Michael Ellenbogen

International Dementia Advocate & Connecter who wants to change the perception of this disease. It's way underfunded. Please Help. Thanks

[Michael Ellenbogen @MichaelEllenbog]

Please support the bipartisan ASAP Act @repandyharrismd . Help at-risk Americans benefit from early detection and access to new treatments. #ASAPAct

[Michael Ellenbogen @MichaelEllenbog]

Please support the bipartisan ASAP Act @chrisvanhollen . Help at-risk Americans benefit from early detection and access to new treatments. #ASAPAct

[Michael Ellenbogen @MichaelEllenbog]

Please cosponsor the bipartisan Alzheimer's Screening and Prevention Act. @alsobrooksformd #ASAPAct

[Michael Ellenbogen @MichaelEllenbog]

Hopefully you can help me with this.
Please help me meet with the President https://t.co/DKeizl4gcF
Thanks
#trump #maga #donaldtrump #usa #republican

[Michael Ellenbogen @MichaelEllenbog]

Check out my latest article: Dear President Trump, Let’s talk about this important issue and save our country and lives https://t.co/DKeizl4gcF via @LinkedIn

[Michael Ellenbogen @MichaelEllenbog]

@DrWoodcockFDA Best wishes and hope you enjoy a well-deserved retirement. Thanks for always being there for me. I may still reach out to you for your advice.

[Michael Ellenbogen @MichaelEllenbog]

Can you believe one has to pay before they can get into a clinical trial?

[Michael Ellenbogen @MichaelEllenbog]

It saddens me that they chose a moderator from University of Pennsylvania at #a2NationalSymposium. University of Pennsylvania contributes to racial discrimination in their clinical dementia trails. @a2_collective @JH_AITC @MassAITC @pennaitech @Penn @PennEVP @PennMedicine

[Michael Ellenbogen @MichaelEllenbog]

If you come there from another doctor with an existing diagnosis of some type of dementia, they still want you to pay to see their doctors before they will even consider you. That needs to stop as it has an impact on minorities.

[Michael Ellenbogen @MichaelEllenbog]

I have tried to address this but even NIH fails to do anything when they know what is happening there. For that matter most are afraid to address it. Are they really that big that they cannot be touched?

[Michael Ellenbogen @MichaelEllenbog]

@JH_AITC @MassAITC @pennaitech Just making sure you saw this. I am available should you want to talk about what matters to us.

[Michael Ellenbogen @MichaelEllenbog]

#a2NationalSymposium @a2_collective I am a person living life to the fullest with dementia and I have looked at most of the COHORT 1 AWARDEE PROFILES. It makes me wonder if any of those folks even spoke to people with dementia like me?

[Michael Ellenbogen @MichaelEllenbog]

I am a technology person and I want something that helps me live a safer life, meaningful by still doing the things I want to do and longer with the help of technology. You would think that’s what matters.

[Michael Ellenbogen @MichaelEllenbog]

@reaIDonaIdJTru1 I would but dont know how to raise my hand.

[Michael Ellenbogen @MichaelEllenbog]

#AAIC22 #ENDALZ #alzhealthdisparities Hope @Being_Patient_ can help to bring change as we need to stop the bad practice from @Penn @PennEVP which leads to Discriminatory practice in dementai clinical trials to those who want to help the science. This effects @MinorityHealth

[Michael Ellenbogen @MichaelEllenbog]

@Being_Patient_ @Penn @PennMedicine @PennEVP That is fantastic as no one else has the guts to address this issue that is hurting those with dementia. I sent a email to them just now. Thanks

[Michael Ellenbogen @MichaelEllenbog]

@Being_Patient_ @Penn @PennMedicine @PennEVP That is fantastic as no one else has the guts to address this issue that is hurting those with dementia. I sent a email to them just now. Thanks

[Michael Ellenbogen @MichaelEllenbog]

Now we know why @Being_Patient_ will not look into the discrimination practice at @Penn as @PennMedicine @PennEVP. Its sad when others aren't eligible for the Clinical Trial because they are charged for what is supposed to be free. #AAIC22 #ENDALZ #alzhealthdisparities

[Michael Ellenbogen @MichaelEllenbog]

@Penn_Memory

[Michael Ellenbogen @MichaelEllenbog]

Now we know why @Being_Patient_ will not look into the discrimination practice at @Penn as @PennMedicine @PennEVP. Its sad when others aren't eligible for the Clinical Trial because they are charged for what is supposed to be free. #AAIC22 #ENDALZ #alzhealthdisparities

[Michael Ellenbogen @MichaelEllenbog]

@Penn_Memory @AdrianaPerez98 @PennLDI Especially at @Penn as @PennMedicine because you folks charge people who are trying to help the scientific community by charging them to enter clinical trails? @PennEVP This creates discrimination that you can stop. #AAIC22 #ENDALZ #alzhealthdisparities Still waiting for change.

[Michael Ellenbogen @MichaelEllenbog]

@Penn_Memory @MarwanSabbaghMD @jasonkarlawish @PennMedicine @Penn @PennEVP @Being_Patient_ you should do a story on how these folks are taking advantage of people in clinical trials who volunteer their bodies to science by charging them to get into them.

[Michael Ellenbogen @MichaelEllenbog]

@Penn_Memory @MarwanSabbaghMD @jasonkarlawish @PennMedicine
is wrong & taking advantage of people who are trying to help the scientific community? @Penn @PennEVP
There are many forms of discrimination that must change.Hope they change soon. Let them know. #AAIC22 #ENDALZ #alzhealthdisparities