats Jack.

[BioSTL @BioSTL]

BioSTL seeks a Senior Managing Director to oversee a portfolio of 70+ companies, including startups in the fields of healthcare, therapeutics, diagnostics, medical devices, food/nutrition and agtech. Learn more and apply. https://t.co/twfeu38viV

[Lewis Brien @LJBrien10]

@MaxJacobsCFA Good spot, thanks for sharing

[Lewis Brien @LJBrien10]

Opening in our Boston team. Interested in international trade & investment? Have you a background or passion for the healthcare & life sciences sector? If so, this could be for you.
#Hiring #lifesciences #healthcare #trade #investment

[UK Consulate Boston @UKinBoston]

📢 #jobalert 📢
We're #hiring in our Healthcare and Life Sciences team! https://t.co/wPK1fLHr36

[Lewis Brien @LJBrien10]

Missed this a few weeks ago but one to absolutely keep an eye on. Congrats @WobbleGenomics. Super exciting to see the progress on long-read sequencing.

Edinburgh RNA sequencing spinout raises £8.5m https://t.co/SgY8LD3qws via @uktnofficial

[Lewis Brien @LJBrien10]

@jefielding Totally agree. I think this is partly a symptom of the fact founders are often pitching to funds/buyers that are not the right fit.

[Lewis Brien @LJBrien10]

@edsuh Great post. Love the examples.