MartinrulesOK

Classical musician Post-Viral Fatige Syndrome Survivor 16 years. Recovery. Advocate for real research into ME, PVFS and CFS.

[MartinrulesOK @MPrulesOK]

@Dad81280302 What does an NHS virologist think about Dr Hyde's new book understanding ME from https://t.co/SusqbZl0RS? Is ME an enterovirus injury to the central nervous system? was the Royal Free Disease an enterovirus? He addressed Parliament on this @R_tinti

[MartinrulesOK @MPrulesOK]

@sheffieldmefm @TapanuiFlu well ME is a brain disorder not microclots. I should know I have it and my brain is on full wake cycle at present. I can hardly sleep.

[MartinrulesOK @MPrulesOK]

@sheffieldmefm @TapanuiFlu well ME is a brain disorder not microclots. I should know I have it and my brain is on full wake cycle at present. I can hardly sleep.

[MartinrulesOK @MPrulesOK]

@Fighting4M_E I've got a problem since a relapse of ME/CFS in the form of central sleep apnea I think it might be. I just called the hospital service and they are going to call back.

[MartinrulesOK @MPrulesOK]

@erikmoldwarrior @OpenMedF True, but I think anyone who has ME/CFS knows it must be a brain dysfunction and that's why it's classified as such. But yeh, you're right, no one knows still what the cause is or what is going on.

[MartinrulesOK @MPrulesOK]

@erikmoldwarrior @OpenMedF that's because ME/CFS is a brain dysfunction illness as recorded by the WHO under disorders or brain.

[MartinrulesOK @MPrulesOK]

@MchP66592467 I;ll say one thing. You have a neurological brain dysfunction and Ampligen won't cure it. I think we need brain medications to suit each individual's brain dysfunction.

[MartinrulesOK @MPrulesOK]

@MchP66592467 I;ll say one thing. You have a neurological brain dysfunction and Ampligen won't cure it. I think we need brain medications to suit each individual's brain dysfunction.

[MartinrulesOK @MPrulesOK]

@jason_isaia @erikmoldwarrior @EmergeAus @normanswan No one has ever died of ME. There is NO ME. It is the wrong name. The illness lies somewhere in the brain and how it talks to the body since symptoms wax and wane. I just had a week of tremor and jerks, and then it all went away. It wasn't anything serious yet I thought it was.

[MartinrulesOK @MPrulesOK]

@jason_isaia @erikmoldwarrior @EmergeAus @normanswan No one has ever died of ME. There is NO ME. It is the wrong name. The illness lies somewhere in the brain and how it talks to the body since symptoms wax and wane. I just had a week of tremor and jerks, and then it all went away. It wasn't anything serious yet I thought it was.

[MartinrulesOK @MPrulesOK]

@Fighting4M_E Do you get tremors too? WHat's your main symptoms?

[MartinrulesOK @MPrulesOK]

@Fighting4M_E OK I will ask him. I just had blood tests for liver and kidney function and diabetes and everything is ok.

[MartinrulesOK @MPrulesOK]

@Fighting4M_E I am seeing my doctor to see if he has any meds for tremors and sleep. Do you know any?

[MartinrulesOK @MPrulesOK]

I am currently experiencing tremors over my body and the inability to sleep properly. Anyone else get these symptoms?

[MartinrulesOK @MPrulesOK]

@Fighting4M_E Oh sorry you are experiencing that. I am currently having tremors and can't sleep at all. The closer I get to sleeping, the more tremors I get. It's weird.

[MartinrulesOK @MPrulesOK]

@Fighting4M_E WHat is a hypo? Hypothyroid you mean?

[MartinrulesOK @MPrulesOK]

@ElleBellsy @oslersweb how do you know ME is enteroviral? If that were the case, it would be big news. There are lots of non EV viruses that can cause ME.

[MartinrulesOK @MPrulesOK]

@ElleBellsy @oslersweb how do you know ME is enteroviral? If that were the case, it would be big news. There are lots of non EV viruses that can cause ME.

[MartinrulesOK @MPrulesOK]

@GemzME @oslersweb it's not only EVs that cause ME. There's quite a lot of non EVs that cause it like ross river virus etc.

[MartinrulesOK @MPrulesOK]

@oslersweb well which virus causes ME then????