Mary Richards

Mother of boys, often discombobulated. Even more so having been slashed-poisoned-burned #BusyLivingWithMets #DrugAccess #IFHC #DyingForACure

[Mary Richards @MaryERichards]

Talk about being in the thick of it:
@2ndary1st #PeterCapaldi @breastcancernow @BCNowPress #secondary1st #SBCAD #BCAM #MetastaticBC #research It’s just what the Dr. ordered; and what we need much more of. Grateful 🙏🙏🙏 to #GuysHospital #Scientists

[Jo Taylor BEM @abcdiagnosis]

Thanks for sharing this @bccww 👌🏼

Exactly why I created @METUPUKorg to keep the pressure on #SecondaryBreastCancer #bccww #BusyLivingWithMets

[Jo Taylor BEM @abcdiagnosis]

The detail to take not of here “previously pre treated advanced disease” ie 1st line only...

@METUPUKorg #secondarybreastcancer #bccww #bcsm

[Secondary First @2ndary1st]

A huge congrats, and massive thank you, to the 21 friends/family of Jackie Kinsella who conquered the 24 mile, three mountain trek that is the Yorkshire 3 Peaks Challenge in aid of Secondary1st....in just 11hours 40mins!! #fundraiser #secondarybreastcancer
https://t.co/O4DUfmWMco

[Pleasure Dome TC @PleasureDomeTC]

We've got that #FridayFeeling as we start counting down the weeks till the start of rehearsals. #theatre #Exmoor #drama #openairtheatre #LornaDoone150 #romance #ValleyofRocks #divein #soexcited #theatreinthewild

[Emma Robertson @little_emmabird]

Yup. @abcdiagnosis has been banging on about this for nearly a decade. What will it take for people to listen to those of us who weren’t “cured”...?!!!

[Mary Richards @MaryERichards]

@mazzy_mcfly @abcdiagnosis @macmillancancer If you want research @2ndary1st donate direct to #SecondaryBreastCancer with only 5% going to costs. No salaries, all monies possible direct to research #BusyLivingWithMets

[Jo Taylor BEM @abcdiagnosis]

Hi @HelenGrantMP thanks 🙏🏼
Clare one of the ladies is a friend of mine & asked her to take our objectives to the meeting. I am the founder of @METUPUKorg & would be good to connect. Many issues that need addressing

@breastcancernow @APPGBC
#SecondaryBreastCancer #drugaccess

[Jo Taylor BEM @abcdiagnosis]

@Cheryl_Cruwys @craig4nwarks @MattHancock @NicDakinMP But we need #secondarybreastcancer at the top of the political agenda - women & men are DYING of this disease 11500 every YEAR & no prevention campaign will save them - #drugaccess will - no one dies of primary BC

Craig - Matt - Nic - we need to talk @METUPUKorg

[Mary Richards @MaryERichards]

. @2ndary1st @secondhopeorg @Make2ndsCount @breastcancernow @blandsteve @BCNowPress @delythjmorgan #secondarybreastcancer must be the political focus. No primary awareness raising is stopping us dying! #BusyLivingWithMets #DrugAccess

[Jo Taylor BEM @abcdiagnosis]

@Cheryl_Cruwys @craig4nwarks @MattHancock @NicDakinMP But we need #secondarybreastcancer at the top of the political agenda - women & men are DYING of this disease 11500 every YEAR & no prevention campaign will save them - #drugaccess will - no one dies of primary BC

Craig - Matt - Nic - we need to talk @METUPUKorg

[Mary Richards @MaryERichards]

@mazzy_mcfly @abcdiagnosis @macmillancancer If you want research @2ndary1st donate direct to #SecondaryBreastCancer with only 5% going to costs. No salaries, all monies possible direct to research #BusyLivingWithMets

[Lesley Stephen @LesleycStephen]

A phase 1 trial saved my life almost 4 years ago, and I’m still on it. More metastatic breast cancer patients need to offered trials - or seek them out

[Mary Richards @MaryERichards]

@LesleycStephen What trial was it Lesley? Did it reduce liver mets?

[Jo Taylor BEM @abcdiagnosis]

I’m annoyed.

I’m annoyed that it’s left to a group of dying patients to push change where we are being let down by key organizations that should be doing this & helping us

Not even just pushing for change

we are LEADING the change

Time for change & accountability

@METUPUKorg

[Jo Taylor BEM @abcdiagnosis]

Here is the link below to the fantastic #abcdretreat that I provide for primary #breastcancer and #secondarybreastcancer people for "motivation & #exercise through recovery and beyond" Please share this with others who would like to attend
#BCCWW

https://t.co/hUgbmFcgaC

[Jo Taylor BEM @abcdiagnosis]

Dear #cancerresearch

Thank you for developing drugs - we (#secondarybreastcancer patients) need them urgently..

But your research is a far cry from what my friends are experiencing - early death because the computer says no

There seems a huge chasm between research & reality👇🏼

[Kit D 💎😷🇺🇦 #BusyLivingWithMets @Diamondtrees11]

I have #SecondaryBreastCancer. Like too many UK #cancer patients I struggle to access the best treatments on the #NHS.

I was recently asked why I don't have private medical insurance to pay for #DrugAccess. This blog is my response.

#BusyLivingWithMets

https://t.co/plM99kFfzY

[Jo Taylor BEM @abcdiagnosis]

This is an inadequate rigid system that is happening all across the country it seems - what about helping patients to live & survive longer? Has this been lost in the arguments of funding? @breastcancernow @uk_oncologist

[Mary Richards @MaryERichards]

@DrRachelEyre @abcdiagnosis @METUPUKorg @breastcancernow @Hazelleyes @miarosenblatt2 It’s an insane situation. Much more funding from the three #SecondaryBreastCancer charities @2ndary1st @secondhopeorg @Make2ndsCount is finally going direct to SBC #research Thank goodness they launched or we’d really have no hope #BusyLivingWithMets #DrugAccess

[Rachel Eyre @DrRachelEyre]

@abcdiagnosis @METUPUKorg @breastcancernow @Hazelleyes @miarosenblatt2 Research is far, far too slow. It hurts us researchers too, we want to be researching, not fighting to stay employed all the time.