Landon’s League Foundation

Our mission is to support the R&D of gene therapies for rare genetic diseases & help those affected by granting adaptive equipment to help them & their families

[Landon’s League Foundation @LeagueLandon]

The 4th Annual "Land-On The Green Golf Tournament is just 4 weeks away! Only 8 teams remain available. Register your team today!
⛳ Landon’s League Golf Tournament ⛳ - https://t.co/RKh2V4rfQu

[Landon’s League Foundation @LeagueLandon]

2024 Golf Tournament https://t.co/c3o2N0JD5Q

Registration is now open! Four-person scramble format.
Sign-up your team today!

[Tom Wright @TWright_GenomeX]

@JamesFasham @AJHGNews @KhalafNazzal @kinskeep14 @StottmannLab @WUSTL @LupskiLab @LeagueLandon @BCMFromtheLabs @lorenpena9 @UofE_Research @RDExeter Thank you Emma Baple @RDExeter for your @mft_iMRare #MDC23 presentation on CAMSAP1-related neuronal migration disorder. An amazing story demonstrating the motivation, dedication, and importance of patient and family organisations in #RareCondition research @LeagueLandon

[WashU Med Taylor Family Department of Neurosurgery @WashUNeurosurg]

Hong Chen, PhD (@ChenUltrasound) from our #Neurotechnology Division has received funding to study how genetic engineering delivered with #ultrasound can treat brain disorders. Learn more.:https://t.co/OPLL5Htdgz @WashUengineers @NINDSnews

[Landon’s League Foundation @LeagueLandon]

@JamesFasham @ExeterMed Congratulations and best of luck on your future endeavors! Thank you for all the hard work you put into our CAMSAP1 manuscript!

[Landon’s League Foundation @LeagueLandon]

3rd Annual Landon's League Golf Tournament - https://t.co/K8YTmk9PkN

[Landon’s League Foundation @LeagueLandon]

3rd Annual Landon's League Golf Tournament - https://t.co/XN6bj0Inng

[Landon’s League Foundation @LeagueLandon]

Attention St. Louis area golfers…Register your team today! #StLouis #charity #findacure #camsap1 #raredisease

[Landon’s League Foundation @LeagueLandon]

Check out our story that aired earlier today on KSDK!

"Father discovers new disease gene, sets out on a cure for his son" https://t.co/OZ7mJapGet via @ksdknews

[Landon’s League Foundation @LeagueLandon]

Tune in to @ShowMeStLouis tomorrow at 10AM as @LeagueLandon will be featured! #CAMSAP1 #RareDisease #genetics

[Landon’s League Foundation @LeagueLandon]

@StottmannLab Congratulations, well deserved!!!

[Landon’s League Foundation @LeagueLandon]

3rd Annual Landon's League Golf Tournament - https://t.co/K7xIu2Xe2b

[Landon’s League Foundation @LeagueLandon]

Join us for our 3rd Annual "LAND-ON THE GREEN" Golf Tournament!

[WashU Med Taylor Family Department of Neurosurgery @WashUNeurosurg]

Neurosurgery Physician Asst. Joe Walsh is working with scientists locally & globally to drive research about the gene CAMPSAP1, which is the cause of his son Landon's condition.: https://t.co/63F6ktllEE
@LeagueLandon @UniofExeter @WashUNeurology @WashURadOnc @WashUGenetics

[James Fasham @JamesFasham]

Dear Joe, it was my absolute privilege to have worked with your amazing family ♥️ @LeagueLandon

#RareDisease #Genetics #Genomics

@RDExeter @StottmannLab @gw4_cat @KhalafNazzal @kinskeep14

[Landon’s League Foundation @LeagueLandon]

@JamesFasham @RDExeter @StottmannLab @gw4_cat @KhalafNazzal @kinskeep14 @JamesFasham @RDExeter @StottmannLab @gw4_cat @KhalafNazzal @kinskeep14 Words aren’t enough re: our gratitude for everyone’s effort to confirm our suspicion, ultimately recognizing CAMSAP1 as a disease gene! We look forward to collaborating towards treatment development!

[Landon’s League Foundation @LeagueLandon]

2023 Golf Tournament Registration https://t.co/hQ8GUpu7nP

[Landon’s League Foundation @LeagueLandon]

@JamesFasham Congratulations!!!

[Landon’s League Foundation @LeagueLandon]

@WashUNeurosurg @AJHGNews @WashUGenetics @WashUNeurology @WashUBME Thank you very much!

[WashU Med Taylor Family Department of Neurosurgery @WashUNeurosurg]

Congrats to our physician assistant Joe Walsh & colleagues for their latest publication in @AJHGNEWS. The findings: Bi-allelic CAMSAP1 variants cause a recognizable neuronal migration disorder. https://t.co/xOViPX71oS @WashUGenetics @WashUNeurology
@WashUBME @LeagueLandon