Ian Lev

I have a rare form of MND known as PLS

[Ian Lev @lev_ian]

@mndassoc @Staceyk51 Fantastic!😎

[Ian Lev @lev_ian]

@Jaynes__World Watched last night - very moving! Well done Emma!😎

[Ian Lev @lev_ian]

@mndassoc Brilliant!😎

[Ian Lev @lev_ian]

You can read my latest poem “Running!” by clicking on the link below - enjoy!

Keep Strong 💪 Keep Positive!😎

https://t.co/mz9bnArOqY

[Ian Lev @lev_ian]

@YvetteCooperMP Yet your Government has done nothing to help us!😎

[Ian Lev @lev_ian]

I’m back - writing poetry - you can read my latest by clicking on the following:

Keep Strong 💪 Keep Positive!😎

https://t.co/HQsc4U0Wb3

[Ian Lev @lev_ian]

@mndassoc Brilliant to be helping Warriors in need!😎

[Saba Ahmad @SabSaba3]

Many in India are waiting for Tofersen approval which can treat SOD1 #ALS. When are we expecting it in India? It’s urgently needed to save lives
@aiims_newdelhi @PMOIndia @JPNadda @MoHFW_INDIA

[MND Association @mndassoc]

Every day matters when you have MND, no one understands that better than the people who share their stories with us, like Rob.

We're shaped by their experiences, honesty and determination. We’re proud to share their voices as part of this new chapter.

[MND Association @mndassoc]

Every story matters.
This is Rona's.

Read it here 🔗 https://t.co/s94I1p2CqU

[MND Association @mndassoc]

"Be kind and love fiercely."
"Love harder. Be present."
"Do it now, don't wait."

We recently asked our community what they would say to their younger self.

Their responses were amazing.

[MND Association @mndassoc]

Six people are diagnosed with MND every day.
Six people die from MND every day.
There is currently no cure… not yet.

This is exactly why every day matters.

Help us make sure at least one more person learns about MND today.

[MND Association @mndassoc]

Every day we support people affected by motor neurone disease.

Every day we push for better care and policy change.

Every day we fund and drive research towards treatments and a cure.

Every day matters.

[Sam & The Bucket List @SJHH32]

Today, the MND Association shared their rebranding, a project that I was proudly part of throughout 2025. The voice you hear was created using historical recordings of my voice and cloned using AI. All of this was made possible with funding from the MND Association.

[Alex Hornby @alexhornbyrail]

A real honour to represent Northern at the @mndassoc reception at Westminster, in the company of HRH Princess Royal. Pete Collins & the team are a great charity to work with, as we continue to build on our £23,000 fundraising efforts and our liveried & named Rob Burrow CBE train.

[MND Association @mndassoc]

A brand isn’t just a logo.

It’s everything. Every moment of support, every day of research, every bit of awareness.

Find out more about our new look and feel, shaped by you, the MND community.

[MND Research @mndresearch]

We’re so excited to share our new brand with you ✨🎉

If you’re an @mndassoc funded researcher, we’ll be in touch soon with more information for you!

Keep an eye on your email inboxes over the next week 📩👀

[Ian Lev @lev_ian]

You can read my new poem/ blog on

https://t.co/22f6QHeODm

Keep Strong 💪 Keep Positive

[Ian Lev @lev_ian]

Read my latest poem “A very much changed me!” - on my facebook page
“Raising Awareness of MND! - POETS Day!”

https://t.co/S6Ksn4EaiB

Keep Strong 💪 Keep Positive!😎

[MND Campaigns @mndcampaigns]

Are you a local councillor interested in supporting people living with motor neurone disease, or do you know somebody who is?

Join up to our new #MND Councillor Network today to find out more 👇
https://t.co/FjbzDRHFL5