6 months ago this would've seemed impossible but thanks to #trikafta it is. I'm far from well, it's not a miracle for everyone but it's given me time to make new memories and so much hope. ππ
Thank you @zellybev, @Raeleneofficial, been trying your workouts from @Beam_CF, think I'm going to renew my membership. Still a long way to go but determined as ever πͺπ»π
Well done Harriet. If you're looking for something meaningful to do during lockdown please create your own charity event or sponsor Harriet. What a little champion π @strawfie
It's time to #Bounce4CF!!
Harriet is bouncing (and squeaking!) to raise funds for the @cftrust because people with CF are vulnerable during the #covid19 pandemic
How many ways can you bounce? Join in!
DONATE HERE: https://t.co/GuXNqjwAlM
EVENT DETAILS: https://t.co/2YGsvYtm1l
This was @MichelleBamber in January this year. She gained access to CF drug #Trikafta & is now fundraising for @cftrust
Please share/RT
Please donate as people with CF are very vulnerable during #Covid19 pandemic. Thank you
#CFAwareness
Donation link:
https://t.co/2UW4pYKV18
Contd.....left house for hospital appt but also step daughter had classic symptoms this week ( I'd been isolstiong from her for 9 days when mine started as she had seen people that travelled abroad) but only 2 ways I've been exposed.
Hi @MattHancock I'm a CF patient who has been told I'm likely to have COVID-19 based on symptoms. Surely i should be tested as a high risk individual, if only to ease anxiety if/when I clear it...... you were tested right? @ChrisMRiches@strawfie
I've had a run of bad luck, 1st a cold, after that I started isolating, but went to my chest, ended up having to start home IVs then symptons changed this week, loss of smell/taste, change in cough, now headaches, fatigue and breathing difficulties. Last 3 weeks only contd....
@MathewRodgers14@MattHancock@ChrisMRiches@strawfie Contd.....left house for hospital appt but also step daughter had classic symptoms this week ( I'd been isolstiong from her for 9 days when mine started as she had seen people that travelled abroad) but only 2 ways I've been exposed.
@MathewRodgers14@MattHancock@ChrisMRiches@strawfie I've had a run of bad luck, 1st a cold, after that I started isolating, but went to my chest, ended up having to start home IVs then symptons changed this week, loss of smell/taste, change in cough, now headaches, fatigue and breathing difficulties. Last 3 weeks only contd....
@ChrisMRiches I asked them today they said they'll only do it if I'm admitted which may be likely but it should be routine regardless as to whether an inpatient or not.