Long & Tired Road #FBLC

Trying to find a way out of the LC haze, hopefully with a little help #FBLC

[Long & Tired Road #FBLC @LongTiredRoad]

Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. - Sign the Petition! https://t.co/YMLZaGBegF via @UKChange

[Long & Tired Road #FBLC @LongTiredRoad]

@cfs_jo Oh my goodness, sorry you had to go through all that. How hard can it be to pass that message on? I hope the payback isn't too awful for you x

[Long & Tired Road #FBLC @LongTiredRoad]

@cfs_jo

[Long & Tired Road #FBLC @LongTiredRoad]

@j_b_kennedy @MelanieWeckert I'm guessing that older men still have a lot more testosterone than women maybe?

[Long & Tired Road #FBLC @LongTiredRoad]

@FAmused @JoshWalkos I like instructions, but I'm a very fast reader so usually can scan them quickly and then get to work.

[Long & Tired Road #FBLC @LongTiredRoad]

@FAmused @JoshWalkos I've never experienced the alternative so I'm not sure. I'd love to be able to visualise my loved ones, and I think it's also made my autobiographical memory worse than most peoples. But I do have a quick mind for understanding how things work, so maybe that's a benefit.

[Long & Tired Road #FBLC @LongTiredRoad]

@FAmused @JoshWalkos That's a really good description, I think I experience similar. I can just kind of 'feel' it, but it's almost like a physical sensation.

[Long & Tired Road #FBLC @LongTiredRoad]

@Z3R0Gravitas @TanteRos @Naomi_D_Harvey I totally gave up with anything that involves visualisation once I realised I had aphantasia. It was a relief to stop trying at the end of yoga sessions 🤣 I love reading though, but usually just skip overly descriptive passages.

[Long & Tired Road #FBLC @LongTiredRoad]

@Naomi_D_Harvey I definitely have a very over active inner monologue though 🤣

[Long & Tired Road #FBLC @LongTiredRoad]

@Naomi_D_Harvey I am exactly the same. The only time I ever see anything is right on the edge of falling asleep or when I'm dreaming. I can't picture the faces of even my own kids, even though I 'know' what they look like.

[Long & Tired Road #FBLC @LongTiredRoad]

@j_b_kennedy Neuroscientists gonna 'neuroscience' 🤷

[Long & Tired Road #FBLC @LongTiredRoad]

@KSchnickelfritz @BBCBreakfast 🤣🤣🤣 excellent 👌

[Long & Tired Road #FBLC @LongTiredRoad]

@Lisahistoryhou1 @CounsellingSam Below Deck Sailing Yacht! ⛵🌊⛵

[Long & Tired Road #FBLC @LongTiredRoad]

@KSchnickelfritz 🤣🤣🤣

[Long & Tired Road #FBLC @LongTiredRoad]

@KSchnickelfritz I once woke up crying with laughter, convinced I'd come up with an idea for the world's funniest sitcom. I made a note of it on my phone. When I looked in the morning it read 'Curly Watts, Paul McCartney bringing the Hula Hoops later' 🤣🤣

[Long & Tired Road #FBLC @LongTiredRoad]

#LongCovid #pwme who take Magnesium, can you recommend the brand/amount you take? I've been using generic supermarket ones. Ran out recently which has shown me how much I really benefit. Just wondering if I can benefit even more from a better brand/type. Thanks 🙏

[Long & Tired Road #FBLC @LongTiredRoad]

@drclairetaylor @DaviesLunt @CounsellingSam @HelenMMGoss @NHSGrampian @SammieFMc @PeteUK7 @long_covid @zalaly @rubyslippahs @Fionasstalker @_CatintheHat @ChrisCuomo @joaquinlife Unbelievable that these doctors have nothing better to do with their time than write nasty letters to one of their own who is actually DOING something to help patients. If they don't want to, fine, but what is their motivation to criticise someone who does?

[Long & Tired Road #FBLC @LongTiredRoad]

@cfs_jo @Paula_JKnight It's horrible, that feeling of possible impending doom.

[Long & Tired Road #FBLC @LongTiredRoad]

@cfs_jo 😫

[Long & Tired Road #FBLC @LongTiredRoad]

@patrickG731 Just the usual, rest and pace was the foundation. Then Nattokinase and in my case HRT. Treating pots with fluid/compression eased adrenaline surges. I know it's controversial but I also benefitted from Sertraline, which is also a platelet inhibitor so helped coagulation too.