MetaTransformer

Metastatic Breast Cancer Advocate educating the community on cancer disparities & lack of treatment/research funding

[Julia Maués @itsnot_pink]

@NancysPoint @Metup My view on this is that it's fine to be as private as you want about your own health. However, sharing incorrect information is irresponsible for anyone, especially if you're famous and have a broad audience.

[Cassie Liu, MD, PhD @TheCassieLiu]

Joined a silent vigil at #SABCS19 #SABCS2019: @METUPorg @Majormac1 @MetaTransformer @Stickit2Stage4 advocating for #diversity in clinical trials to close the health disparities experienced by #minorities. #DiversityMatters #MedTwitter #MinoritiesinMedicine #DoubleDocs #bcsm

[MetaTransformer @MetaTransformer]

@METUPorg @TheCassieLiu Thank you my sister-friend

[METUP @METUPorg]

So this is starting to happen at #SABCS19

[Tatiana Prowell, MD @tmprowell]

Devastated to hear an advocate ask how she can work to end #disparity in #MBC w/o seeming like “the angry black woman.”
This is the last thing a pt living w/ #MBC and advocating for others should have to worry about. 😞

#ListenUpMBC #bcsm #SABCS19 @tigerlilycares @swaggsheila1

[METUP @METUPorg]

Next week METUP reminds researchers 42,000 continue dying of Metastatic Breast Cancer. Prevention research won’t save us now! We need more treatments and QOL! What would you want researchers to know about how MBC impacted your life? #SABCS19 #BCSM #MetastasticBC

[Robin Holmes @Majormac1]

Seen major shift in #malebreastcancer awareness at @SABCSSanAntonio, but not research yet. Much better support & programs for #metastaticBC advocates. Love seeing diversity on panels. I believe #SABCS19 will reflect years of work from previous advocate trailblazers. #bcsm

[MetaTransformer @MetaTransformer]

Just read a very interesting article published on August 21, 2019 #AJMC in focus blog, titled "Research Reveals a Lack of Racial Diversity in Clincial Trials for Cancer Drugs"

[Robin Holmes @Majormac1]

Great memories with @LtColMac1 in NYC today working with other amazing metastatic breast cancer advocates. All determined to change the landscape of breast cancer. No more pink parties until we decrease the death rate of #metastaticBC #malebreastcancer #KissThisMBC

[METUP @METUPorg]

Most media stories tell us stories of how early detection saves lives. Approximately 90% of all breast cancer is found early & cured. Up to 1 in 3 with early stage BC will have cancer return to other parts of there body and die years later. #MetastaticBC is killing us in masses.

[METUP @METUPorg]

@JCiparelli @Deadline2020 @metavivor NBCC is training more people with #metastasticBC. They are our stakeholders representing us! Now we need to get NBCC board members to listen. Stakeholders are dying too because of organizations primarily focused on prevention only. Please hear these voices NBCC #DeadBy2020 #bcsm

[METUP @METUPorg]

@Kstrom13 doesn't want to be #DeadBy2020 but prevention
won't help her now.

"When you're diagnosed w stage 4 cancer, it’s like a trap door has opened up & you freefall. The thing is, there's no bottom to land on until you hit the coffin." #bcsm
https://t.co/kGaLGT9Iv4

[Robin Holmes @Majormac1]

Felt good to see the passion in the #metastaticBC yesterday. So many dear friends lost & struggling to hang on to life. Too many young women & men constantly told this disease primarily impacts middle age women. Honored to have been & mentored by @CultPerfectMoms @Stickit2Stage4

[Beth Kulow @ehgkulow]

When will they decide that WE MATTER?? #deadby2020 #bcsm

[METUP @METUPorg]

https://t.co/yTUYYepqQk #bcsm

[METUP @METUPorg]

We light 116 candles for those lost to #metastasticBC today. More research hands on deck are needed to unlock a complicated disease. The number one cancer killer of women. #stage4needsmore in all metastatic cancer research. #lcsm #bcsm #urgency

[Susan Rahn @Stickit2Stage4]

Stay tuned! @METUPorg will be announcing special additions to this year's October DC events. We are proud to be sponsoring what will most definitely be a very memorable year. #bcsm #mbc

[METUP @METUPorg]

Help us change the landscape of breast cancer. Help us get support directed towards those living & dying of #metastasticBC. Help us bring diversity to patient engagement at conferences. We are an organization of volunteers living this disease. We understand the urgency. #bcsm

[METUP @METUPorg]

The @US_FDA proposed better mammogram requirements. The problem is 90% dying from #metastastaticBC found cancer early stage & it came back between 1 to 25 years later. Many of the 10% found too late are men & young women who won’t benefit. What about us? #bcsm #malebreastcancer