John MacArtney

Marie Curie Associate Professor
Sociologist of dying, palliative and end-of-life care, and bereavement.

[John MacArtney @johnmacartney]

Important new paper looking at the Covid-19 emergency public health period and its effects on hospice palliative care in @socscimed

@abiccles @KathrynAlmack @CattyRM @cathgrimley2

https://t.co/tHVA3WqTkY

#PEOLC #Hospices #covid19
🧵
1/

[NES Bereavement @NES_Bereavement]

📣New #NESBereavementPodcast out now.

@katewoodybath and @johnmacartney discuss the sociological perspectives of death, dying & bereavement and consider the phrase ‘loved ones’ - is it an appropriate catch-all or a problematic phrase?

Listen: https://t.co/pvr9pwMBtJ

[Marie Curie EOLC @MarieCurieEOLC]

How can social science and humanities help us “to know dying”?

This week, Marie Curie, the @LindAlliance and partners, including cofunders the @ESRC and @MND Association launched a refreshed list of priorities for palliative and end of life care research.
Researchers at the @OpenUniversity @openthanatology, @uniofwarwick and @UCLPsychiatry /Marie Curie took on the task of bringing together researchers from diverse disciplines to identify five research areas for social sciences and humanities, based on the questions generated through the priority setting process.

These research areas were:
Experience, practice and education
Awareness, communication and planning
Power, ethics and transitions
Time, space and care
Diversity, equity and society

Each of these areas is explored and expanded upon in the To Know Dying report. The report outlines how a range of disciplinary approaches, including social sciences and humanities, are required to address the complex, multifaceted issues in palliative and end of life care.

[Dr Vera Kubenz 🇵🇸 she/they @Vera_Kub]

I am giving a talk on three key moments in the UK disability rights movement for #DisabilityHistoryMonth at @unibirmingham
Wed 11th Dec, 12-1pm, hybrid (with online captions), free, and open to all!
https://t.co/tenP0sUcmQ
#DisabilityTwitter @CoSS_Birmingham @artsatbham

[Matt Green @mattgreencomedy]

Don't Mention It!

[John MacArtney @johnmacartney]

@PrognosticChats And the problem of covid's effects on quality of life continues into palliative care: https://t.co/Bu8QBgBnJA

[John MacArtney @johnmacartney]

Does palliative care have a problem with…“the c-word”?

My blog on @BMJ_SPCare

https://t.co/ycndofIv4n

[Dr Sabine Best @sabinebest]

We are looking for a 0.5FTE permanent Senior Research Governance Manager to manage and oversee research governance for research carried out in @MarieCurieEOLC services and linking in with others in the sector. Please disseminate to your networks. https://t.co/3Ftf8Wyb7L

[Sarah_Stan @Sarah_Stan_]

We only went and won it!!!!!!!!!! 💛🥳💛
#NTAwards #ReserachNurses @NursingTimes @NIHRresearch
@MarieCurieEOLC @mariecurieuk @KPatynowska @hilarynailon @rachelperry72 @DrEmmaCarduff @katemaitland

[Dr Amir Khan GP @DrAmirKhanGP]

@SafeAirSchoolUK @lorraine @GMB Here’s the clip x

[John MacArtney @johnmacartney]

This is such an important point, which I think many in palliative care are struggling to recognise, never mind address: https://t.co/Bu8QBgBVz8

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Current guidance for immune suppressed people is to:

↔️Ask visitors to keep their distance.
📥Take a lateral flow test
😷Ask them to wear a face covering
😷You may want to wear a face covering yourself

Cathy flags the juxtaposition of this advice with risks in healthcare.
14/

[John MacArtney @johnmacartney]

@ELHopkins @DrFrancesRyan Trying to rise awareness with this blog: https://t.co/Bu8QBgBVz8

[John MacArtney @johnmacartney]

Does palliative care have a problem with…“the c-word”?

My blog on @BMJ_SPCare

https://t.co/ycndofIv4n

[John MacArtney @johnmacartney]

@ELHopkins @DrFrancesRyan Indeed! Recently published this on hospice palliative care staff struggles with a "living with covid" approach to quality of life left:
https://t.co/3fdPkaaNTt

[John MacArtney @johnmacartney]

🚨New paper!🚨
tl;dr Hospice staff are uncertain how a “living with covid” approach helps promote quality of life left, but find it difficult to address as covid mitigations are strongly associated with negative emotions of the emergency period.
https://t.co/ajkBdiW9cU
1/🧵

[John MacArtney @johnmacartney]

For more: https://t.co/3fdPkaaNTt

[John MacArtney @johnmacartney]

🚨New paper!🚨
tl;dr Hospice staff are uncertain how a “living with covid” approach helps promote quality of life left, but find it difficult to address as covid mitigations are strongly associated with negative emotions of the emergency period.
https://t.co/ajkBdiW9cU
1/🧵

[John MacArtney @johnmacartney]

Does palliative care have a problem with…“the c-word”?

My blog on @BMJ_SPCare

https://t.co/ycndofIv4n

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

CVFs "wishlist"

None of this is happening currently, although patients sometimes ask for staff to mask

*See a mask, wear a mask*

would be much simpler than self-advocacy.

16/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

There is no testing in healthcare.

This is a problem for Clinically Vulnerable people who are "high users of healthcare".

CVF advocates for #MasksInHealthcare.

15/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Current guidance for immune suppressed people is to:

↔️Ask visitors to keep their distance.
📥Take a lateral flow test
😷Ask them to wear a face covering
😷You may want to wear a face covering yourself

Cathy flags the juxtaposition of this advice with risks in healthcare.
14/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Yet not all of CVFs members have the ability to delay or cancel appointments due to their serious health conditions.

Or they can delay some things to avoid Covid peaks, but not others.

13/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

Removing mitigations from healthcare settings has a disproportionate impact on those who carry the greatest risk, although all within healthcare will have higher risks as they are generally a more vulnerable population.

12/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

The removal of masks in healthcare has has a direct impact on the health of Clinically Vulnerable people who have increasingly had to delay or cancel their appointments due to high Covid risks.

11/

[Clinically Vulnerable Families 💙💜💗 @cv_cev]

#MasksInHealthcare

CVF members who wore good quality (FFP2/ FFP3) masks were told to remove them by staff who may have been poorly informed.

10/