larnie living

just learning to live a new life with an incurable rare cancer ....

[larnie living @LarnieLiving]

Realised I never actually introduced myself, I’m allana, I’m 48 and live in the UK, in 2018 I was diagnosed with EHE Sarcoma, an extremely rare incurable cancer, basically 1 in 2.5 million. No one treatment works for any of us and to date I’ve had 7 bouts of radio, chemo...

[larnie living @LarnieLiving]

@PaolaRGSC Having exactly same happen, currently in hospice and have found friends I thought would be there through everything have disappeared but suddenly people I hardly knew check up on me daily, via text, video or just a DM, doesn’t make the old friends abandon any less hurtful tho

[larnie living @LarnieLiving]

@DyingWell_UK I have recently had it with mine and it included a marks and Spencer’s carrier bag, scissors to snip the corner of and the possible squatting around someone else’s memorial bench 😂 you just got to have a sense of tumour about these things

[larnie living @LarnieLiving]

@CancerMermaid @ThanksCancer A litre plus a couple of teas, but some days can look at the water bottle and know i e hardly done anything 😬

[larnie living @LarnieLiving]

@CancerWarriorLA Sounds like a plan, and allow yourself lenty of smiles ❤️

[larnie living @LarnieLiving]

@ZaneParker94 Large childlike man! ⚽️🙄

[larnie living @LarnieLiving]

@DyingWell_UK Thanks clair, had a bit of a panic when the lighting of candles was mentioned, I have more candles and incense burners in the room that anywhere else so think ill@have to put those away now 😬

[larnie living @LarnieLiving]

Just been initiated On protocol of “how to get an oxygen tank into your home in the uk” includes another visit from firefighters (done because of wheelchair) proof might leave my home in the next millennia to support request for portable oxygen,
Man I just wanna breaths again 😩

[larnie living @LarnieLiving]

@JB39832600 Thanks for that Jill, I’ll look into it xx

[larnie living @LarnieLiving]

@ElizAthertonSop Thank you Elizabeth 😊

[larnie living @LarnieLiving]

@VinnieReece It’s the noises it makes that freak me out, I imagine being stuck under the back to the future car with the doc hitting the side of the scanner with a huge screwdriver!!

[larnie living @LarnieLiving]

#rarecancer #sarcoma #SarcomaAwarenessMonth #oxygen #terminalcancer #hospicecare #pallativecare #cancer #cancerawareness #ehe #ehesarcoma #enoughnow #justbreath #justlive

[larnie living @LarnieLiving]

#sarcomaawarenessmonth #sarcoma #ehe #rarecancer #incurablecancer #pallativecare @ Skegness https://t.co/hhaZC8WTdw

[larnie living @LarnieLiving]

The Beginning.... The start of the crazy cancer tour. https://t.co/B8yC8Zt0v8 via @YouTube

[larnie living @LarnieLiving]

@LibbyMbc 😔❤️❤️❤️

[larnie living @LarnieLiving]

@VinnieReece Off for my target therapy so I’m going to adopt your #fuckcanceritsfriday tag 🙌🏻
You have a good weekend of rest 😴

[Sarcoma UK @Sarcoma_UK]

Call on your MPs to raise awareness of sarcoma and the issues affecting sarcoma patients - it's time to put some pressure on.

You voted for them; they work for you; it's time to tell them what you need.

https://t.co/7VFGTfy6BN

[larnie living @LarnieLiving]

@kkasonic Scream shout say any shit you want, then demand more because we are here for you, squeeze our hands till you hear tendons pop, then when the exhaustion sets in we are here to hug you through it 💕💕

[larnie living @LarnieLiving]

@GutsyLady54 Thank you Angela 🙏🏻

[larnie living @LarnieLiving]

Another night of pain, waking with morphine hangover and a knee I want to smash to pieces, looks like it may be day 2 of district nurse, a shot in the arm and no idea if it’s 11am or pm
#cordcompression #terminalcancer #groundhogday #ChronicPain

[larnie living @LarnieLiving]

True story … 😂

[K @aebsintthe]

yeah right 😂 @ThanksCancer