Maya Uccheddu - Lady Myasthenia / LadyM

Freelance digital artist and pharmacist. living with Myasthenia Gravis. LadyM on Instagram - lady.myasthenia) support @womensbrainpro

[Maria Teresa Ferretti @MaTeFerretti]

Our paper on empowering people with lived experience in neurological research made it to the cover of Nature Reviews Neurology ❤️🥳🤩 @MayaUcc @RichelleFlan

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

I'm thrilled to share an inspiring interview I recently conducted with Tánia Keramydá a remarkable athlete representing Greece at the Paralympics. As someone who also lives with Myasthenia Gravis, this conversation was incredibly special to me
#myastheniagravis #paralympics2024

[EuMGA @EuropeanMGA]

Tania, a 35-year-old athlete with Myasthenia Gravis, is representing Greece at the Paralympics!

🔗 Read her inspiring story on our website:

https://t.co/He1FeCBGYK

#myasthenia #myastheniagravis #raredisease #paraathletes #paralympics #paralympics2024

[EuMGA @EuropeanMGA]

It's wonderful to see the unity and diversity across Europe in raising awareness for myasthenia during June! Discover all the activities we carried out in our latest article. Read here: https://t.co/1FVjN5cizE
#Myastheniagravis
#myasthenia #MGawareness

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

@MaTeFerretti 💙💙💙 congratulations 🙌🏻 I’m so proud of you 🥹

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

Excited to share that I was interviewed by Vanity Fair Italia! Check out the full article

https://t.co/uOAV0ZabMZ

#VanityFair #Interview #myastheniagravis

[EuMGA @EuropeanMGA]

June is Myasthenia Gravis Awareness Month. Let’s spread the word and support those affected by this rare autoimmune disease. #MGAwareness #mgawarenessmonth #myastheniagravis #myasthenia

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

Thrilled to join the board of the European Myasthenia Gravis Association! Looking forward to making a difference alongside our dedicated team. 💙✨#myastheniagravis

[EuMGA @EuropeanMGA]

Exciting news from our AGM! Dimitris Zaftis confirmed as Secretary, Lut Allard confirmed as Treasurer and elected as President, and Maya Uccheddu joins us as a new Board Member. As we approach #Myasthenia Gravis Day, we’re more committed than ever to supporting our community.

[Maria Teresa Ferretti @MaTeFerretti]

A quick update:
THANK YOU 🙏 so much to all the people who donated so far- this is absolutely great, I am mind-blown by your generosity!

But we are still far from the goal, so any additional help out there is highly appreciated. Please share!
https://t.co/l61BRmeHEe

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

Anche un piccolo contributo può aiutare 💜

[Maria Teresa Ferretti @MaTeFerretti]

📢
Ho lanciato una raccolta fondi per sostenere un'iniziativa in cui credo molto, nel campo #demenza : Walking the Talk for Dementia. Se volete aiutare, qui tutte le info: https://t.co/kluF0o1qFK

[Maria Teresa Ferretti @MaTeFerretti]

In a very first in my life, I am launching a fundraiser to support a cause that is very dear to me - #dementia. I will be running the #Frauenlauf in Vienna in May and will need your help to reach my goal 🙏! more infos-> https://t.co/1oIJHxSiVa (1/x)

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

In the last few months, some scientific articles have really caught my attention.

-maternal and neonatal outcomes in #Myastheniagravis
- A guide for MG
- For the first time since many years, a new symptomatic treatment for MG.

👉 https://t.co/JNuaZwXpyI

[Femtech World @FemTechWorld]

Neurosexism: could this app bridge the gender gap in Parkinson’s disease?

https://t.co/msiC532sv1 #womenshealth #Parkinsons #Parkinsonsawarenessmonth #WomenEmpowerment #tech #womenintech #womeninbusiness @MyMovesMatter

[Myasthenia Gravis Foundation of America @MyastheniaOrg]

Having a rare disease can feel overwhelming, especially if you have a rare form of a rare disease. Join our seronegative #myastheniagravis support group. Find others who get it. Register here: https://t.co/NdXVjrzDss

[Richelle Flanagan 💚💚💚💚 @RichelleFlan]

We take facial expression for granted. Without realising it one of my #parkinsons symptoms was possibly #facialmasking as my son remarked the year in which I was diagnosed that “I didn’t smile as much as I used too”. I never noticed. Now I put an extra effort in when I smile 😀

[EuMGA @EuropeanMGA]

Let's come together to make a difference for MG
👉🏻 Sign the petition now!

https://t.co/fe9400wYqB

Let's make a difference together! #AllUnitedForMG #MGCommunity #MyastheniaGravis #MGpetition #MGCallforAction @AllUnitedforMG

[Maria Teresa Ferretti @MaTeFerretti]

for #IWD I guess this is a good message to send out there. In science, but also in life in general-
girls you are good enough, GO FOR IT, the world needs you

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

Join me tomorrow
16:00 CET
9-10am CST

Register here 👇

[Jimmy Dooley @jimmycdooley]

Lots of scientists are amazing artists. But this thread isn't about them. It's about the rest of us, who are just trying to get through our methods figure so we can get back to showing you graphs.

First, a rat made entirely out of ovals:
(Morales-Botello et al., 2012)

(1/x)

[EuMGA @EuropeanMGA]

We are pleased to share information about the XVII
National Congress of #Myasthenia Gravis , organized by the Spanish association AMES.

Register here: https://t.co/3AuHZu5vnx

The congress is open and free for anyone who wishes to attend in person or online.

[Maya Uccheddu - Lady Myasthenia / LadyM @MayaUcc]

@jonny_acheson @AACE_org @NHS This is a very needed infographic: With #Myasthenia Gravis, the biggest issue during sudden ambulance emergencies is also the list of contraindicated medications.