Emma Russell 💙

Adult RN, working in pre-reg education, wife, mother of girls, touched by physical and mental chronic illness, eternal optimist, educator, learner...

[Emma Russell 💙 @Little_Yehudit]

@BayouMystere @MEAssociation @MECFSNews @MEResearchUK Hi, thanks for the response. I didn't hear from anyone else, but I have since found out the oxalate thing is genetic- so not much can be done about that. ME/CFS is completely separate apparently 🙄

[Emma Russell 💙 @Little_Yehudit]

@MEAssociation @MECFSNews @MEResearchUK I have recently discovered I am an endogenous oxalate producer which could account for my ME/CFS symptoms any #pwME out their heard of this, is there any research?(!) can this be reversed?

[Oxalosis & Hyperoxaluria Foundation @OHFTweet]

#PrimaryHyperoxaluria (#PH) is inherited in an autosomal recessive pattern. Click to learn more!!

https://t.co/D317vEcG2R

#OHF #Hyperoxaluria #RareDisease #KidneyStones #Oxalosis

[WeCommNurses 💙 @WeCommNurses]

Two #WeCNs tweetchats next week:

Tuesday https://t.co/1to3s5B7FD Advance Practice in Community

Thursday https://t.co/h5TSRPU08p Learning environment in care homes, for Care Home Week.

We hope you can share, pop them in your diary, and enjoy sharing your passions for both!

[Helen Bevan @HelenBevan]

According to @SteveGutzler, we're typically able to manage our people relationships & complete tasks 83% of the time. It's the 17% moments (our response to adversity, failure, criticism, change, stress, pressure etc) that define our leadership capability: https://t.co/8EH0crNMKs

[Diana Teggi @DianaTeggi_]

@moirahill67 Hi @moirahill67 I've just finished my PhD on end of life care in nursing and residential homes, I am happy to chat and you can find my thesis here: https://t.co/BLRLZ6mCRY

[Emma Russell 💙 @Little_Yehudit]

@AldiUK Nori please, when we make sushi, we have to shop elsewhere 😞

[Emma Russell 💙 @Little_Yehudit]

#LOVEISBLINDreunion #LoveIsBlind me waiting for Shake's 'love is blurry' spin off

[AJKD @AJKDonline]

End Points for Clinical Trials in Hyperoxaluria: Case Study of Patient-Focused Drug Development in a Rare Disease

https://t.co/MpQ8YsSJyU (FREE)

@lieske_john @MeaghanMalley @MelissaW_ASN @MayoClinicNeph @KidneyHealthIn @ASNKidney @OHFTweet

[Oxalosis & Hyperoxaluria Foundation @OHFTweet]

Our next OHF On The Road webinar happens in TWO DAYS! Don't miss "Harnessing the Power to Make a Difference"!

Just CLICK to register!

https://t.co/BCHoMrASGI

Thursday, March 3 from 12-1pm EST.

#OHF #Hyperoxaluria #PrimaryHyperoxaluria

[Emma Russell 💙 @Little_Yehudit]

#ohf #primaryhyperoxaluria #shareyourrare #rarediseaseday2022 Virtual Gallery https://t.co/VXhkpeDHg3 #RareDC2022

[Oxalosis & Hyperoxaluria Foundation @OHFTweet]

Join Maya Doyle, MSW, PhD, LCSW-R, associate professor and licensed clinical social worker, and Kristi Ouimet a parent of two with #PrimaryHyperoxaluria, as they lead a discussion surrounding the importance of self-care and emotional wellness.

https://t.co/qEUa5lM73x

[Oxalosis & Hyperoxaluria Foundation @OHFTweet]

Your participation in the OHF's survey on genetic testing, newborn screening, and prenatal genetic testing is invaluable and will inform the OHF's work!

The survey can be found at: https://t.co/t46zILQkjD

#OHF #Hyperoxaluria #PrimaryHyperoxaluria #GeneticTesting #RareDisease

[Rare Disease Day @rarediseaseday]

Today marks the first day of Rare Disease Awareness Month!

Join us this month in raising awareness for the 300 million people living with a rare disease all around the world!

➡️Find out how you can get involved: https://t.co/Tx68pdZRFb

[Emma Russell 💙 @Little_Yehudit]

@Nurse_JSW @PCRSUK @rcgp @NurseinPractice @unibirmingham Well done Jane!

[Oxalosis & Hyperoxaluria Foundation @OHFTweet]

Today is the day! #GivingTuesday2021!
Your #GivingTuesday donation will be matched to bring twice the hope and healing!

"A wise person once said... We make a living by what we get, but we make a life by what we GIVE!”

https://t.co/AtK7Wj8itl

#OHF #Hyperoxaluria #Raredisease

[Emma Russell 💙 @Little_Yehudit]

This 💚 I never realised how important it is to be believed until I had ME/CFS

[DealWithM.E. @me_dealwithme]

Today I had a hospital appointment unrelated to my ME. The doctor uttered 3 words. I. Believe. You. I burst into tears. After years of being disbelieved, mocked, and turned away this man actually believed me. He looked at me like I was crazy when I began crying and said 1

[Emma Russell 💙 @Little_Yehudit]

@Traceyr411 @KSchnickelfritz GET is graded exercise therapy. Any kind of physical or cognitive exercise makes ME worse, often permanently. There are studies out there that prove this but unfortunately ME continues to be underfunded for research and treatment options. 💔

[Emma Russell 💙 @Little_Yehudit]

This 👇🏻💔

[postersandme @postersandme]

@KSchnickelfritz

[Emma Russell 💙 @Little_Yehudit]

@JustMissEmma Hi Emma, you don’t know me but I am praying for you, please don’t give up- you can fight this. God bless you and your family 💚💚