Madelinenerdfighter from the @IamMADELINEpod

Yes @IamMADELINEpod is me! Media links in it's pin tweet.

I'm 43yr+ #longviral #EBV #pwME. Fighting to live but I can't do it alone! Please #DontLetMeDie

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

On Bluesky as well now https://t.co/VcLYGWd1AQ

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

Petition-My Survival
https://t.co/Zq285qB7WK
#MyalgicE/#longviral a focus, but also larger issues of #disabilitybias creating blindness to ultimate causes of #disability supports deficits & foundational solutions to address it. Cross #Canada & international signatories welcome!

[I AM MADELINE @IamMADELINEpod]

Finished *THE DOCUMENT*. Sent to Ministers & press on June 28th

Posted online
https://t.co/Od9XbueD1F

Fingers crossed it, along with the petition with 1451 sigs will precipitate the help I need to survive

#myalgicE #disability #disabilitypride #DisabilityPrideMonth #LONGCOVID

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

@renesugar Darn it all! I was just looking up celebrex and it has a contraindication if I'm allergic to sulfa drugs, which I am. At least sulfa antibiotics I turned out to be very allergic to in my teens

That's so frustrating. 😟 Is there any variant of it?

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

@renesugar That's amazing information! I just sent it over to my UBC pharmacist.

I just finally finished the document to go along with the signed petition with its 1451 signatures(4 months that took). you've been so helpful & supportive here's the link to bookmark https://t.co/XungbKyCV0

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

New captcha scam. Be safe out there. If a #captcha asks you to punch in a bunch of letters especially with some other keys don't do it! See link

https://t.co/UYct2HiLDK

[The Sick Times @thesicktimes]

Republished from @TheCanaryUK: @IamMADELINEpod is a 45-years long Epstein-Barr virus (EBV) myalgic encephalomyelitis (ME) patient fighting to survive in Canada. She writes about the Herculean effort it takes day by day for her to simply survive. https://t.co/5EKltVYGcD

[Canary @TheCanaryUK]

Our comrades over @thesicktimes re-published an account of ME from the wonderful @Madelinenerd:

https://t.co/ZAydg6FbmD

[I AM MADELINE @IamMADELINEpod]

Super grateful that the @thesicktimes republished my Canary op-ed
https://t.co/T1Tn4caR6w and the include the CTV campaign. I've been really struggling so this is a lovely bright light

#myalgicE #disability #sicktimes #Canada #longcovid

[I AM MADELINE @IamMADELINEpod]

New podcast episode pt 5: pi Day squish squash

https://t.co/YOwXhSP9nW

#piday #myalgicE #longcovid #disability #myalgicencephalomyelitis

[Darren Parkinson 🌍💚🤘 @DarrenBar88]

Today is #LongCovidAwarenessDay

Long Covid changed my life beyond recognition. I got ill. I never recovered. Lost my job. Became housebound. I rely on others to do things for me. I lie on my bed most of the day.

Watch the Guardian's short film about my life with #LongCovid 👇

[COVID-19 Longhauler Advocacy Project @C19LH_Advocacy]

It’s official!

It’s #LongCOVIDAwarenessDay!

Let’s do this!

Trend #LongCOVID #LongCOVIDAwareness

Participate in actions and events at
https://t.co/juhsTfvR4W

Share your stories.

Follow and elevate others.

Repost, like, engage.

Tag us, and others you want to engage!

[Kelly @broadwaybabyto]

It’s Long Covid Awareness Month and a good time to remind everyone that Covid is not over.

It’s still here, still disabling and still killing.

All it takes is one infection to change your life forever.

You never know when you could be disabled.

Wear a mask. Clean the air.

[I AM MADELINE @IamMADELINEpod]

New podcast episode- pt4: Friday the 13th squish squashed, The hits keep coming
https://t.co/8ixmz8ftHZ

#myalgicE #disability #canpoli #longcovid #friday13th #Fridaythe13 I choose to believe it's lucky. Usually...

[I AM MADELINE @IamMADELINEpod]

I was told that if 12 people write to a news source to ask for the same story that it will happen🤞

Template https://t.co/9SJrj0Vhj8
Full info in gfm update https://t.co/3g8CWfzuXN

#myalgicE #disability #canpoli #longcovid #friday13th #Fridaythe13 I choose/believe it's lucky

[I AM MADELINE @IamMADELINEpod]

New podcast ep- pt3: squish squash brick wall
https://t.co/8ixmz8ftHZ (Note, Silly app isn't generating the link correctly. Takes you to the podcast but not the specific episode. Just scroll to pt3. Le sigh)

#myalgicE #disability #canpoli #chronicpain #meaction

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

I suspect that this problem is more pervasive than one journal. As an editor, reviewer and author, I have come across academic dishonesty, plagiarism, favoritism, biases and misrepresentation of my own work in other people's papers. Just recently, I had two instances of authors citing my papers to support statements that they made that say the opposite of what my papers have said. When I tried to correct the error, the editor simply rejected my letter. Through this rejection, the editor didn't allow the authors an opportunity to correct their mistake. The scientific review process is broken!
The rejected letter is linked below:
https://t.co/LuA9ETYu7k

[#MEAction Network @MEActNet]

This is your reminder to stop a moment & take care of you. So let's breathe together & take a moment to be kind to ourselves.

If the 3 steps feel too much to do- just take 3 deep breaths & say something kind to yourself. Be as encouraging to yourself as you would to a friend.

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

I'm approved for maid on quality of life due only to lack of #disability supports. BUT I continue to fight
A critical need is Liaising bodies. I proposed this in June 2026 #BCbudget & petition to my MLA, premier @Dave_Eby

Links to both in my recent op-ed https://t.co/EYgUHHfEIM

[Jess ꩜ @BlueLotusBlunts]

@unMaskedRogue @hangryarchivist In an interview I was asked “do you think your mask will get in the way of work?” I’m not kidding. I said “no I think it’s the opposite. I think wearing this will keep me healthier so I’ll miss less work days from sickness” and he didn’t make eye contact after that lol

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

@BurgerKing NO👇

[Madelinenerdfighter from the @IamMADELINEpod @Madelinenerd]

It saves the system absolutely massive, I mean truly truly massive amounts of money. Bias and logic have nothing to do with each other. Not fiscal, not human rights not medical logic. But unless and until the larger population is educated on this, & that's not going to happen 👇