MainEvent

MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness.

[MainEvent @MainEvent24]

Next MAIN Event Webinar:
Friday 17th Jan @ 12:30 to 2pm

"Crisis Prevention not Crisis Management: the health and wellbeing of parents and children with life-limiting conditions"

With @lornafraser10 and @victoriaefisher

Register here for free:
https://t.co/wpVrk9LhAx

[Anne Finucane @A_Finucane]

New: estimates of population-level palliative care need in the UK 2017-2021

https://t.co/G6onChV0Qi

[MainEvent @MainEvent24]

Next MAIN webinar: 24 Sept 2024 at 12.30-2pm BST
Acceptance and Commitment Therapy (ACT) for people with Motor Neurone Disease

With Prof Rebecca Gould (UCL)
Funded by @MarieCurieEOLC
All Welcome

Register for free here:
https://t.co/aiKKFqq1Sd

[MainEvent @MainEvent24]

@steph_therapy Yes, we have recorded it and will share It with main members and attendees. Thanks for coming along!

[MainEvent @MainEvent24]

Still time to register to join our webinar on Monday 17th June! With Prof Gary Rodin…

[MainEvent @MainEvent24]

Next MAIN Webinar: 17.06.24 @ 1pm BST
Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease.

With Prof. Gary Rodin (@gary_rodin).
Funded by @MarieCurieEOLC
All welcome.

Register here: https://t.co/7nz6s1foyj

[Anne Finucane @A_Finucane]

Review finds that most psychological interventions for people receiving palliative care are effective in reducing negative emotions including depression, anxiety and distress; & can improve hope, meaning and dignity.

https://t.co/LtnkPupx1T

Need for implementation studies next!

[MainEvent @MainEvent24]

@AngusGrant_ @APMJuniors Don't underestimate the importance of psychological and spiritual concerns. And feel free to come along to one of our free webinars on such topics! The next one is here:
https://t.co/7nz6s1foyj

[MainEvent @MainEvent24]

Next MAIN Webinar: 17.06.24 @ 1pm BST
Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease.

With Prof. Gary Rodin (@gary_rodin).
Funded by @MarieCurieEOLC
All welcome.

Register here: https://t.co/7nz6s1foyj

[Jonathan Koffman @JonathanKoffman]

@JonathanKoffman @SimonNoahEtkind
@libby_sallnow @larapivodic
@a_samuels_ planning exciting study exploring how #religion & #spirituality help people when faced with #uncertainty from long-term or life-threatening illness. Go to https://t.co/7epeLktIMU to share views. Thanks!

[MainEvent @MainEvent24]

Lancet editorial on the COMMEND trial: ACT improves quality of life in people with MND: https://t.co/1C9aKkuyDz

And the COMMEND trial paper itself: https://t.co/dJwLCakxZ8

[Marie Curie EOLC @MarieCurieEOLC]

This Mental Health Awareness Week, we're reflecting on the mental health needs of people living with a terminal illness and those that support them in a new blog. Our researchers talk about different therapeutic approaches, and what support is needed:
https://t.co/SeLwGxCcCU

[MainEvent @MainEvent24]

BBC Breakfast this morning - forward to 1hr 35 - psychological support for people with MND - new research (only available for 24 hours) https://t.co/W65bpaufCx

[Miriam Ní Challaráin 😷 @Miriamcolleran2]

This is such a great idea & central to whole person care for people with serious life-limiting illnesses

@LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/

[MainEvent @MainEvent24]

Register for free here: https://t.co/UsdFEqUQkS

[MainEvent @MainEvent24]

We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC

https://t.co/uXYtstsUCn

[MainEvent @MainEvent24]

Join us for our next MAIN event

"Family centered approaches to improving wellbeing in advanced illness and at end of life".

With @LizForbat @LissetteAvilesR & Louise Allen. Tues 14th May at 12 noon (BST). All welcome!

Hosted by @EdinUniHealth. Funded by @mariecurieuk.

[Sue Mitchell @SueRFDMHaSS]

Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: https://t.co/RGap3XUixg

[John MacArtney @johnmacartney]

Do you use the term "loved ones" as a general term?

Ever wondered what it means or how it might be understood?

@KateWoodyBath and I did: https://t.co/zTAD2jLHPg

Tl:dr Emphasising "love" misses the diversity of reasons people care for each other

@EndofLifeStudy

[Dr Joseph McCollom DO @realbowtiedoc]

As oncologists we struggle with how we can have realistic conversations about the future while preserving hope. Dr @SchenkerYael and her colleagues show that having end of life conversations with patients did not compromise hope via the CONNECT study #pallonc #supponc

[Anne Finucane @A_Finucane]

@MainEvent24 webinar, 12.03.24, 12 noon GMT:
"Mental health, the social determinants of dying and trauma-informed palliative care."

With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_

All welcome. Register for free here:
https://t.co/sMcBVgnmQk

Funded by @MarieCurieEOLC

[Anne Finucane @A_Finucane]

New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support.

Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC