MND Peer Support

A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent

[MND Peer Support @MND_PeerSupport]

#MNDPeerSupport study has now recruited 140 participants out of a target of 160. #thankyou to
@mndassoc
@mariecurieuk
@LOROSHospice
@UHSussex
#research #carersweek

[MND Peer Support @MND_PeerSupport]

#MNDPeerSupport study has now recruited 132 participants out of a target of 160. #thankyou to
@mndassoc @mariecurieuk @kingsmnd @UHSussex
#research #carersweek

[MND Peer Support @MND_PeerSupport]

#MNDPeerSupport study has now recruited 128 participants out of a target of 160. #thankyou to
@mndassoc
@mariecurieuk
@kingsmnd
@UHSussex
#research #carersweek

[MND Peer Support @MND_PeerSupport]

#MNDPeerSupport study has now recruited 124 participants out of a target of 160. #thankyou to
@mndassoc @mariecurieuk @kingsmnd @UHSussex
#research #AcademicTwitter #carersweek

[MND Peer Support @MND_PeerSupport]

#newday our #MNDPeerSupport study will continue recruitment until May 2025! 🎉 #trending We have now recruited 119 participants out of a target of 160. 🎯 #thankyou to @mndassoc @mariecurieuk @kingsmnd @UHSussex #research #AcademicTwitter #carersweek

[MND Peer Support @MND_PeerSupport]

#BreakingNews‌ @MND_PeerSupport recruits 100 #Carers of individuals living with #MND. Huge #ThankYou to @mndassoc @mariecurieuk @kingsmnd @WaltonCentre @RoyalStokeED @RoyalDevonNHS @UHSussex @SwanseabayNHS @LOROSHospice @LaneFoxResearch @severnhospice

[MND Peer Support @MND_PeerSupport]

Are you a carer of someone living with #MND? Are you interested in taking part in a #research trial to see whether #online #peersupport can reduce #stress levels and promote #wellbeing. Interested? Please contact us at [email protected]. More details, https://t.co/RNNTGUMD7G.

[MND Peer Support @MND_PeerSupport]

We are running a virtual peer-to-peer support programme for informal caregivers of individuals with #MND at risk of becoming or currently technology-dependent. Read more here https://t.co/RNNTGUMD7G or email [email protected] #RCT #peersupport

[Neeraj Shah @Neeraj0588]

Do you look after patients with neuromuscular conditions? #NMD

Please complete our survey to tell us what you think is important to measure in future studies on secretion clearance.

Your voice is vital to make this work!

https://t.co/nOKVqoOPZ8

[MND Peer Support @MND_PeerSupport]

Are you living with a neuromuscular condition? Or are you caring for someone with #NMD? Please complete our survey to tell us what is important to measure in future studies of treatment to help clear mucus. Your voice is vital to make this work! https://t.co/nfDrybkWaO

[Pilgrims Hospices @PilgrimsHospice]

Do you care for someone with motor neurone disease? You may be able to join this @MND_PeerSupport study, which #PilgrimsHospices is supporting, or become a peer supporter for someone in need. For more info, email [email protected] or click here: https://t.co/a1NH6lj0Vb 💙

[MND Peer Support @MND_PeerSupport]

Thanks for tweeting for us 👍. #MNDresearch #MNDcarers

[MotorNeuroneDisease @MNDPatients]

@MND_PeerSupport https://t.co/OmWmNbRvAA

[Liam P Dwyer @liampdwyer]

#Branches & #Groups if you have @MNDPatients in need of an #AAC device Pls contact @MND_CommsAids or #MND Connect Helpline it's free and offers information & support on all aspects of motor neurone disease

📞 0808 802 6262
📧 [email protected] https://t.co/0ohHv06fvu

[MND Peer Support @MND_PeerSupport]

What an amazing feat! Go Lennie!
#fundraising #MND #TeamMND @mndassoc

[Melissa Rigby @MelissaRigby9]

Please support Lennie & his 2 amazing charities,every little helps to make a big difference!HE'S set to cycle to 5 super league Stadiums roughly 42 Miles in just ONE DAY!CLICK THE LINK TO DONATE⬇️@mndassoc @LDShospcharity
#TeamMND #fundraising #charity

https://t.co/oFDeSoEc9h

[MND Peer Support @MND_PeerSupport]

Family carers have compassion in abundance! If you care for someone with #MND & are interested in finding out more about our virtual peer support #research trial please contact Rebecca at [email protected] or follow this link https://t.co/n6EazNRFft @DrEstherHobson @st_marg

[Dalai Lama @DalaiLama]

Compassion is the source of true joy, peace and happiness. It is the foundation of a good heart, the essence of a meaningful life, and the fundamental principle for creating a better world.

[Doddie Aid @doddie_aid]

We have the ‘Match Ball’ for the ‘Doddie Cup 555 Ride’ and we’ve taken it on tour. Anyone know where we are? #doddieaid2023 #mnd #doddiecup555 #dc555 #mndresearch #doddieaid

[red devil @pilko71]

HELP REQUIRE D; Jordie now requires an Air Flow mattress and I am having trouble finding holiday cottages that have this, plenty with electric bed but not air flow mattress. MND friends can you help 🤞🙏❤️@mndassoc @MNDoddie5 @Rob7Burrow @DarbyRimmerMND

[Neuroprogressive and Dementia Research Network 🌐 @NRS_NDN]

Are you a family Carer of someone with Motor Neuron Disease (MND)?
We are looking for Family/informal carers of someone with MND for a research study of online peer support.
To sign up: [email protected]

[MND Peer Support @MND_PeerSupport]

@MalabikaDr @LaneFoxResearch @NgoShyuan @WillowKaty @JustinePilgrims @DoddieGump @MNDoddie5 @MNDsessex @MNDNEWales @st_marg @trudi_mnd

[MND Peer Support @MND_PeerSupport]

Hooray, the weekend is almost here! But timeoff for caregivers of people with #MND is non-existent. KCL is undertaking #research to see if online #peersupport can help #carers in their invaluable role. Interested? See more here https://t.co/n6EazNRFft @DrEstherHobson @mndassoc