Lowri Smith

Patient speaker, Writer for @BJCardNursing & Public Governor @alderhey, Amateur photographer, @OpenUniversity Graduate, CHD patient , blogger & advocate.

[Lowri Smith @LowriSmith88]

Fabulous day at @SeneddCymru today showcasing our 'Patient Passport App ' . Great to meet @Eluned_Morgan
@BevanCommission @HelenhowsonBC @TomHowson7 & @IloraFinlay .

#patientsafety
#innovation #congenitalheartdisease #patientexperience @TransformBetsi
@csubbe @scienap

[🏥 Alder Hey 💙 @AlderHey]

Parents in Liverpool, Knowsley, Sefton, or St Helens can help prevent further spreading of #measles in the region by taking advantage of summer ‘catch up’ immunisation clinics for children and young people.

Find out more: https://t.co/RkEuFgzFya

[Claire 💙 @clairebubblepop]

I’m SICK of saying it, but I’ll say it again. Asylum seekers can’t claim benefits. You need an NI number to do that. Asylum seekers aren’t staying in 5* hotels. Asylum seekers get £49.18p a week to live on. Could YOU live on that? NOPE. So stop pretending they’re living it large.

[ESC WG on ACHD Chairperson @WGACHDChair]

🚨 Pregnant women with mechanical heart valves face higher risks of complications than those with biological valves. LMWH linked to ↑ thromboembolic events. @escardio @ehj_ed
📖Full study in European Heart Journal: https://t.co/ecHdqNaouU #MaternalHealth #HeartValve #ESC #ROPAC

[The Heart Centre @AlderHey 💙 @HeartCentreAld1]

Congratulations on another successful sonographer training day 🤰💕 @LiverpoolWomens delivered by Dr Lim and team. Driving up prenatal #CHD 🫀detection in the NW, thanks to all who came and participated 👏

[Lowri Smith @LowriSmith88]

@clare_angela_ Where in London is this please?

[Lowri Smith @LowriSmith88]

Fantastic service from @PassAssistance last week for my trip from Chester-Glasgow & back . It worked perfectly for every part of the journey. Thank you Fran, Eddy, Marissa and Matt. Took the stress out of the journey completely.

[BCCA @bcca_uk]

Excited to share the programme for this years conference at RCP, London on Nov 3rd and 4th. Fantastic international faculty, registration links below ⬇️

[Lowri Smith @LowriSmith88]

Llongyfarchiadau Nia . 🎉🎉

[🏥 Alder Hey 💙 @AlderHey]

#MotivationMonday | Celebrating Nia’s 50 Years in Nursing 🎉

Today, we celebrate Senior Nurse Nia, who recently marked an incredible 50 years in the #NHS As part of her training, which started in 1975, Nia was mainly based at Alder Hey and worked on almost every ward here!

[NWCHDNetwork @NwchdN]

It’s a wrap! Finished filming final video supporting families and children with🫀conditions
➡️ what support is available & how to access it
➡️ how to use play
➡️ how to talk to your child about their heart problem
Can’t wait to share them @HeartCentreAld1

[🏥 Alder Hey 💙 @AlderHey]

This month is #NationalSmileMonth 😁 and The All Together Smiling roadshow will be coming to Cheshire & Merseyside between Wednesday 21st May and Wednesday 4th June. You can find specific dates and times below 👇

More info: https://t.co/3okYATU8BE

#SmileMonth #FeedYourSmile

[Lowri Smith @LowriSmith88]

Recommendations for places to eat in Glasgow please? Festival Gate area. Will be visiting in a couple of weeks. Thanks in advance. @VisitGlasgowSCO @Glasgow_Live @Glasgow_Times #Glasgow

[Jemma Blake @JemBlakeX]

The Little Hearts at Home team was honoured to be invited to speak at the North West Congenital Heart Network’s first webinar! 🙌🏻

[Lowri Smith @LowriSmith88]

I have been an inpatient here at @LHCHFT for just over two weeks now. I try to leave the ward every day for an hour or two. I head over to the beautiful community garden on campus. The lovely weather we are having means I can sit in the sunshine and read. A peaceful sanctuary.

[NWCHDNetwork @NwchdN]

Thrilled to be supporting the @theBACCNA spring meeting @LHCHFT fantastic programme put together by @farrinav and @rfc_mercaldi 🙌🙌
Online and face-2-face

[Lowri Smith @LowriSmith88]

A lady on the ward here @LHCHFT had this done a week ago. Amazing. ♥️♥️

[Ami Bhatt, MD @AmiBhattMD]

Imagine heart surgery without cracking open the chest.

Sounds impossible, right?

But in 2002, Dr. Alain Cribier made it a reality with transcatheter aortic valve implantation (TAVI).

This procedure has saved the lives of patients previously deemed too weak to survive.🧵

[🏥 Alder Hey 💙 @AlderHey]

We're thrilled that @AlderHeyInnov's Little Hearts at Home (LHAH) platform has been selected as 1 of 4 projects across the UK to receive funding from the British Heart Foundation as part of the BHF’s Health Care Innovation Awards 🙌

[NWCHDNetwork @NwchdN]

PV meeting tonight. Excited to share a preview of their video 📽️ to raise awareness of the importance of the patient voice with NHSE and Chair of CHD Network.
Can’t wait to 🚀 launch and share it 🙌
Coming 🔜 watch this space!
#ajourneyofhope
#patientstories
#livedexperience

[Whitney @MomtoEandP]

If you ask me she doesn’t look like she just had a major heart surgery on Tuesday. She is doing extremely well. They did a diaphragm ultrasound and the left side that was damaged during her heart surgery last year now has movement. Along with lowering her vent settings to essentially the lowest they can go, they decided to trial her off the ventilator for 15min to start out and she handled it well. Her pulmonologist is really excited about that and is confident she can heads towards getting off the vent completely and decannulation in the future. She has already been taken off 3 of her heart failure and pulmonary hypertension meds because she has shown she doesn’t need them anymore. We were told this surgery would be life changing for her but we didn’t expect to see such a dramatic change in her so soon. For the first time I feel like she has a really good shot at a really good life and I couldn’t be more proud to be her mom ♥️

[Dan Sado @sado_dan]

Saw this in the BMj obituaries today. Not someone I have met but what an amazing and inspirational story. Achieved so much despite much adversity. Truly remarkable. RIP Allison.