The M.E. Trust

We have merged with @actionforME and are now known as Action for M.E. Healthcare Services, providing holistic care and support for people with ME/CFS.

[The M.E. Trust @METrustUK]

Thank you all for supporting The ME Trust over the past 10 years.

Tomorrow, we will merge with Action for M.E.. We will continue to offer our existing Doctor, Physiotherapy, Counselling and Chaplaincy services and support under the name Action for M.E. Healthcare Services.

[The M.E. Trust @METrustUK]

@lc_cornell29 Thank you 😊

[The M.E. Trust @METrustUK]

Thank you all for supporting The ME Trust over the past 10 years.

Tomorrow, we will merge with Action for M.E.. We will continue to offer our existing Doctor, Physiotherapy, Counselling and Chaplaincy services and support under the name Action for M.E. Healthcare Services.

[The M.E. Trust @METrustUK]

We are excited to be combining the power of our organisations and strengthening the services we offer. During 2022 we plan to scale up our provision of clinician-led, holistic health and wellbeing support to help more people with M.E. and their families. @actionforme

[Action for ME @actionforme]

The 4th episode of our Learn About M.E podcast is now live. In this episode, we hear from medical students about their experience of learning about ME/CFS in their medical schools.

https://t.co/5TGAiczaxA

[ME/CFS Priority Setting Partnership @PSPforMECFS]

We've now been able to send responses to all the applicants for the final workshops.

We're so grateful to have so many excellent people joining us and wish we could have had all of you!

These workshops are sure to create some fascinating dialogue.

[ME Research UK @MEResearchUK]

Researchers from @LivUni are conducting a survey looking at the experiences of transcutaneous vagus nerve stimulation in people with ME/CFS. Information sheet (https://t.co/RPcpxHrCnm) & survey (https://t.co/w644FAq742) Open 'til 11/2/22 #pwME #MECFS

[DecodeME the ME/CFS Study @DecodeMEstudy]

.@SonyaChowdhury (Webinar)

Please do go to the M.E. charities like @actionforme and @MEAssociation if you need help with getting a diagnosis of ME/CFS.

If you do get a ME/CFS diagnosis (including following COVID-19 infection) you can take part in DecodeME. #LongCovid

[Action for ME @actionforme]

We have received a request from a journalist exploring experiences of access to services and support during lockdown. Do you think you can help? If you can shed light on your experience, drop us a comment or email us at [email protected].

[DecodeME the ME/CFS Study @DecodeMEstudy]

🔴Epstein-Barr virus (#EBV) can play a key role in causing #MS, a recent study showed.

EBV is known to play a role in causing some cases of #MEcfs (through causing glandular fever).

#DecodeME will look for evidence that genetic factors make EBV more likely to trigger ME/CFS.🧬

[DecodeME the ME/CFS Study @DecodeMEstudy]

You're invited to our Thurs 10am webinar, with:

➡️launch update

➡️@lifeofpippa_ @theslowlane_ME @chicaguapa explain how #MEcfs patients & carers help tell others about the study

JOIN:
*Zoom (Register at: https://t.co/crd3D18tPp)
*Live on Facebook

(Recording available later.)

[The M.E. Trust @METrustUK]

"I appreciate how kind, sympathetic and thoughtful the doctor was."

#patientquotes #METrust #MECFS #pwME

[DecodeME the ME/CFS Study @DecodeMEstudy]

Have questions about the study?

Join this month's webinar on Thurs morning: https://t.co/crd3D18tPp

(We'll post the recording and transcript when they're available.)

[Doctors with M.E. @DoctorsWithME]

Putting it into Practice: What NICE ME/CFS means for GPs

A thread ⬇️ https://t.co/EVKuMHtJO7

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

Encouraging healthy people to exercise is fine but please remember that exercise is contraindicated for people with #MECFS and many #LongCovid patients. #r4today

[Sonya Chowdhury @SonyaChowdhury]

An exciting few weeks ahead w this & @DecodeMEstudy launch. 2022 is the year for people with #ME #MECFS to finally receive the investment & focus they more than deserve. More research, more funding, more understanding, more healthcare…let’s end the ignorance, injustice & neglect

[The M.E. Trust @METrustUK]

@hopefullizzy @actionforme Yes, it will. We actually hope to increase our service provision, including clinical /doctor support.

[The M.E. Trust @METrustUK]

@EvolvingME2021 @actionforme Thank you for sharing and we take your input aboard for consideration.

[The M.E. Trust @METrustUK]

We are excited to announce that we will be merging with @actionforme and launching our new Action for M.E Healthcare Services on 1 February 2022.

Find more details and information on our merger here: https://t.co/nPDVEkrBqq

#METrust #MECFS #pwME

[The M.E. Trust @METrustUK]

@feather1 @actionforme Thank you 😊

[The M.E. Trust @METrustUK]

@feather1 @actionforme We can confirm that nothing will change for you and your place on the waiting list, as we will continue our services without any disruptions.