Me, Myself and Eye

Wyburn-Mason syndrome. Heard of it? Dan Jeffries has and his memoir is an amazing tale of living with a rare condition - to then find out you have another one.

[Me, Myself and Eye @MMEthebook]

It's World #Acromegaly Awareness Day today. Here's a short film I made about this unique and rare condition.

4 years on, 80k views and 600 people shared it. Not bad for a video made in PowerPoint 🤣 😎

https://t.co/ZNVX4oehis

@PituitaryWNews @Pituitary_org
@AcroCommunity

[Me, Myself and Eye @MMEthebook]

Could someone at The @Guardian pls advise Adrian Chiles that this is an easy fix (I struggled for years too). Search for 'anti-slip ear hooks', get a pack, problem solved.

Why can’t we stop my glasses sliding down my nose? | Adrian Chiles https://t.co/4xlS6sP2Re

[Me, Myself and Eye @MMEthebook]

I wonder if @CharlesHRH will utter 'Back again?' to #liztruss tomorrow.

[Me, Myself and Eye @MMEthebook]

.@Pituitary_org 🙌 for last night's #Acromegaly session. Rob Murray was fab in explaining complex medical concepts and the Q&A/Discussion after was hugely useful.

I had great fun chairing & learnt a lot - especially about #testosterone impact (gel = more natural release).

[Me, Myself and Eye @MMEthebook]

Medical students - interested in writing Rare? Check this!

https://t.co/3ZaBD5zued

@M4RareDiseases

[Me, Myself and Eye @MMEthebook]

@M4RareDiseases @Pituitary_org Wow - what a beauty! 😆 Thanks for having me speak; always a pleasure.

[Me, Myself and Eye @MMEthebook]

@IndeedItsMark I think this is a Twitter first! 😆 🤝

[Me, Myself and Eye @MMEthebook]

@IndeedItsMark Fair enough. Yes - consider it the red flag to the bull!

I'm a huge fan of Pinter and Mike Leigh so I love my heavy pauses as long as possible!

[Me, Myself and Eye @MMEthebook]

@IndeedItsMark Just how I see it! I thought it was brilliant.

Did you watch 'Mum'? I personally think Stefan Golaszewski who wrote and directed both is a genius, but each to their own :)

[Me, Myself and Eye @MMEthebook]

What a great day at @emotive__agency's Summer Conference. Always a pleasure telling my story, especially knowing the 70 attendees all had a copy of my book!

And lovely to hear Lucy from @M4RareDiseases too.

#RareDisease #daretothinkrare

[Me, Myself and Eye @MMEthebook]

When a photo opportunity just makes itself available.

#PiersMorgan

[Me, Myself and Eye @MMEthebook]

Popped up on my FB feed from 9 yrs ago...

John Virgo: "I'm not favouring either player, I just don't like the miss rule."
Terry G: "There's not much you do like is there?"
JV: "I like an egg custard."
TG: "With a corned beef roll."

Gold. #bbcsnooker @ThisisPartridge

[Mark Vanderpump @DrMVanderpump]

#Acromegaly - just over 6,000 people in the UK suffer from this rare condition https://t.co/Eb7OiFhJc7

[Me, Myself and Eye @MMEthebook]

Happy #RareDiseaseDay everyone!

Share to help raise awareness in a hope for earlier diagnosis of rare conditions. Thank you.

@M4RareDiseases @Pituitary_org @RareDiseases

[Me, Myself and Eye @MMEthebook]

"How is life different? It's the little things: being able to buy shoes, the ring on my finger and feeling like I'm in control."

In Ep 17 we speak to Vanessa who was diagnosed with #Acromegaly at the very young age of 21.

https://t.co/f6oPnVApmS

[Me, Myself and Eye @MMEthebook]

Separated at birth 👀

#PMQs

[Me, Myself and Eye @MMEthebook]

Stuck for a gift? GIVE 'EM MY #AUDIOBOOK! 😁

Just £7.99 for 12 hours of sauce, juice, embarrassing anecdotes and medical detail that would make Dr Christian blush. No subscription required.

Click below and have a listen ⬇️

https://t.co/BBX0A4N2lD

#TrueStory #Bristol #Rare

[Me, Myself and Eye @MMEthebook]

@Pituitary_org @M4RareDiseases Thanks for sharing! Was lots of fun chatting to Lucy at @M4RareDiseases.

[Me, Myself and Eye @MMEthebook]

Thanks @M4RareDiseases - I had heaps of fun recording this podcast!

Topics: #AVM, @Pituitary_org, #beingrare

[MedicsforRareDisease @MedicsForRare]

Our latest podcast episode is an interview with the one and only Dan Jeffries @MMEthebook who was diagnosed during an OSCE! Tune un now https://t.co/XAa3vYof2C……... or
https://t.co/hpYQrAhnBG……
#DareToThinkRare