Rough night tonight. Got me pondering what I would do if I woke up one day with zero pain. Would I try to do everything at once? Or just go pick up my granddaughter and play with her for hours? How about you? What would you do if you woke up w/o pain? #chronicillness#migraine
@kspizzle@StynaLane Thank you for your question. I think the easiest way to answer this is to say that unless the disabled person brings up their disability specifically, treat it as off-limits. Then ask yourself “does this comment make it seem like I’m praising them for not un-aliving themselves?”
@CMAware I have not experienced this at all. In fact, I’ve worn masks when sick for years so that I wouldn’t infect others and never had a problem with it triggering migraine. I’ve also had the Pfizer vaxx x2 and had no adverse effects. Don’t feed me avocados or cheese though! 🙃
Just had this convo with my own mother: asked her to stop telling me it would get better because she can’t possibly know that. It may NEVER get better and I’ll have to find a way to still be okay and live a life. 💜
Hey real talk, I don't ever really buy into the "it gets better" shit, because it hasn't gotten better in all the years that I've heard it. But I'm still fucking here because maybe one day it will make sense, so I hope you stick around with me out of pure stubbornness too
@rayethedoula I struggle with setting healthy boundaries because I still feel like they won’t be respected anyway, so I just cut people off or hold them at arm’s length instead. The result is that I am alone during a difficult chronic illness.
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@CMAware Cold packs and resting quietly. My face only starts hurting after an extended 9/10 or 10/10 headache, so it’s infrequent. Would love to hear management strategies though!