@BritishGas been trying to call for 2 days after receiving a letter asking me to get in touch. Each time phone line says you cant take the call@and disconnects!!!
@BritishGas i received a letter asking me to call which ive been tried to yesterday and today but each time your phoneline says it cant take the call and disconnects !!!
@Etsy i have been trying to contact you for weeks and keep getting no or very unhelpful responses!! I no longer have access to the email address I registered my shop with and so cannot get in on desktop or app and im concerned people are making purchases and i have no clue!!
Hi @Journo_MaryamQ would you be interested in my story of becoming a millennial caregiver 2 years into my marriage and whilst pregnant when my husband was diagnosed with MS?
@guinness_emma@btq_kate Hi Emma, would you be interested in my story of becoming a millennial caregiver 2 years into my marriage and whilst pregnant when my husband was diagnosed with MS?
#MSmakesme DETERMINED
Determined to be the best wife I can be, determined to be a voice for family caregivers, determined to be a good ally, determined to support research into finding a cure for MS, determined to trust Jesus through it all!
#MSAwarenessWeek#carerssupport
#msmakesme TIRED of being tired, the constant change in symptoms, differing triggers, fatigue,people thinking i’m drunk,not being able to be there as I should for my loved ones,not earning what I used to,being told to pray because I do EVERY day,brain fog,weakness…I’m tired!
#MSmakesme FRUSTRATED about what it has stolen, frustrated about what Nik can no longer do, frustrated about all that I now have to do, frustrated about seeming selfish, frustrated about being frustrated...
#carerssupport#msawareness#msawarenessweek
#MSAWARENESSWEEK#msmakesme ANXIOUS - the unpredictability of MS means I could wake up & not have my vision or no feeling in my legs.
It's this not knowing what could happen day to day, which causes anxiety.
#MSAWARENESSWEEK I believe it's important to speak from a carers point of view
#MSmakesme FEEL USELESS-When Nik is having a bad day, it feels like nothing that I do will be enough. MS is debilitating and unpredictable & it can often feel like we're fighting a losing battle.
#MSAWARENESSWEEK#MSmakesme DISORIENTED - My eyes see differently to each other so my brain has a lot of difficulty working out what i'm trying to focus on.
As a result I can become very disoriented and this amplifies the balance issues, fatigue and other symptoms.
I suffer a lot with brain fog and have to find ways to navigate this e.g. using notes or by setting timers on my Apple watch.
Are you affected by brain fog and how do you manage day to day?
#brainfog#memoryloss#mssymptoms#msconversations#marriageandms