@DafoeWhitney I wish it wasn't this way for you, and for your family. You're such a cool person and really extraordinary, honestly. I take care of my sis with ME and I always wish her light was out shining more in the world🌟. I wish that for you and all others also living with ME. 💙
Our high risk family thanks @SenatorLankford‘s office for meeting yesterday to discuss the critical need for post-viral research funding, specifically ME/CFS, as an urgent #COVID19 response. @PlzSolveCFS#CongressFight4ME#SolveMECFS
Learn more at https://t.co/IIdGNK71bm
Our high risk family thanks @TomCottonAR’s office for meeting yesterday to discuss the critical need for post-viral research funding, specifically ME/CFS, as an urgent #COVID19 response. @PlzSolveCFS#CongressFight4ME#SolveMECFS#pwme
Learn more at https://t.co/IIdGNK71bm
Our high risk family thanks @JohnBoozman for meeting yesterday to discuss the critical need for post-viral research funding, specifically ME/CFS, as an urgent #COVID19 response. @PlzSolveCFS#CongressFight4ME#SolveMECFS#pwme
Learn more at https://t.co/IIdGNK71bm
Our high risk family thanks @rep_stevewomack’s office for meeting yesterday to discuss the critical need for post-viral research funding, specifically ME/CFS, as an urgent #COVID19 response. @PlzSolveCFS#CongressFight4ME#SolveMECFS
Learn more at https://t.co/IIdGNK71bm
Our high risk family thanks @RepMullin‘s office for meeting yesterday to discuss the critical need for post-viral research funding, specifically ME/CFS, as an urgent #COVID19 response. @PlzSolveCFS#CongressFight4ME#SolveMECFS#pwme
Learn more at https://t.co/IIdGNK71bm
Our high risk family thanks @RepKendraHorn’s office for meeting yesterday to discuss the critical need for post-viral research funding, specifically ME/CFS, as an urgent #COVID19 response. https://t.co/IIdGNK71bm @PlzSolveCFS#CongressFight4ME#SolveMECFS#pwme
Congress needs to lead the fight against myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS). Support and fund NIH research into new neuroimmune related #COVID19 challenges #CongressFight4ME#SolveMECFS
Solve M.E. is calling for immediate response measures for ME/CFS in the next COVID-19 response package.
Check out the Solve M.E. Call in Action Kits and Make Your Voice Heard Today!
https://t.co/ogmRxhKBSw
Solve M.E. advocates implore Congress to support COVID-19 post-viral research. Hundreds to Participate in Virtual Takeover of Capitol Hill. https://t.co/JT32YYDJpO #MECFS
#MillionsMissing, a day of actions for health equality for people w/ #MyalgicEncephalomyelitis , is on #MothersDay this year. We want to celebrate the amazing mothers in our community that fight for a better world each day. Will you stand in solidarity with us? #HappyMothersDay
Today, May 12th is International ME Awareness Day. For this disease to receive more visibility, funding and education people need to care and fight together!! Stand up, stand together and BE THE CHANGE, learn more, visit @MEActNet@PlzSolveCFS#MilionsMissing
Disability allies: it's #MillionsMissing, a global week of action for #MECFS. More than 70 events on four continents! Please check out the hashtag, RT in solidarity, or come join us at a city near you. @MEActNet
@Rivkatweets Thank you for this post Rivka! I'm the woman that came to meet you right after you asked this question at the NIH because my sister suffers these episodes too. Thank you again and I do hope these start getting better for you!! ❤