Mary Dwight

SVP of policy and advocacy @CF_Foundation. Tweets are my own. Get involved and sign up for #CFadvocacy action alerts!

[Cystic Fibrosis Foundation @CF_Foundation]

@mary @CIDRAP @MaryDwight Listen now: https://t.co/bxQUFwgrEn

[Cystic Fibrosis Foundation @CF_Foundation]

@mary @CIDRAP During the episode, @MaryDwight also discussed why policy solutions like the PASTEUR Act are crucial in bringing new antibiotic options into the hands of patients and urged its passage immediately. #CFAdvocacy

[Gregory Sawicki MD MPH 👨‍⚕️🌈 @GregSawickiMD]

Important symposium highlighting the high cost of CF care and discussing strategies to address these costs! @RyanPerkins211 @CF_Foundation #nacfc2023

[Cystic Fibrosis Foundation @CF_Foundation]

#OpenEnrollment is here! Beat the rush and connect with Compass today to compare available insurance plans side-by-side so you can make an informed decision. https://t.co/1nNdxoc5R0

[Dr Meghan McGarry @DrMeghanMcGarry]

A record number of Heath Equity and Access sessions at NACFC this year!

[Cystic Fibrosis Foundation @CF_Foundation]

As part of our ongoing commitment to advance equity, racial justice, diversity, and inclusion, the Foundation’s External Racial Justice Working Group has finalized recommendations to help guide our work to foster a more inclusive community. https://t.co/3PBiPsnt0O

[Gunnar Esiason @G17Esiason]

Hard to understate how big this is for patients. I recently switched to a health plan WITHOUT a copay adjustment program (eg. Accumulator). I filled three specialty medicines and my deductible and OOP max were met in a week.

@CF_Foundation Compass proved to be a huge help.

[Cystic Fibrosis Foundation @CF_Foundation]

As part of our work to address discrepancies in #newbornscreening, we award Screening Improvement Awards to researchers to improve the newborn screening system in their state.

Since 2011, we have funded more than $2.5 million across 35 awards. https://t.co/QZKchoMicL

[Cystic Fibrosis Foundation @CF_Foundation]

Thank you, @RepMcGovern for your leadership and the dedication you show for all people with cystic fibrosis. We must #PassPASTEUR to address antimicrobial resistance and bring effective options into the hands of those who need them most.

[Rep. Jim McGovern @RepMcGovern]

As co-chair of the bipartisan, bicameral Cystic Fibrosis Caucus, it was an honor to welcome @RobGronkowski to the Valley Fever Task Force briefing on antimicrobial resistance.

Glad to do the important work of raising awareness about these rare diseases with a former Patriot!

[Cystic Fibrosis Foundation @CF_Foundation]

Today, we, along with our coalition partners, are urging Congress to take immediate action and #PassPASTEUR, legislation key to fighting the public health crisis of antimicrobial resistance and protecting Americans from deadly superbugs. #CFAdvocacy https://t.co/daZ8oes3yP

[Save Antibiotics @saveantibiotics]

“We really are in a pandemic of ineffective #antibiotics,” @CF_Foundation’s @MaryDwight says. https://t.co/1PY9h0yrk0

[Save Antibiotics @saveantibiotics]

"Innovators have no way to earn a return on their investment, which makes it difficult to attract investment," @IDSAInfo’s Amanda Jezek says of the broken #antibiotics market. The #PASTEURAct would help change that. https://t.co/bH8QGpFnwL

[Cystic Fibrosis Foundation @CF_Foundation]

We’re proud to have Melanie Lawrence, an adult with CF, testify at today’s Senate HELP subcommittee hearing on “Superbugs: The Impact of Antimicrobial Resistance on Modern Medicine.” Watch live at 10 a.m. ET. #CFAdvocacy https://t.co/2jEY2OXdhS

[Cystic Fibrosis Foundation @CF_Foundation]

Kim Reno, senior manager of health systems innovation and navigation, discusses how food insecurity can be a particular problem for people with cystic fibrosis. We have made great progress to address food insecurity in the CF community, but there’s a lot left to do.

[Cystic Fibrosis Foundation @CF_Foundation]

We’re calling on Congress to centralize discussions on PBM reform around the patient experience.

While we thank Congress for the work done to address the harm caused by PBMs, further steps won’t be successful without considering the patient voice.  https://t.co/3SSJcjybe2

[Dr Meghan McGarry @DrMeghanMcGarry]

If you’re having trouble paying for Trikafta, please contact @CF_Foundation Compass https://t.co/LLMk3kLeDx

[Congressman Drew Ferguson @RepDrewFerguson]

The incidence of antibiotic resistant infections are endangering more lives by the day.

The #PASTEURAct is a strategic investment that brings together the public & private sectors to develop strong & effective antibiotics.

Congress must act!

https://t.co/wuGomws1Pa

[Lucy C. Dagneau @thelucygoose]

NEW: 23 patient advocacy orgs are concerned by coverage losses in Arkansas, especially the high % of procedural denials. @ACSCAN

The Sanders administration must evaluate why so many Arkansans are not making it through the process. https://t.co/RGQnxQeScp

[Cystic Fibrosis Foundation @CF_Foundation]

As states redetermine eligibility, it’s important to check on your Medicaid status and ensure that your info is up to date. Connect with Compass to learn how to protect your status. https://t.co/2Ef7jdJMlq