New paper, Advocacy in Action: Intl Patient Group Improves HAE Diagnosis & Care Across Asia–Pacific shows patient groups significantly enhance medication availability & improve HAE diagnosis, esp in region countries classified as emerging economies: https://t.co/Hk5V9fmw02
Columnist Danita LaShelle Jones has too often found herself in the "One-Up" Olympics when others try to compete about care and symptoms. https://t.co/QjHpd5MzGZ #Angioedema#AngioedemaAwareness#AngioedemaFighter
Register for our Fast-Track Training! 📢
Gain in-depth knowledge about Health Technology Assessment (#HTA), the EU HTA regulation, and your role as a patient representative.
🗓️ Upcoming dates: 21/01/2025 & 04/02/2025
👉 Register here: https://t.co/NDUHoxHSfx
Living with and managing a swelling disorder can take focus away from other aspects of life, like relationships. How do you juggle it all?
#Angioedema#AngioedemaAwareness#RareDisease
A survey study found similar difficulties in managing and recovering from acute HAE attacks with preventive versus on-demand medications. https://t.co/dTc9Ip7zr9 #Angioedema#AngioedemaAwareness#AngioedemaFighter
From 3 to 6 Oct, around 750 HAE advocacy board members/leaders, physicians/scientists, and industry representatives from 90 countries met in Copenhagen for the 2024 HAEi Global Leadership Workshop and the ACARE Global Angioedema Forum 2024.
Read more here: https://t.co/IXI9QlQ4Zh
#WAOJournal: Is there a difference between women and men in #chronic#spontaneous#urticaria? A systematic review on gender and sex differences in #CSU patients. Open Access. https://t.co/jEv2t6RtDn