Drea Perez

[Drea Perez @LilDPinAZ]

@23andMe Me. But it’s only good dark chocolate, like mid to high quality. The cheap tiff doesn’t give me this reaction but the mid/good stuff does very single time, almost instantly.

[Drea Perez @LilDPinAZ]

@LalDennis @AlinaIvaniuk @a_brunklaus NPRL2 family. We need a cure. 💜

[Drea Perez @LilDPinAZ]

Every time. Like, why!?

[Drea Perez @LilDPinAZ]

@LalDennis @SLhatoo If you have ANYTHING that might help, please reach out. We have failed so many meds. NPRL2 family, Arizona I cannot get my girls’ Epilepsy under control. She deserves the best from this world. 💜

[Drea Perez @LilDPinAZ]

@LalDennis @DEE_Pconnection @AmEpilepsySoc @yesILAE @TENofficial @RareEpilepsy @CureEpilepsy @SCN8AAlliance @FamilieSCN2A @CureGrin @SLC6A1_Connect NPRL2 family here. 3 affected in Arizona. 💜

[Drea Perez @LilDPinAZ]

@KailaniMcgovern @mich3113sdiary You know it!

[Drea Perez @LilDPinAZ]

@halsey What a tacky comment for those who deal with this condition. Feel blessed that you don’t have to deal with this regularly. How gross

[Drea Perez @LilDPinAZ]

@BrainAblaze Took us 16 years to find out but yes. NPRL2

[Drea Perez @LilDPinAZ]

@alisonkukla XCOPRI is tough. We were on XCOPRI, Oxcarbazepine and Lamotrigone. Weaned Lamotrigne, going back to EMU to start back at zero bc we want off XCOPRI but are running out of med options. 18yo F. NPRL2 epilepsy disorder

[Drea Perez @LilDPinAZ]

@BrainAblaze 78K Medevac

[Drea Perez @LilDPinAZ]

@BrainAblaze Yes. After waiting 16 years for an answer, NPRL2 diagnosis. Diagnosis isn’t helping treatment. We need a cure 💜😔

[Drea Perez @LilDPinAZ]

@kellroark @AmEpilepsySoc DM sent

[Drea Perez @LilDPinAZ]

@kellroark @AmEpilepsySoc I would very much be willing to. How can I contact them? Thank you

[Drea Perez @LilDPinAZ]

@SpencerGuard 💜💜💜💜

[Drea Perez @LilDPinAZ]

@TheNotoriousEEG Should totally do a fundraiser for us to put up our epilepsy warriors with a donation and provide us a picture 💜 I love this

[Drea Perez @LilDPinAZ]

@Ryanair @KailaniMcgovern

[Drea Perez @LilDPinAZ]

@KailaniMcgovern @BrainAblaze I love you 💜

[Drea Perez @LilDPinAZ]

@lisasophiaa It is. And I never matters to anyone, until it matters to them. Hugs 💜

[Drea Perez @LilDPinAZ]

@BrainAblaze @WHO NPRL2. Took 16 years to figure it out. Still nothing helps.