Pod is live!
https://t.co/jjgvpYz3QT
Every Wednesday join @SkyYaldaHakim and me as we report from the frontlines, and try to make sense of this crazy world we live in.
Take a listen!
my favorite article of the week. for those who struggle to communicate, art can be an especially powerful and liberating means of expression. GO SFMOMA! https://t.co/ajRrssohZt
Our son Henry attended a special education school in the UK. His teaching assistants were paramount to his safety & enjoyment at school. He lit up when I would mention their names. They made his life happier by being in it. They are indispensable & deserve a fair wage.
Family of Hamas hostage says he's there, at the Sabbath table, in their hearts. By @RichardEngel@mhadleysmith@GabeJoselow & Corky Siemaszko
https://t.co/Rz6KOVvJ4A
The first paper to be published documenting research that was done using our late son Henry’s cells. We are grateful to Dr. Huda Zoghbi and her entire lab and the team @UCBerkeley for their ongoing work to find treatments for Rett Syndrome. This is Henry’s legacy. @RichardEngel
Today, @TayshaGTx announced that a 2nd adult patient has been dosed with TSHA-102 in their trial of the gene therapy with a 3rd adult patient and complete enrollment by year-end. The 1st pediatric patient in the U.S. trial in Q12024. More info: https://t.co/OVAJKtIPRh
Tonight I spotted @wsj reporter @willmauldin in Kyiv covering the @SecBlinken visit and wearing a Free Evan button. Evan Gershkovich continues to be held by Russia, arrested while doing his job. For more information on Evan: https://t.co/Sl9W9KWkT5
Exciting news. Getting closer to a time when people don’t have to have to struggle with Rett Syndrome. Lots of gratitude to the families who are participating in the clinical trials.
Today, Taysha Gene Therapies made several exciting announcements about their gene therapy TSHA-102 and the future of their Rett syndrome program. More information here: https://t.co/5f6E0yHPA3
Lack of holiday clubs is a nightmare for disabled children and families. Open doors, open minds and targeted £ are needed to ‘sort summer out’ once and for all @KIDScharity Parents left feeling 'rejected' over lack of SEND holiday care for children https://t.co/i3isHjdSEg
I’m very proud to be joining this wonderful organization. They were a source of support and education for us and and I look forward to helping in any way I can.
IRSF is proud to welcome three new members to its Board of Directors: Mary Engel, Laura Stoppel, and Steve Wood. Learn more about these Board members and how they will support IRSF's mission here: https://t.co/GenqgYmxVg
UK friends, please sign this petition. Hospices offer vital services to families like ours. Not just while Henry was alive, but also now with much needed grief support. @SSChospices
Our new research shows the huge impact that cutting the Children's Hospice Grant will have on lifeline children's hospice services. If you want to help us #SaveTheGrant this #ChildrensHospiceWeek please sign our petition today
https://t.co/WHDa4jRdq5
The winners of the “National Television Feature” category are @NBCNews@RichardEngel, @TheTodayShow & @OARichardEngel for “Richard Engel Reports: Ukraine’s Vilshany Orphanage.” https://t.co/D6EKS3ToJJ
"In all the years that I've been doing journalism, I've always found the people who are the most generous are the people who have the least to give."
Richard Engel finds generosity in the besieged city of Chasiv Yar, eastern Ukraine.