This #MillionsMissing, we are #FrailAndFurious!
Injustices are happening worldwide because ME is not taken with the seriousness we deserve.
Let's come together to show the world how devastating this disease is.
Join the fight: https://t.co/Thxd67Jdyd
Slides - Transcripts - Sources
Now available!!
Joint Hypermobility / EDS in Pediatric ME/CFS
with Dr. Peter Rowe (episode 3)
* * * *
📢Coming Soon 📢
Capstone Q & A with Dr Rowe
~ an hourlong interview with pioneer of pediatric ME/CFS
Juneteenth is a moment to celebrate freedom and reckon honestly with who that freedom has and has not reached. For the ME and Long COVID community, that reckoning is personal.
Full article: https://t.co/wnuQ5L8SvT
#Juneteenth#pwME#pwLC#Disability#Medicaid
We have a Medicaid #FrailAndFurious update for you! https://t.co/byCrq7lD1l
We've outlined the key facts you need to know, the actions we're taking, and ways you can help protect healthcare access for our community.
#pwME#Medicaid#MECFS#longCovid
Our Severe ME Artists Project 2026 is coming in recognition of #SevereMEday! Full details: https://t.co/eGZqvGPK5F
Please note: many people with #SevereME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving. #pwME
People with serious or complex medical conditions should be exempt from Medicaid work requirements. Period. Join us by submitting your own public comment by July 31st using our template: https://t.co/sLlVRkrFKE .
#FrailAndFurious#Medicaid#pwME#pwLC#spoonie#disability
Attention #caregivers! You are invited to join our ME Caregivers Support Call on the 3rd Saturday of the month- June 20th at 1:30 pm ET. All caregivers of people with myalgic encephalomyelitis (ME), Long COVID, and associated conditions are welcome! https://t.co/SMobGEMNYT
Welcome to #MedicaidMonday! MEAction is going to be sharing important information about Medicaid, especially focusing on the new work requirements on Mondays this summer.
Huge thanks to @corywysz!
Our #FrailAndFurious campaign is happening all year!
https://t.co/hwD5QCzsyM
Join us for a community meeting TOMORROW - June 14th at 3:00 pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://t.co/YcDlNR7pP2
#PwME#MillionsMissing#FrailAndFurious#MECFS
Miranda shares her experience as a #pwME & shares her advocacy within the disability and unhoused community at #MillionsMissing. Miranda goes on to explain that Medicaid is the main pathway to get home care and home care is the main pathway to safety.
https://t.co/nmBBRSjdFC
From our friends at @PlzSolveCFS!
Take action today by submitting a comment and contacting Congress.
Thanks to Solve M.E. for organizing a response on this critical issue.
#pwME#research#MECFS#longCovid
5/ Deadline: July 13. You don't need to be an expert, just honest and, in this case, not hyperbolic
Please share. Most people have no idea this is happening, but it will impact so many of us.
#MEcfs#LongCovid#ProtectScience
Jaime Seltzer, Scientific Director at #MEAction, makes a powerful case for fighting against Medicaid work requirements that imperil people with ME at this year's #MillionsMissing. Full speech available here: https://t.co/fEzEjikQ5f
MECFS #Medicaid#disability#FrailAndFurious
Join us for a community meeting on Sunday, June 14th at 3:00pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://t.co/YcDlNR7pP2
#PwME#MillionsMissing#FrailAndFurious#MECFS
David shares at #MillionsMissing 2026 about his life with his wife Shaina, a #pwME (who also shared!). "Nobody should have to disappear just because they got sick. And nobody should be punished for loving someone who is.”
Full speech: https://t.co/2BzHwuXk3R
#Caregiver#pwME
Stop the harm, Stop the deaths, Start the service
Share this video - lobby your MP and @jamesmurray_ldn!
Find out how here https://t.co/TZPftobVEq
Let’s make our voices heard!
#MyalgicEncephalomyelitis#VerySevereME
https://t.co/e0smlSW77a
Jaime Seltzer at #MillionsMissing:
"[Imposing Medicaid] work requirements in order to receive assistance is going to make so many people sicker. It's going to make so many people lose their lives. We need to fight against it with everything that we have."
https://t.co/fEzEjikQ5f
Join the #MillionsMissing community for updates on U.S. advocacy. We have much to share - about our #FrailAndFurious campaign, and about HHS, NIH, and Congressional advocacy. Join us June 14th at 3 pm ET! Register here: https://t.co/uoM1q7X1iZ
#Medicaid#pwME#Disability
#FrailAndFurious campaign update: CMS just issued new guidelines on work requirements for #Medicaid & made it harder for people with ME/CFS, Long COVID, & IACCs to get exemptions. We are fighting!
More info here: https://t.co/3wSDxIlC4u
#PwME#disability#MECFS