@BayouMystere@MEAssociation@MECFSNews@MEResearchUK Hi, thanks for the response. I didn't hear from anyone else, but I have since found out the oxalate thing is genetic- so not much can be done about that. ME/CFS is completely separate apparently ๐
@MEAssociation@MECFSNews@MEResearchUK I have recently discovered I am an endogenous oxalate producer which could account for my ME/CFS symptoms any #pwME out their heard of this, is there any research?(!) can this be reversed?
Two #WeCNs tweetchats next week:
Tuesday https://t.co/1to3s5B7FD Advance Practice in Community
Thursday https://t.co/h5TSRPU08p Learning environment in care homes, for Care Home Week.
We hope you can share, pop them in your diary, and enjoy sharing your passions for both!
According to @SteveGutzler, we're typically able to manage our people relationships & complete tasks 83% of the time. It's the 17% moments (our response to adversity, failure, criticism, change, stress, pressure etc) that define our leadership capability: https://t.co/8EH0crNMKs
@moirahill67 Hi @moirahill67 I've just finished my PhD on end of life care in nursing and residential homes, I am happy to chat and you can find my thesis here: https://t.co/BLRLZ6mCRY
Our next OHF On The Road webinar happens in TWO DAYS! Don't miss "Harnessing the Power to Make a Difference"!
Just CLICK to register!
https://t.co/BCHoMrASGI
Thursday, March 3 from 12-1pm EST.
#OHF#Hyperoxaluria#PrimaryHyperoxaluria
Join Maya Doyle, MSW, PhD, LCSW-R, associate professor and licensed clinical social worker, and Kristi Ouimet a parent of two with #PrimaryHyperoxaluria, as they lead a discussion surrounding the importance of self-care and emotional wellness.
https://t.co/qEUa5lM73x
Your participation in the OHF's survey on genetic testing, newborn screening, and prenatal genetic testing is invaluable and will inform the OHF's work!
The survey can be found at: https://t.co/t46zILQkjD
#OHF#Hyperoxaluria#PrimaryHyperoxaluria#GeneticTesting#RareDisease
Today marks the first day of Rare Disease Awareness Month!
Join us this month in raising awareness for the 300 million people living with a rare disease all around the world!
โก๏ธFind out how you can get involved: https://t.co/Tx68pdZRFb
Today is the day! #GivingTuesday2021!
Your #GivingTuesday donation will be matched to bring twice the hope and healing!
"A wise person once said... We make a living by what we get, but we make a life by what we GIVE!โ
https://t.co/AtK7Wj8itl
#OHF#Hyperoxaluria#Raredisease
Today I had a hospital appointment unrelated to my ME. The doctor uttered 3 words. I. Believe. You. I burst into tears. After years of being disbelieved, mocked, and turned away this man actually believed me. He looked at me like I was crazy when I began crying and said 1
@Traceyr411@KSchnickelfritz GET is graded exercise therapy. Any kind of physical or cognitive exercise makes ME worse, often permanently. There are studies out there that prove this but unfortunately ME continues to be underfunded for research and treatment options. ๐
@JustMissEmma Hi Emma, you donโt know me but I am praying for you, please donโt give up- you can fight this. God bless you and your family ๐๐