Marriage and MS

A married couple navigating the world of Multiple Sclerosis 🧡 Raising awareness of black men living with MS 🧍🏿‍♂️

[Marriage and MS @MarriageandMS]

We are a UK based married couple. Two years into our marriage, Nikoma was diagnosed with MS, and our lives were changed forever. Now we share our story to educate & raise awareness of MS among black men #marriageandms #blackwithms #chronicillness #livingwithms #msblackcommunity

[Marriage and MS @MarriageandMS]

@BritishGas been trying to call for 2 days after receiving a letter asking me to get in touch. Each time phone line says you cant take the call@and disconnects!!!

[Marriage and MS @MarriageandMS]

@BritishGas i received a letter asking me to call which ive been tried to yesterday and today but each time your phoneline says it cant take the call and disconnects !!!

[Marriage and MS @MarriageandMS]

@Etsy Done!

[Marriage and MS @MarriageandMS]

@Etsy i have been trying to contact you for weeks and keep getting no or very unhelpful responses!! I no longer have access to the email address I registered my shop with and so cannot get in on desktop or app and im concerned people are making purchases and i have no clue!!

[Marriage and MS @MarriageandMS]

@HealthwatchSwin

[Marriage and MS @MarriageandMS]

Hi @Journo_MaryamQ would you be interested in my story of becoming a millennial caregiver 2 years into my marriage and whilst pregnant when my husband was diagnosed with MS?

[Marriage and MS @MarriageandMS]

@guinness_emma @btq_kate Hi Emma, would you be interested in my story of becoming a millennial caregiver 2 years into my marriage and whilst pregnant when my husband was diagnosed with MS?

[Marriage and MS @MarriageandMS]

#JournoRequest
Looking for journalists who want stories for carers week 5th-11th June
#carersweek #chronicillness #MultipleSclerosis

[Marriage and MS @MarriageandMS]

#MSmakesme HOPEFUL

Hopeful that one day MS will be a thing of the past🙏🏾🧡

#msawarenessweek #mssupport #msconversations #marriageandms

[Marriage and MS @MarriageandMS]

#MSmakesme DETERMINED

Determined to be the best wife I can be, determined to be a voice for family caregivers, determined to be a good ally, determined to support research into finding a cure for MS, determined to trust Jesus through it all!

#MSAwarenessWeek #carerssupport

[Marriage and MS @MarriageandMS]

#msmakesme TIRED of being tired, the constant change in symptoms, differing triggers, fatigue,people thinking i’m drunk,not being able to be there as I should for my loved ones,not earning what I used to,being told to pray because I do EVERY day,brain fog,weakness…I’m tired!

[Marriage and MS @MarriageandMS]

@Laurenlondoner 😔🧡

[Marriage and MS @MarriageandMS]

#MSmakesme FRUSTRATED about what it has stolen, frustrated about what Nik can no longer do, frustrated about all that I now have to do, frustrated about seeming selfish, frustrated about being frustrated...

#carerssupport #msawareness #msawarenessweek

[Marriage and MS @MarriageandMS]

#MSAWARENESSWEEK

#msmakesme ANXIOUS - the unpredictability of MS means I could wake up & not have my vision or no feeling in my legs.

It's this not knowing what could happen day to day, which causes anxiety.

[Marriage and MS @MarriageandMS]

#MSAWARENESSWEEK I believe it's important to speak from a carers point of view

#MSmakesme FEEL USELESS-When Nik is having a bad day, it feels like nothing that I do will be enough. MS is debilitating and unpredictable & it can often feel like we're fighting a losing battle.

[Marriage and MS @MarriageandMS]

#MSAWARENESSWEEK

#MSmakesme DISORIENTED - My eyes see differently to each other so my brain has a lot of difficulty working out what i'm trying to focus on.

As a result I can become very disoriented and this amplifies the balance issues, fatigue and other symptoms.

[Marriage and MS @MarriageandMS]

I suffer a lot with brain fog and have to find ways to navigate this e.g. using notes or by setting timers on my Apple watch.

Are you affected by brain fog and how do you manage day to day?

#brainfog #memoryloss #mssymptoms #msconversations #marriageandms

[Marriage and MS @MarriageandMS]

#positivevibes #marriageandms #mswhileblack #blackwithms #mswarriors #makinglovelast #marriagetips #strongertogether #multiplesclerosis #msawareness #instaquote

[Marriage and MS @MarriageandMS]

#positivevibes #marriageandms #mswhileblack #blackwithms #mswarriors #makinglovelast #marriagetips #strongertogether #multiplesclerosis #msawareness #instaquote

[Marriage and MS @MarriageandMS]

@Sleigh_J Awesome book and so helpful!! 🧡