David Setters

Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.

[David Setters @dsetters]

Pls sign this important petition seeking change in an NHS Continuing Healthcare process which is not fit for purpose for @MNDPatients & others with life limiting conditions https://t.co/jBFSKkYAhP @MNDsouthlondon @MNDWestMids @MNDwestsussex @MNDAEastKent @MND_RWB @westsurreymnda

[Patients United2EndMND @united2endmnd]

Please sign! We want to improve access to NHS Continuing Healthcare funding #CHC & ultimately standards of care provided to support @MNDPatients & others with life limiting conditions. Great to see charities working together! https://t.co/UXxxQxJ61a @DementiaUK @mndcampaigns

[Jayne Halhead @Jaynes__World]

It is outrageous that people living with #MND and their carers are STILL ineligible for the #COVID vaccine, despite repiratory failure being the most common cause of death!

PLEASE, @MNDAssoc, @APPGonMND, @IanByrneMP, @YvetteCooperMP, @DHSCgovuk, et al, do something!

#MND #MoreNeedsDoing!

[Mike Wilson* @Redsmail]

MND Sports Tour of London is less than 20 weeks away. 160 miles around the capital visiting 45 football, rugby union and cricket grounds on March 25-27 in support of the @DarbyRimmerMND and the Mel Evans MND Foundation. Our core team will wear the names of MND heroes through.

[David Setters @dsetters]

. @alexwardfund

[Patients United2EndMND @united2endmnd]

@MNDpatients don’t automatically get Covid vaccine under 2025 rules, despite respiratory failure being most common cause of death. Even strong of advocacy doesn’t always work. We’re asking @APPGonMND for support https://t.co/s2BM1FpBzu @IanByrneMP

[David Setters @dsetters]

I've #justsponsored Lucinda Lighting, who's fundraising for My Name'5 Doddie Foundation on @JustGiving. Donate now https://t.co/TK6Q8KMRy1

[Associazione conSLAncio ETS @ConslancioOnlus]

🧪🔬📊
🌎12 ottobre 2026: EXPERTS-ALS @UKMNDRI: Ropinirolo - Risultati dell'analisi intermedia

🔗🇮🇹https://t.co/kk6I3uHuYN

Il reclutamento continua per i bracci doxiciclina e salbutamolo dello studio.

Grazie a tutti i partecipanti e ricercatori dello studio.❤️

[Patients United2EndMND @united2endmnd]

Some thoughts on the latest EXPERTS-ALS results and recent important advances in treatment developments.

https://t.co/rmhdqy4jy9

[David Setters @dsetters]

Pls sign this important petition seeking change in an NHS Continuing Healthcare process which is not fit for purpose for @MNDPatients & others with life limiting conditions https://t.co/jBFSKkYAhP @MNDsouthlondon @MNDWestMids @MNDwestsussex @MNDAEastKent @MND_RWB @westsurreymnda

[Mike Wilson* @Redsmail]

March 25-27 2027 - The MND Sports Tour of London in support of the @DarbyRimmerMND and the Mel Evans MBE Foundation.

Three sports at all levels fighting MND together.

Registration is now open at https://t.co/NZTycs3amS

Come and be a walker or sponsor a stage.

#AttackMND

[MNDA East Surrey @mndaeastsurrey]

Please join us & @westsurreymnda on Sunday, September 27 in the beautiful surroundings of @denbiesvineyard @ 10 AM for a very informal walk in the Surrey Hills. Choose a very short stroll or a long hike, completely up to you! Raising funds for research & care. @HelloDorking

[Mike Wilson* @Redsmail]

Coming soon in support of @DarbyRimmerMND & the Mel Evans MBE Foundation (@LynnPritchatt)

Already talking to our friends at @wellingunited @HornchurchFC & @WinFinchleyFC about being part of it. Love to talk to more of these clubs to join us in our efforts to #AttackMND

[UK MND Research Institute @UKMNDRI]

Join us for the 7th UCL Queen Square MND Centre ALS/MND International Symposium, in partnership with the UK MND RI.

📅 11 September 2026 | London & Zoom
🎟️ Free to register

Speakers from Columbia, Oxford, Max Planck and more.

Register below!

https://t.co/VSgzqs9KZp

[MND Campaigns @mndcampaigns]

Today was a big day for our community! Jessica and Sue, who are MND carers, were in the audience as Andy Burnham announced his plans for social care reform - and got to meet him in person.

His announcement and the launch of a national conversation with the public is much needed.

[David Setters @dsetters]

That's fabulous. A brilliant volunteer. Well done, Sue.

[MNDANorwichWaveney @MNDANorWave]

Susan Heal, our Interim Group Leader, Campaigns Contact and Support Volunteer won Volunteer of the Year at the South Norfolk Community Awards 2026!

The award, sponsored by Entangled Bank Events, focused on recognising a dedicated volunteer who selflessly gives their time 🧡

[Elaine @ElainepCoates]

@itvmeridian

[Lee Millard @onein300]

Following on from my optimistic review of the last decade of MND/ALS Research.

Here is the flip side. I use the dramatic term Dark Side. These are things which need to improve, and despite the critical nature I remain an optimist. #mnd #als

https://t.co/ZycTXAcUbx

[Mike Wilson* @Redsmail]

Calling all @Swinton_Lions fans. Here’s a chance to bid for a signed shirt and support the MND community through @DarbyRimmerMND and @LDShospcharity

Bid at https://t.co/mp7C7jUJf2

Shirt donated by the club as part of the recent Match of the Day III event.

[David Setters @dsetters]

Marvellous job, Ben! Greater government funding is needed for the collaborative/coordinated @UKMNDRI research programme to accelerate progress towards meaningful treatments & a cure. Let's be @united2endmnd with the amazing @LewisMoody7 & @MNDoddie5 @mndassoc @lifearc1

[My Name'5 Doddie Foundation @MNDoddie5]

To mark this year’s Global MND Awareness Day we’re proud to share Ben Lighting’s story - a powerful and honest account of living with MND, and focusing on what matters most.

Earlier this week Ben went along to meet Lewis Moody on Day 6 of Lewis' epic 500 mile cycle challenge🚲

[MND Campaigns @mndcampaigns]

Too many carers are being let down
by an NHS continuing healthcare
(CHC) process that is failing to fund
the right care for people with complex
health needs.

Join us in urging the UK government
to fix NHS CHC this #CarersWeek.

Sign our petition now: https://t.co/ZTZhVC7tRB

[David Setters @dsetters]

Huge thanks to @APPGonMND chair, @IanByrneMP for coming along to his beloved Anfield @LFC for the start of @DarbyRimmerMND #MOTD3 on Monday. Thanks for all you do to help @MNDPatients @united2endmnd in @UKParliament. @mndcampaigns @Reigatians @Redsmail