FlutterbyFUNdraisers

Cystic Fibrosis Charity raising awareness and funds to support research. 100% of donations currently go to UK CF Gene Therapy Consortium

[FlutterbyFUNdraisers @Flutterby4CF]

***URGENT FUNDRAISING APPEAL***
#livehopebreath #cf #cffamily #charity #inthistogether

https://t.co/hcpfXbD2TE

[FlutterbyFUNdraisers @Flutterby4CF]

@jilli09 @RadioRayRTE Amazing news, good luck Jillian and Sean

[FlutterbyFUNdraisers @Flutterby4CF]

@aarashsaleh @GeneTherapyJack Well done Aarash, great achievement.

[Ali Dillon 💙 NHS @Alidilly]

If you need beds freed up @MattHancock why not follow the devolved nations lead and allow England to follow FDA licensing for Kaftrio 1,000s more wld be eligible you are failing CF patients in the pandemic its #inequality #EnglandNeedsKaftrio4All #KaftrioEqualityUK

[FlutterbyFUNdraisers @Flutterby4CF]

@jasonleitch can you please clarify? Negative Covid test no symptoms tested as friend has tested positive. Not been contacted by test and protect. West Dunbartonshire. Do you still isolate for 14 days.

[FlutterbyFUNdraisers @Flutterby4CF]

@CFno1LeftBehind @cftrust @cf_ireland @CF_Foundation @CFQuestForCure @KingsCollegeNHS @RBHCharity @RBandH @RoyalPapworth We are doing all we can to support @genemed @CFGT_Edinburgh to try to ensure that #nooneisleftbehind

[FlutterbyFUNdraisers @Flutterby4CF]

delighted to be one of the chosen charities for this incredible challenge.

[Dr Paul Hamilton @_PaulHamilton]

Some friends and I have chosen eight charities (close to our hearts)...

Between now and the end of 2021 we will attempt eight separate fundraising cycles... 🚴🏻‍♂️👍🏻

[FlutterbyFUNdraisers @Flutterby4CF]

@_PaulHamilton @Erskine1916 @MPSSocietyUK @CrohnsColitisUK @alzscot @ProstateUK @Beatson_Charity @scotwomensaid Thank you, absolutely delighted to have your support! That is an incredible amount of time in the saddle 🚲 #curecf

[FlutterbyFUNdraisers @Flutterby4CF]

Amazing news 💜🌹

[Quest For A Cure @CFQuestForCure]

'Life-transforming' cystic fibrosis wonder drug coming to Scotland soon https://t.co/GKAbzQKtSW

[FlutterbyFUNdraisers @Flutterby4CF]

@strawberree Hope you had an amazing day

[Kate Eveling @thevftos]

Guys I need some help for an upcoming YouTube video for CF week! This applies to anyone who has #cysticfibrosis or has a kid with CF or a partner with CF! I am looking for a short video (5-20seconds) telling me a small fact about your life with CF... (1/3)

@CFAware @cftrust

[Quest For A Cure @CFQuestForCure]

👇👇#staysafe this is excellent advice 👇👇

[FlutterbyFUNdraisers @Flutterby4CF]

Anybody else out star gazing tonight? Our sky's are clearer than I've ever seen them here

[Jason Leitch @jasonleitch]

The NHS is open…👇🏼

[FlutterbyFUNdraisers @Flutterby4CF]

Our very own hero taking time out for the kids #cf #eventsbytlc #batman #happyeaster https://t.co/q9H7qcSaDK

[FlutterbyFUNdraisers @Flutterby4CF]

Just stay home...PLEASE

[FlutterbyFUNdraisers @Flutterby4CF]

The issue now appears to be fixed.

[Maggieg @M44GYG]

@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?

[FlutterbyFUNdraisers @Flutterby4CF]

Get involved. https://t.co/ZQUMNQDKQv

[FlutterbyFUNdraisers @Flutterby4CF]

Please RT our family and friends need these urgently @piersmorgan @Lord_Sugar

[FlutterbyFUNdraisers @Flutterby4CF]

***URGENT FUNDRAISING APPEAL***
#livehopebreath #cf #cffamily #charity #inthistogether

https://t.co/hcpfXbD2TE

[FlutterbyFUNdraisers @Flutterby4CF]

We are desperately looking for funding. Does anyone know of any grants we can apply for?
#COVID19 #cf #cffamily #cfcharity #fundraising

[FlutterbyFUNdraisers @Flutterby4CF]

***URGENT FUNDRAISING APPEAL***
#livehopebreath #cf #cffamily #charity #inthistogether

https://t.co/hcpfXbD2TE

[FlutterbyFUNdraisers @Flutterby4CF]

Please RT or friends and family need these urgently @GradySNP @AlexNeilSNP @neilgraysnp @DavidLinden @KennyMacAskill @StewartMcDonald @Stuart_McDonald @AnneMcLaughlin @CMonaghanSNP @DavidMundellDCT @GavNewlandsSNP @kirstenoswald @ChrisStephens @alisonthewliss

[FlutterbyFUNdraisers @Flutterby4CF]

***URGENT FUNDRAISING APPEAL***
#livehopebreath #cf #cffamily #charity #inthistogether

https://t.co/hcpfXbD2TE