Maggieg

lives in a magical world of fairies and unicorns. Cystic fibrosis campaigner and founder member and trustee of Flutterby FUNdraisers for cystic fibrosis.

[Alison Strath @alisonstrath]

@CFQuestForCure @jenni_minto It is always a privilege to meet colleagues from @CFQuestForCure - @jenni_minto & I very much valued the lived experienced shared, discussing the @NICEComms @online_his MTA draft guidance & listening to your aspirations for the #CF community - we will continue to engage with you

[Maggieg @M44GYG]

@jackiebmsp @cftrust Thanks Jackie. A worrying time for all. Appreciate your continued support for those with CF.

[Maggieg @M44GYG]

@jackiebmsp The Scottish CF community are so grateful for all your help during our campaign. It would have been a tougher battle without you guiding us every step. #inthistogether #nooneleftbehind

[Maggieg @M44GYG]

@alisonstrath @scotgovhealth @DrGregorSmith @PermSecScot @Carolineslamb @rosemarieparr @keithridge1 @AndrewEvansCPhO @cathyharrison00 @DonaldCairns @jasonleitch Very well deserved. Congratulations!

[Maggieg @M44GYG]

@jackiebmsp Thank you Jackie Baillie for helping my daughter and hundreds of others in Scotland with cystic fibrosis. Because of your help, and bringing together all parties in Scottish Government on this issue, around 800 people with the condition now have a brighter and better future.

[Maggieg @M44GYG]

@Alidilly @NHSEngland This is not acceptable. Those in need can’t wait that long. Sort it now.

[Maggieg @M44GYG]

@hitachi_capital been trying to contact you for 2 days by phone. No options for my question via FAQ on your website and your app is down. Not happy

[Maggieg @M44GYG]

@DrGregorSmith @jasonleitch @JeaneF1MSP my adult daughter is shielding as she has cystic fibrosis. Who will be involved in decisions for bespoke advice given to those with CF in Scotland? @CFQuestForCure

[Maggieg @M44GYG]

@AnasSarwar I’m sure your banter cheered everyone up. #InThisTogether

[Maggieg @M44GYG]

@gemchem @Tesco Have you registered with your local council by texting the number in the letter you received? Deliveries are being set up this week for Scotland.

[Maggieg @M44GYG]

@alisonstrath Happy Easter to you and yours. Enjoy your downtime. Very well deserved.

[Maggieg @M44GYG]

@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?

[Maggieg @M44GYG]

@cftrust are you working with supermarkets in Scotland to ensure priority delivery slots are available? Those affected are really struggling to get supermarket home deliveries @jackiebmsp @CFQuestForCure

[Maggieg @M44GYG]

@scotgov People shielding sent their CHI number to the phone number in Scot gov letter. Many have not had an automated reply. They need access to supermarket delivery slots. Please help. @jackiebmsp @cftrust @CFQuestForCure

[Maggieg @M44GYG]

@asda Does this include those living in Scotland?

[FlutterbyFUNdraisers @Flutterby4CF]

Get involved. https://t.co/ZQUMNQDKQv

[Maggieg @M44GYG]

Please donate anything you can to help the CF community right across the UK. Thank you @CFQuestForCure @Diane__Murray @TraceyMillar19 @ResearchGray @BBCScotlandNews @benshephard @thismorning @NickMedhurst

[FlutterbyFUNdraisers @Flutterby4CF]

Please RT our family and friends need these
@cftrust @GreatStrides65 @reallorraine @JoshLJ24 @jackiebmsp @CFQuestForCure @STVNews @Alidilly @LennoxHerald @M44GYG @WindyWilson88 @ChrisMRiches @RadioClydeNews @RFC_Charity @FoundationCFC @SMFC_CF @FcDumbarton

[Maggieg @M44GYG]

@SkyHelpTeam And you. Keep safe!

[Maggieg @M44GYG]

@SkyHelpTeam Hi! Got it sorted today thank you 😊