Maria Beekman

I have HAE…. What is your superpower? President HAE the Netherlands. Patient advocate. #HAE #hereditaryangioedema

[Maria Beekman @Maria_HAE_]

@realtwitcourt Heel veel sterkte!!

[Maria Beekman @Maria_HAE_]

@Brech1978 Sterkte!!

[Maria Beekman @Maria_HAE_]

@RWSverkeersinfo Dank voor je reactie! Gelukkig geen schade aan de tunnel

[Maria Beekman @Maria_HAE_]

@RWSverkeersinfo wat is er aan de hand bij de schipholtunnel richting Amsterdam? We staan al een minuut of 2
10 voor een rood stoplicht

[Maria Beekman @Maria_HAE_]

Aanwezig namens de Vereniging voor Angio-oedeem bij het nationaal event zeldzame ziektendag #zzd25 #HAE #hereditaryangioedema

[Angioedema News @AngioedemaNews]

What role does factor XII play in each type of HAE? An expert breaks it down. Tune in now: https://t.co/ppwGxQ8x6M

#HereditaryAngioedema #HAE #HAEAwareness #LivingWithHAE #HAECare

[Maria Beekman @Maria_HAE_]

@daantjeRdam En vaders jankt vrolijk mee. Hechte familiebanden prima, maar dit is toxic

[HAE International (HAEi) @HAEDAY]

New paper, Advocacy in Action: Intl Patient Group Improves HAE Diagnosis & Care Across Asia–Pacific shows patient groups significantly enhance medication availability & improve HAE diagnosis, esp in region countries classified as emerging economies: https://t.co/Hk5V9fmw02

[Angioedema News @AngioedemaNews]

Columnist Danita LaShelle Jones has too often found herself in the "One-Up" Olympics when others try to compete about care and symptoms. https://t.co/QjHpd5MzGZ #Angioedema #AngioedemaAwareness #AngioedemaFighter

[NOS @NOS]

Blauwe bessen Albert Heijn mogelijk besmet met hepatitis A https://t.co/4BmIDoEGM8

[Angioedema News @AngioedemaNews]

Here is this week's most read article featured on our #AngioedemaNews website! Are you caught up? https://t.co/DwxnyDUvuP

#HereditaryAngioedema #HAE #HAEA #HereditaryAngioedemaAwareness

[EUCAPA @eucapa4health]

Register for our Fast-Track Training! 📢

Gain in-depth knowledge about Health Technology Assessment (#HTA), the EU HTA regulation, and your role as a patient representative.

🗓️ Upcoming dates: 21/01/2025 & 04/02/2025
👉 Register here: https://t.co/NDUHoxHSfx

[Angioedema News @AngioedemaNews]

Living with and managing a swelling disorder can take focus away from other aspects of life, like relationships. How do you juggle it all?

#Angioedema #AngioedemaAwareness #RareDisease

[Maria Beekman @Maria_HAE_]

@daantjeRdam Zo komen we de saaie, donkere maanden wel door.

[Maria Beekman @Maria_HAE_]

@daantjeRdam Wat heerlijk! Daar knapt een mens van op hè?!

[Angioedema News @AngioedemaNews]

A survey study found similar difficulties in managing and recovering from acute HAE attacks with preventive versus on-demand medications. https://t.co/dTc9Ip7zr9 #Angioedema #AngioedemaAwareness #AngioedemaFighter

[HAE International (HAEi) @HAEDAY]

From 3 to 6 Oct, around 750 HAE advocacy board members/leaders, physicians/scientists, and industry representatives from 90 countries met in Copenhagen for the 2024 HAEi Global Leadership Workshop and the ACARE Global Angioedema Forum 2024.
Read more here: https://t.co/IXI9QlQ4Zh

[Remco Breuker @koryoinleiden]

"Bezuinigen op geesteswetenschappen is kortzichtig" https://t.co/HXzIwp6HvF

[Angioedema News @AngioedemaNews]

Confused about how HAE is inherited? We break it down here: https://t.co/kmP7sQgnVG

#HereditaryAngioedema #HAEA #HAEAwareness #HereditaryAngioedemaAwareness

[World Allergy Organization @worldallergy]

#WAOJournal: Is there a difference between women and men in #chronic #spontaneous #urticaria? A systematic review on gender and sex differences in #CSU patients. Open Access. https://t.co/jEv2t6RtDn