MeltingIceCubes Health

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[MeltingIceCubes Health @MeltingIceCubes]

Friedreichs Ataxia our daughters rare disease inspired us to build https://t.co/x8wqeEBL6i. We have over 600 conditions now. Can you find yours? If no, please use the ‘add condition’ box so we can include it😀 #RareDiseaseDay #MeltingIceCubes #FriedreichsAtaxia #researchtools

[MeltingIceCubes Health @MeltingIceCubes]

@Doug_Paulley @LNER @DavidHorne Exactly right! Good for you.

[MeltingIceCubes Health @MeltingIceCubes]

@sophielouisecc He most certainly is …

[MeltingIceCubes Health @MeltingIceCubes]

@BlondeHistorian My daughter Krystie died age 29 {Friedreichs Ataxia which destroys neurological connections}. She NEVER saw herself as disabled. Her final University dissertation “Disability in the Moving image”explored films where disability translates as superpowers. Society has not caught up

[MeltingIceCubes Health @MeltingIceCubes]

Tuesday - 28.03.23
Krystie should have been 33 today but 4 years ago this date also became the day she transferred from New Cross hospital to Compton Care; she lived until the 11th April - ‘missing’ goes beyond words. Love you always Krystie Rosa Elizabeth 💜 #FriedreichsAtaxia

[MeltingIceCubes Health @MeltingIceCubes]

@flowergirl_lon These illustrate theoretical design - but for many wheelchair users this space is not fit for purpose in many aspects… practical design needs to be part of training. Architects should consider using a panel of people who live with a variety of impairments to review designs…

[MeltingIceCubes Health @MeltingIceCubes]

@shelleyking55 @Peston @GaryLineker is right! Shameful BBC but What’s new? The past 2+ years a whole country expected to tow the line or be branded idiots/murderers/lowest of the low. People threatened with job loss (many lost) unless they complied. Not a big jump is it then this? Make sure NEVER AGAIN

[MeltingIceCubes Health @MeltingIceCubes]

@MrsRieB @StPancrasInt I am sorry you experienced this. He should have listened to you as you ARE the expert in your mobility… my daughter was dropped to the platform in her electric chair when leaving a train once. The train staff said - we are not used to your chair ?! Better training is needed!!!

[MeltingIceCubes Health @MeltingIceCubes]

@MichelleDewbs Absolutely …..

[MeltingIceCubes Health @MeltingIceCubes]

@RobbieRinder Stupid; indicative of underlying …. lets just say ‘bias’ - and wrong! The underlying drivers for gang related knife and gun crime are complex. This did need calling out - Grace and Marverine both challenged this input - but Judge R grabbed hold assertively - Pierce needs to go!

[MeltingIceCubes Health @MeltingIceCubes]

@MerianneJensen Yes

[MeltingIceCubes Health @MeltingIceCubes]

#rarediseaseday2022
Search trusted content on https://t.co/x8wqeEBL6i and if you can’t find your rare disease please use “add a condition” so we can expand our database.

Information is so important and the oppprtunity to connect with others who share yo…https://t.co/0fc41xZyL0

[MeltingIceCubes Health @MeltingIceCubes]

@Scott00343056 @DrAseemMalhotra Indeed!

[MeltingIceCubes Health @MeltingIceCubes]

@Tiny1066 @Claire_xx_ Yes…. This

[MeltingIceCubes Health @MeltingIceCubes]

@JamesfWells @sajidjavid Yes when?

[MeltingIceCubes Health @MeltingIceCubes]

@RealDeniseWelch I hear you x

[MeltingIceCubes Health @MeltingIceCubes]

@GHMansfield @JulieSowash Most definitely

[MeltingIceCubes Health @MeltingIceCubes]

@DarrenWalsh27 https://t.co/QXE4tOq8Uv

[MeltingIceCubes Health @MeltingIceCubes]

@Mas28938688 @TheEliKlein https://t.co/QXE4tOq8Uv

[MeltingIceCubes Health @MeltingIceCubes]

@StephenMDavis @TheEliKlein https://t.co/QXE4tOq8Uv

[MeltingIceCubes Health @MeltingIceCubes]

@TheEliKlein Really - on what basis? Bill Gates words here?