Lena Ismail

[Lena Ismail @LenaJIsmail]

@SecBlinken Those poor children. #bloodyblinken

[Quds News Network @QudsNen]

The Palestinian victim in the shocking footage has been identified as Atta Ibrahim Al-Muqaid, aged 73, who is deaf.

[Lena Ismail @LenaJIsmail]

@EspenBarthEide @UNRWA Thank you for doing the right thing

[CIJ_ICJ @CIJ_ICJ]

REMINDER: the public hearings on the request for the indication of provisional measures submitted by South Africa in the case #SouthAfrica v. #Israel will open tomorrow, Thursday 11 January 2024, at 10 a.m. (The Hague). Watch it live on @UNWebTV at https://t.co/NJ3WBLIC1h

[Lena Ismail @LenaJIsmail]

@FightingTheRare We can't wait to see the film. Thank you for sharing our stories.

[Fighting the Rare @FightingTheRare]

The trailer of #fightingtherare is now available at https://t.co/G4XS6FLiOu

#lluitantenminoria #RareDiseases #RareDisease #fightlafora

[RARE Revolution Magazine® @RareRevolutionM]

"#LaforaDisease is a neurodegenerative #RareDisease affecting children. Symptoms onset around puberty & include #Epilepsy, #ChildhoodDementia & difficulty talking/walking/eating. It's genetic & currently terminal. But we have #Hope for a cure! 💜#RareDiseaseDay @Chelseashopela1"

[Lena Ismail @LenaJIsmail]

@VibeBio Depending on disease type, umbrella orgs like @CureEpilepsy @EpilepsyFdn have grants and connect orgs to grants.

[Lena Ismail @LenaJIsmail]

@aloktayi @Chelseashopela1 @aloktayi you’re the best! Thank for your support!

[Alok Tayi @aloktayi]

ill match the next $100 donated to @Chelseashopela1...

[Lena Ismail @LenaJIsmail]

@VibeBio Happy birthday @VibeBio! So glad you were born :)

[Lena Ismail @LenaJIsmail]

@Chelseashopela1 Looking forward it!!! #7LDSymposium

#LaforaDiseaseScienceSymposium22 #Laforadisease #raredisease #patients #patientcommunity #ChelseasHope #ChelseasHopeForACure #sciencesymposium #laforaepilepsycureinitiative

[Chelsea's Hope Lafora Children Research Fund @Chelseashopela1]

We’re excited to get started soon! Thank you to our amazing volunteers.

Tag your photos #7LDSymposium

#LaforaDiseaseScienceSymposium22 #Laforadisease #raredisease #patients #patientcommunity #ChelseasHope #ChelseasHopeForACure #sciencesymposium #laforaepilepsycureinitiative

[Chelsea's Hope Lafora Children Research Fund @Chelseashopela1]

A perfect explanation of what kids experience and where we are at with finding a cure. Thank you @LenaJIsmail for explaining it so well with @vibe_bio

[biohub @biohub]

#RareAsOne grantees, clinicians and researchers participated in breakout sessions on diagnostic approaches in #RareDisease, explored challenges, and shared possible solutions and opportunities for collaboration 🤝

[Lena Ismail @LenaJIsmail]

We #LightUpForRare! Thanks to @cziscience for the ��and being champions of rare disease patients #LaforaDisease @Chelseashopela1

[Lena Ismail @LenaJIsmail]

@cziscience Thank you for highlighting our work, organization, and amazing patient community!

[biohub @biohub]

“After receiving my niece's diagnosis, I channeled my nervous energy into this work.”

Patient-advocate Lena Ismail joined Chelsea’s Hope to raise awareness and accelerate research for the #RareDisease Lafora to help her niece and other kids
#RareAsOne

[Lena Ismail @LenaJIsmail]

@ionispharma @BPMonia Excited to hear more about your Lafora Disease program! Will be listening with @Chelseashopela1

[biohub @biohub]

"At the #RareAsOne Network virtual community meeting, we are bringing together a ‘network of networks’ to strengthen relationships within the rare disease community and support the sharing of learnings.” -@heidibp, #RareAsOne Program Manager