Laura Cassidy

Researcher| Project Manager | Cancer Screening | Maternal nutrition | Gestational Diabetes | Gestational weight gain | Public Health Agency

[Dr Tom Clonan @TomClonan]

PLEASE RT - Spinal Surgery - Spinal Review & Urology Interventions Denied to Most Complex, Sickest & Vulnerable #Disabled Children. Limb Reconstruction Also Curtailed -I’m Informed a 2 Year Old Child has had an Amputation. Let. That. Sink. In. IRELAND’s SHAME ⁦@CHI_Ireland⁩

[Access For All Ireland @AccessForAll7]

The headline doesn’t do the story justice!

What are the design flaws you say?

Consultant discovers that in the worlds most expensive hospital some of the consultant rooms have no wheelchair accessibility.

That’s right no access for children wheelchair users in a €2.2bn national children’s hospital.

Seriously!!!!!!! 😩

@DonnellyStephen @IrishWheelchair @HSELive

[Dr Tom Clonan @TomClonan]

This ☀️ BH Weekend - Think of Hundreds of #Disabled Irish Children -in Pain -On Waiting Lists for Complex Spinal Surgery & Urological Interventions ⁦@CHI_Ireland⁩ -It is an International Medical Scandal - Ireland’s Shame - Raise This With All Canvassers & #Vote Next Friday

[Dr Tom Clonan @TomClonan]

Today -Heart Pounding - Bringing my Disability (Rights) Miscellaneous Provisions Bill 2023 to Committee Stage in Seanad - I hope to Progress it to Report & Final Stages by Summer Recess. I will also Introduce an Independent Supports (Rights) Bill on Social Model of Care 2024 soon

[Dr Tom Clonan @TomClonan]

Pls Share & Support Councillor ⁦@DamianOFarrell⁩ & Amendments to ⁦@DubCityCouncil⁩ Transport Plan-Forced Thru In Direct Contravention of #UNCRPD & S69 Local Govt Act -Shameful Contempt of Close Consultation with #Disabled Persons Organisations -Ableist & Toxic to DPOs

[Dr Tom Clonan @TomClonan]

Ashamed & Embarrassed - to Outline Case of Carers in their 80s -Mum a Cancer Survivor, Dad on a Rollator - Forced to Lift Their 58 yo #Disabled Daughter in & out of Bed - Ireland’s Shame - We Demand Legal, Rights-Based Access to Supports - Support My Disability Rights Legislation

[Dr Tom Clonan @TomClonan]

👇 This! This is a great Moral Victory for #Disabled Citizens & Carers - Now Campaign to make Disability Allowance Universal Non Means Tested Payment ✊

[Dr Tom Clonan @TomClonan]

#Referendum ‘Care’ Article 42.B Not Rights Based. Gives Constitutional Expression to Patriarchal Ideology on Care as Exclusive Responsibility of Family -98% Unpaid Carers in Families are Women & Girls. ‘Strive’ is Legal Opt Out for @HSELive & Govt- VOTE NO https://t.co/uZAFeBj88e

[Dr Tom Clonan @TomClonan]

Make. No. Mistake. This is NOT a ‘YesEquality’ or ‘Repeal’ Moment. Article 42.B ‘Care’ Amendment Subordinates the Fundamental Human Rights of #Disabled Citizens outside of the Family. Disabled Rights are Human Rights - I’m Voting NO on Care Referendum

[Department of Health @healthdpt]

Northern Ireland’s Parliament Buildings is lit up pink tonight in support of International Rare Diseases Day.

1 in 17 people living in NI will be affected by a rare disease at some point in their lifetime.

#RareDiseaseDay2024

[Department of Health @healthdpt]

Health Minister Robin Swann has marked Rare Disease Day 2024

Individually rare but collectively quite common - you probably know someone who has a rare disease.

#RareDiseaseDay2024

[Belfast Trust @BelfastTrust]

Today we are celebrating Rare Disease Day
1 in 17 people living in Northern Ireland will be affected by a rare disease at some point in their lifetime
To find out more please email Dr Alison Muir, Rare Disease Clinical Lead in Northern Ireland [email protected]

[Gillian Sherratt @GillSherratt23]

You want us to ‘make care visible’? I don’t think @HSELive would appreciate that tbh.
I’ve been a carer 8 years, and myself and Stephen have not taken a break away together. The longest I’ve ever been separated from either Harvey or Lyla has involved hospital stays.
We applied for home care support back before Lyla was born, I was due a c-section and she was supposed to go straight to hospital for heart surgery so we asked for help to care for Harvey during that period. I was told I would be ‘lucky’ to get 2 hours a week, and they also asked why the Jack and Jill foundation couldn’t just give us more hours. HSE refused the hours ultimately, meaning Harvey spent 8 hours a day crawling on the floor because I couldn’t lift him.
We pay for private health insurance for Harvey and Lyla because Harvey hasn’t seen a public speech therapist in 4 years despite being non verbal, or an occupational therapist.
We are means tested to decide if we earn little enough to get any financial support despite being the only group on social welfare that save the state money.
We do all the work of stay at home parents while also being a nurse, a physio, an occupational therapist, a speech therapist, administer meds, monitor health conditions, sleep in chairs in hospital etc.

This government *does not* support us, and they never have. Show me exactly what part of the current constitution has prevented them from supporting us thus far.

#voteyesno #careref #familycarer @rodericogorman @greenparty_ie @CarersIreland @AccessForAll7 @TomClonan

[Dr Tom Clonan @TomClonan]

👇Ireland’s @HSELive Refuses Adequate Care for #Disabled Citizens. Govt’s #Referendum Article 42.B is Constitutional Expression of Paternalistic View that Care is Exclusive Responsibility of Family. Community & Autonomy for #Disabled Absent. Ratify #UNCRPD https://t.co/2uQHI1k9Qr

[Dr Tom Clonan @TomClonan]

Please Share This Far & Wide - Disabled Irish Children in Pain are Dying, Permanently Paralysed & Disfigured - For Lack of Timely Surgical Intervention - Please Share This - It is Emblematic of Ireland’s Shameful Treatment of Disabled - RATIFY #UNCRPD NOW https://t.co/15FlloKmiI

[Dr Tom Clonan @TomClonan]

Please Share This Far & Wide - Disabled Irish Children in Pain are Dying, Permanently Paralysed, Disfigured & Maimed - For Lack of Timely Surgical Intervention - Please Share This - It Beggars Belief & is Emblematic of Ireland’s Shameful Treatment of Disabled - RATIFY #UNCRPD NOW

[Dr Tom Clonan @TomClonan]

NO! Wording of Article 42.B Very Carefully Chosen to Define ‘Care’ & ‘Caring’ for #Disabled & Older Citizens as Primary Responsibility of Family Members -Vast Majority Unpaid Carers are Women. The ‘Care’ Amendment is Patriarchal Opt-Out for State & ⁦@HSELive⁩ RATIFY #UNCRPD

[Public Health Agency @publichealthni]

❗ IMPORTANT ❗

The cervical screening testing approach has changed in Northern Ireland making it more effective than ever.

Visit https://t.co/XMC2OFx12Z to find out more.

[Dr Tom Clonan @TomClonan]

👇 Please Watch Here -I asked An Taoiseach ⁦@LeoVaradkar⁩ - to Fully Ratify UN Convention on Rights of Persons with Disabilities #UNCRPD - Including All Protocols. It is in Programme for Govt & would be a Landmark Achievement for Ireland. #Disability Rights Are Human Rights