ME Awareness Hour

TIME FOR PEOPLE TO KNOW MORE ABOUT ME #MEawarenesshour wednesdays 8pm-9pm (UK) 21:00-22:00 CEST; 3pm-4pm EST (USA)

[Solve ME/CFS Initiative @PlzSolveCFS]

‘What if I don’t get better?’ Some COVID-19 survivors struggle with symptoms for weeks, even months, mystifying doctors. #Covid19 #MECFS https://t.co/cNxgclrTX6

[A Journey Through the Fog @JourneyFog]

As a Spoonie we are often told; “listen to your body and pace yourself” It's a technique designed to help us manage our complex symptoms. But what if you find pacing challenging? What if your body and mind refuse to let you rest? #chronicillness #MEcfs 

https://t.co/hLqx9iL2qc

[WOWvoices @wowhour]

We received this message with a poem. Please share it widely as much as you can. It is very hard to read, do not read on if you are already struggling but it needs to be seen by as many people as possible. 

"I wonder if you could share https://t.co/RNipwImkRY #wowvoices

[Danielle knits bits @MaisieMooMakes]

Oooooo so many gorgeous sparkly goodness! @Ness_SeaGlass has such a gorgeous shop! I can't reccomend enough checking ot out. I'm pretty sure you'll find something you just HAVE to have! Xx #handmadehour

[Dr. Daniel Loy @loy_daniel_de]

These days I woke up from a dream: I was shopping in a small grocery store.

In the next moment I realized that in reality I have not been able to do this for more than 2 years. It is these little things that show me how much I have actually lost to #MECFS.

#MEawarenesshour

[ME Awareness Hour @MEawarenesshour]

#meawarenesshour has now begun. #spoonies #pwme #pots #fibro #Fibromyalgia

[Vlad Vexler @VladVexler]

@LucyWhit11 Remarkable journey. Thank you for sharing. How is your health at the moment?

[Lucy Whitmarsh @LucyWhit11]

@VladVexler @SandraAJensen & I held my head up & was cheery & bright. So nobody believed me that there was anything wrong. Also, I'm in sales and for $ reasons have clung to a sales job (selling health products) as best as possible for 10 years with ME--appearing cheery & bright to customers & employers.

[BaderHerr @BartlDerHerr]

#MECFS #pwME #meawarenesshour
@ManfredWeber
hat noch nach der Resolution zurückgeschrieben. Ich danke von ganzem Herzen für die Unterstützung! Hier ein Auszug aus der Email, die ich veröffentlichen darf: "... Darüber hinaus unterstützt das Parlament den Plan der Kommission, 1

[Veronica Jones @Forestvon]

Thread
Thank you @thetimes for good articles on #ME
Please read this thread and continue your investigative journalism
#ME sufferers have been stigmatised for decades

[Julia Baader @BaaderJulia]

#MEawarenesshour
Stellt euch nur vor, der Ausschuss Gesundheit und Pflege des Bayerischen Landtags steht hinter allen an ME/CFS Erkrankten und wird sich für sie einsetzen. Höchste Dringlichkeit für die Staatsregierung wurde auch beschlossen. Einstimmig! Bayern❤️