Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿

Blogger living with ME/CFS since 2005. was in university management, before that a scientist. Now mostly housebound. ♿

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@Peculiar @peculiars <3

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@Peculiar that last line is brilliant work.
https://t.co/L2tIeFYPDO

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@NeleHelena 4/ ... still grieving and still working it out.
Of the people i know with this condition, I'm probably managing it best, but it's not easy. I'm not the person i was, the person i wanted to be, and not the person people imagine I am.
I miss living.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@NeleHelena 2/ when i finally stopped fighting and admitted to myself that i couldn't beat this thing, I was able begin grieving. I found support groups, read up on research, kept notes myself on my symptoms and discovered things about managing it that i should have been told on day 1 ...

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@NeleHelena 3/ i spent another 2 years of trying to negotiate with it. Finally, i accepted that there's no compromise. My old lives are gone. I gave up on working every again. I cleared out my office attire. I began grieving properly. I've been sick for 19 years and 6 weeks. I'm still ...

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

I'm particularly missing @Peculiar today. I want to hear his take on the silliness happening on the streets this week.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@StephanieRiou Same. Maybe it's a case of how difficult we look with and without full makeup? But to me it doe's look like Kate at all

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

https://t.co/fhwDqGAkRr
New #blog, about managing my #MECFS through #rest. It discusses #usefultime, which is an alternative approach to #spoontheory for describing #chronicillness management that might make more sense to some people.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

https://t.co/9jzN0hmpV5
My energy is an extremely limited resource, so more valuable than most people recognise. I will no longer we giving it away to people who don't appreciate it's value.
#mecfs #longcovid #selfishness #Chronicillness #cfs #spoonies

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@RobDexES @Peculiar I just woke up, saw the lotification and read the article.
I haven't even managed to sit up yet and I'm crying. That was so beautiful and heart breaking, Pete.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@amygregson @Peculiar Same. I woke up to the notification and was so confused. Then I was sad. :-(

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@robjlloyd @Peculiar Same. I've been missing it enough that I had to go back and reread a few posts.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@Peculiar I just read some preview pages on https://t.co/PFlzo4LcJH and loving every word (gotta wait to get paid before I can buy it, then wait for shipping to NZ. It'll be ageeees).
I've been missing him so much lately. My heart still breaks for you, Pete.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

New Post explaining #PEM
in #MECFS. Many with #LongCovid (aka it's ME/CFS) may recognise this too. PEM is unique to ME/CFS, although it's often very misunderstood.
https://t.co/hweqw3P62Y

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

Why bother

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@Freddieart
My brain finally caught up with our conversation and I remembered I'd written this a few weeks back: https://t.co/kBI04HiL5P
I think it's playing in the same ballpark.
Ontological insecurity is hard to articulate.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

@MamaSitaa__ Lab technician, singer. I reworked my life to fit my illness, i was a gym bunny, part time academic, entrepreneur, and university middle manager... it took that next.

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

https://t.co/36QHyiRBSS
Why do chronically I'll people seem to make their illness their whole identity? Here's my take.
#MECFS #chronicillness #LongCovid #identity #Disability

[Anna-Maria loremipsumlife 🖌🦋♿✒🇳🇿 @Loremipsumlife]

Who am I now? Losing your identity to chronic illness https://t.co/36QHyiR43k