Lucia GILLESPIE

[Muscular Dystrophy UK @MDUK_News]

Sarah waited over a decade to be diagnosed with limb girdle muscular dystrophy.

We’re calling for people living with a muscle wasting and weakening condition to get a timely diagnosis, in the run up to the #GeneralElection.

Read more: https://t.co/O9cbJs999V

[Welsh Government Health and Social Care @WGHealthandCare]

Rare diseases can be both life-limiting and life-threatening. 🔵

Our Rare Disease Action plan sets out our priority to address health inequalities, improve the quality of care and improve the lives of those living with rare diseases.
👇
https://t.co/lMh2aj7zMW

[kiera @kierasantry]

@Ryanair - Flying as a disabled person always comes with extra planning, a cloud of anxiety and worry that your wheelchair / scooter will come back working / in one piece, but yesterday when travelling home from Krakow, I’ve endured one of the worst experiences I’ve ever had

[BBC Wales News @BBCWalesNews]

Campaigners say things must change so disabled people can enjoy nights out

https://t.co/E1ezNuy9tl

[Muscular Dystrophy UK @MDUK_News]

On limb girdle muscular dystrophy awareness day, Cerys shares her unique journey, living with a disability in her twenties.

Leave your questions for Cerys below, and she'll respond in a follow-up video next week! 🎥

#LGMDAwareness #LgmdAwareness #Cymraeg

[Jodie Whitham @lalajodielala]

Today is 8 weeks until I set off for my trek to Petra for @MDUK_News. I've raised over £3000 and need to raise a furthe £127.93 to reach my #fundraising goal. If everyone could share or 13 people donate £10 each I'd be there!
https://t.co/MZs3bSgzFy
Sharing my buns for cuteness

[Duchenne UK @DuchenneUK]

It's wonderful to see Castell Coch in Wales lit up for World Duchenne Awareness Day!

Thank you to ‘Elliot's Endeavours to end Duchenne’ and @JGriffithsLab for making it happen! #WDAD2023

[Muscular Dystrophy UK @MDUK_News]

“I could only dream of being able to dance again. Now, I choreograph wheelchair dances...”

After seeing her health and mobility worsen, Morvenna who lives with Myofibrillar myopathy, started to make small changes that have since transformed her life: https://t.co/6tFlIgRpj2

[Sarah Butchard @sarahbutchard]

Hard hitting and sobering report from @alzheimerssoc highlights that people living with dementia have been hardest hit by COVID. Once again their Rights have been completely disregarded. Sadly this will not be a surprise to many! https://t.co/oe6yySeYLK

[Alzheimer's Society @alzheimerssoc]

We've heard from supporters like John, Tony and others calling for friend and family carers to be seen as equal partners in their loved one’s care.

Read about why we're calling on councils to connect families with loved ones who are living in care homes. https://t.co/3cToKpD5zD

[Alzheimer's Society @alzheimerssoc]

A blanket no approach to care home visits risks residents giving up. Family carers are an integral part of the system; locking them out has proved critical for so many people with dementia.

As #OneDementiaVoice, we're urging the Government to reconsider: https://t.co/iTdTEJe9mW

[AGE Platform Europe @AGE_PlatformEU]

Disability, like dementia, is not a person’s sole identity. Because of their age & condition older persons living with dementia struggle to access disability support. We need a more progressive &positive society’s response to #dementia https://t.co/6JVa8ZHBJ7 #WorldAlzheimersDay

[Alzheimer Europe @AlzheimerEurope]

This #WorldAlzheimersDay and #WorldAlzheimersMonth we call on research funders and governments to ensure that #dementia research funding is not significantly diminished as a result of the #COVID19 pandemic

https://t.co/vKPkfecqkP

[Sarah Scire @SarahDScire]

Join a brilliant and passionate team supporting people with dementia and their loved ones to have fun, explore past memories, enjoy life and stay living at home for longer. @CV_ihscpship @cavamh @C3SC @VAMTtweets @InterlinkRCT

[Dementia Friends @DementiaFriends]

How has lockdown and social-distancing affected people with dementia?

Dave Daniel, 53, is living with dementia. Here he tells us about the impact coronavirus has had on his life and why the 2-metre rule poses challenges.

[Alzheimer's Society @alzheimerssoc]

'People need to know what this lockdown is doing to people with dementia and their families. The damage that is taking place is irreparable.'

Mike is calling on care homes to let him visit his wife, Angela, before it’s too late. https://t.co/pDzVRYQucO

[Natasha Wilson @N_Wilson94]

Our @Wellbeing_AUKS reopened today!

Mind, body & soul nourishing!

We explored the park, some people have not been outside their homes or gardens for 6 months, listened to children laughing, felt the wind against our faces, the sun in our eyes 🥰☀️ #LivingWithDementia

[Platfform @weareplatfform]

Do you support someone who is living with dementia?

We have a range of resources relating to Covid-19, covering what you can do to help and get help during this time:
https://t.co/0bFi8ixuwX

#notforgotten #dementia

[Keep Splott Tidy @KeepSplottTidy]

Update on garden waste!! Please retweet to get this info out

[el @elbell789]

We have just got an 02920 number and an email set up for the #Splott and #Adamsdown Mutual Aid group, here are the details! Any retweets would be great @Cardiff_GandS @KeepSplottTidy @inksplott, this is the printable poster we are trying to get up around the area 😊 #MutualAid